CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 101 - 125 of 1113
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00021 Ethnicity USA paternal category

Ethnicity the participant/subject's father most closely identifies with

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C18863 Birth location state other text

The free-text field related to 'Birth location state name' specifying other text. Name of the state/province/similar political division in which participant/subject was born

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C16606 Myasthenia Gravis Composite (MGC) - breath difficult score

Score for difficulty breathing, as part of the Myasthenia Gravis Composite (MGC)

Core Myasthenia Gravis Composite - MGC Myasthenia Gravis Myasthenia Gravis (MG)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C12780 Test assay abnormality type

Whether the result of the confirmatory diagnostic test was normal or abnormal

Core Confirmatory Diagnostic Tests - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12815 Thymectomy transsternal type

The type of transsternal thymectomy performed

Core Thymectomy - MG Myasthenia Gravis Myasthenia Gravis (MG)
C16600 Myasthenia Gravis Composite (MGC) - ptosis up gaze duration score

Score for duration of delay before ptosis in upward gaze, as part of the Myasthenia Gravis Composite (MGC)

Core Myasthenia Gravis Composite - MGC Myasthenia Gravis Myasthenia Gravis (MG)
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed.

Core MG Status - MG Myasthenia Gravis Myasthenia Gravis (MG)
C13230 Modified Rankin Scale (mRS) Score

The overall modified Rankin Scale (mRS) score assigned to the participant/ subject

Exploratory Modified Rankin Scale (mRS) Myasthenia Gravis Myasthenia Gravis (MG)
C17879 Polysomnography start time clock type

Type of clock used to record the time at which the sleep study began

Supplemental Polysomnography Myasthenia Gravis Myasthenia Gravis (MG)
C17958 Cardiovascular Holter exam fastest run tachycardia episode value

Fastest run of tachycardia episodes during the Holter examination

Supplemental Holter Examination Myasthenia Gravis Myasthenia Gravis (MG)
C11100 Pulmonary function test position type

Participant's/subject's position for the pulmonary function assessment

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
C12421 Pulmonary gas exchange lowest oxygen saturation value

The lowest recorded oxygen saturation (SpO2) value

Supplemental Measures of Gas Exchange Myasthenia Gravis Myasthenia Gravis (MG)
C00008 Age value

Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject.

Supplemental Brain Magnetic Resonance Imaging (MRI) Myasthenia Gravis Myasthenia Gravis (MG)
C12428 Polysomnography study end time

Time at which the sleep study ended

Supplemental Polysomnography Myasthenia Gravis Myasthenia Gravis (MG)
C17944 Spectroscopy geometry voxel slice size left value

Value, in mm, of voxel or slice left-right size for the spectroscopy scan being reported

Supplemental Magnetic Resonance Spectroscopy (MRS) Myasthenia Gravis Myasthenia Gravis (MG)
C12540 Imaging T2 measurement indicator

Indicator of whether T2 measurement was used

Supplemental Magnetic Resonance Imaging (MRI) Myasthenia Gravis Myasthenia Gravis (MG)
C17905 Biopsy and autopsy abnormal storage material text

Text describing biopsy or autopsy material that has been stored abnormally

Supplemental Peripheral Nerves - Biopsies and Autopsies Myasthenia Gravis Myasthenia Gravis (MG)
C12744 Electrophysiology neuromuscular jitter mean consecutive difference abnormal count

Count of pairs/endplates with abnormal mean consecutive difference (MCD) recorded for the neuromuscular jitter study being described

Supplemental Electrophysiology - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12325 Respiratory mechanical in-exsufflator exhale duration

Value of the exhale time setting for the mechanical in-exsufflator

Supplemental Respiratory Interventions Myasthenia Gravis Myasthenia Gravis (MG)
C10725 Echocardiogram left ventricle PWTd measurement

Left ventricular end - diastolic posterior wall thickness (PWTd) measured with echocardiography

Supplemental Echocardiogram Myasthenia Gravis Myasthenia Gravis (MG)
C12307 Ulna length measure tool name

Instrument used to measure ulna length

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
C12200 Gastrointestinal therapy feed tube type

Type of tube through which the participant/subject receives therapeutic tube feedings

Supplemental Gastrointestinal Therapies Myasthenia Gravis Myasthenia Gravis (MG)
C08241 Imaging field of view axis 1 measurement

Axis 1 of the image that is visible through the camera at a particular position in orientation and space in millimeters

Supplemental Brain Magnetic Resonance Imaging (MRI) Myasthenia Gravis Myasthenia Gravis (MG)
Displaying 101 - 125 of 1113

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.