CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

Core Laboratory Tests and Tracking Myasthenia Gravis Myasthenia Gravis (MG)
C18828 Histochemical stains used other text

The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen

Core Fat Aspirate Tissue Specimens Myasthenia Gravis Myasthenia Gravis (MG)
C12642 Symptom first experienced distribution category

System or region of the body that exhibited the first symptoms of the disease/disorder

Core Medical History of MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12777 Confirmatory diagnostic test assay type

Name of the confirmatory diagnostic test/assay used

Core Confirmatory Diagnostic Tests - MG Myasthenia Gravis Myasthenia Gravis (MG)
C01541 Weight measurement

Measurement of participant's weight

Core Vital Signs Myasthenia Gravis Myasthenia Gravis (MG)
C02006 Medication prior or concomitant dose

Dose of prior/concomitant medication taken per administration

Core Prior and Current Treatments for MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12641 Medication side effect or complication indicator

Whether the participant/subject reports side effects or complications due to the medication

Core Prior and Current Treatments for MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00033 Race USA maternal category

Race(s) the participant/subject's mother most closely identifies with

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12643 Myasthenia Gravis Foundation of America (MGFA) classification type

The Myasthenia Gravis Foundation of America (MGFA) classification of the maximum severity of Myasthenia Gravis symptoms

Core Medical History of MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C12811 Thymectomy date and time

Date and time (if applicable and known) thymectomy procedure was performed

Core Thymectomy - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Myasthenia Gravis Myasthenia Gravis (MG)
C12778 Test assay perform indicator

Indicator of whether the confirmatory diagnostic test/assay was performed

Core Confirmatory Diagnostic Tests - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12689 Myasthenia gravis treatment type

Type of treatment used for myasthenia gravis (MG)

Core Prior and Current Treatments for MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

Core Laboratory Tests and Tracking Myasthenia Gravis Myasthenia Gravis (MG)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

Core Fat Aspirate Tissue Specimens Myasthenia Gravis Myasthenia Gravis (MG)
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Core Muscle Biopsy and Autopsy Tissue Myasthenia Gravis Myasthenia Gravis (MG)
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C12812 Thymectomy technique type

Type of technique used for the thymectomy procedure

Core Thymectomy - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Medical History - MG Myasthenia Gravis Myasthenia Gravis (MG)
C02437 Imaging modality type

Type of radiologic study performed on the participant

Core Chest Imaging - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

Core Social Status - MG Myasthenia Gravis Myasthenia Gravis (MG)
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.