CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

Selected 17 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1039-C17887	C17887	Gastrointestinal therapy continuous feed end time value	The value for the time of day that the participant/subject's continuous feeding is normally ended	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1058-C10568	C10568	Imaging radio frequency coil channel count	Number of the coil channels in the radio frequency (RF) coil used for the imaging scan	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1091-C00002	C00002	Post conceptional age value	Gestational age plus postnatal age of the participant/subject	Supplemental	Prenatal and Perinatal History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1060-C12901	C12901	Echocardiogram right ventricle end systolic volume measurement	Imaged right ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole	Supplemental	Echocardiogram	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1038-C12417	C12417	Pulmonary blood gas bicarbonate value	The numeric value of the bicarbonate (HCO3) level in the blood	Supplemental	Measures of Gas Exchange	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C12500	C12500	Imaging corpus callosum type indicator	The condition of the corpus callosum fibers	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C12329	C12329	Respiratory manual cough assist use frequency	Frequency of use of the manual cough assist method (e.g. Heimlich style maneuver)	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1055-C10570	C10570	Imaging contrast agent used indicator	Indicator as to whether or not an imaging contrast agent was used for the scan	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1036-C12440	C12440	Polysomnography percent sleep time total percent blood oxygen saturation value	Value representing the amount of total sleep, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12178	C12178	Dual X-ray absorptiometry hip T score	Dual X-ray absorptiometry (DEXA) Hip T score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1983-C12226	C12226	Specimen source type	Type of specimen collection source	Supplemental-Highly Recommended	Peripheral Nerves - Biopsies and Autopsies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1983-C12235	C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Supplemental-Highly Recommended	Peripheral Nerves - Biopsies and Autopsies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1983-C12277	C12277	Biospecimen fragment collect count	Count of fragments collected in the tissue specimen	Supplemental-Highly Recommended	Peripheral Nerves - Biopsies and Autopsies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1993-C12236	C12236	Biopsy amyloid present on Congo red stain indicator	Indicator of whether there was biopsy amyloid present on the Congo Red stain	Supplemental-Highly Recommended	Fat Aspirate Tissue Specimens	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1983-C12230	C12230	Tissue specimen collection date and time	Date (and time if applicable and known) when the tissue specimen was collected	Supplemental-Highly Recommended	Peripheral Nerves - Biopsies and Autopsies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1983-C18828	C18828	Histochemical stains used other text	The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen	Supplemental-Highly Recommended	Peripheral Nerves - Biopsies and Autopsies	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.