CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 1067
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C02006 Medication prior or concomitant dose

Dose of prior/concomitant medication taken per administration

Core Prior and Current Treatments for MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12641 Medication side effect or complication indicator

Whether the participant/subject reports side effects or complications due to the medication

Core Prior and Current Treatments for MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12811 Thymectomy date and time

Date and time (if applicable and known) thymectomy procedure was performed

Core Thymectomy - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Myasthenia Gravis Myasthenia Gravis (MG)
C12778 Test assay perform indicator

Indicator of whether the confirmatory diagnostic test/assay was performed

Core Confirmatory Diagnostic Tests - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

Core Fat Aspirate Tissue Specimens Myasthenia Gravis Myasthenia Gravis (MG)
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12689 Myasthenia gravis treatment type

Type of treatment used for myasthenia gravis (MG)

Core Prior and Current Treatments for MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12812 Thymectomy technique type

Type of technique used for the thymectomy procedure

Core Thymectomy - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Medical History - MG Myasthenia Gravis Myasthenia Gravis (MG)
C02437 Imaging modality type

Type of radiologic study performed on the participant

Core Chest Imaging - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

Core Social Status - MG Myasthenia Gravis Myasthenia Gravis (MG)
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

Core Muscle Biopsy and Autopsy Tissue Myasthenia Gravis Myasthenia Gravis (MG)
C12226 Specimen source type

Type of specimen collection source

Core Fat Aspirate Tissue Specimens Myasthenia Gravis Myasthenia Gravis (MG)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12611 Birth location state name

Name of the state/province/similar political division in which participant/subject was born

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Core Laboratory Tests and Tracking Myasthenia Gravis Myasthenia Gravis (MG)
C01709 Lab test result status

Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed

Core Laboratory Tests and Tracking Myasthenia Gravis Myasthenia Gravis (MG)
C02011 Medication prior or concomitant dose frequency

Frequency of use of a prior/concomitant medication

Core Prior and Current Treatments for MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions

Core Laboratory Tests and Tracking Myasthenia Gravis Myasthenia Gravis (MG)
C12691 Medication prior or concomitant response text

Description of the response to the medication

Core Prior and Current Treatments for MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C13230 Modified Rankin Scale (mRS) Score

The overall modified Rankin Scale (mRS) score assigned to the participant/ subject

Exploratory Modified Rankin Scale (mRS) Myasthenia Gravis Myasthenia Gravis (MG)
C12298 Pulmonary function test not done reason

Reason the pulmonary function test was attempted but not completed

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.