CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 1067
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Core MG Status - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

 Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Myasthenia Gravis Myasthenia Gravis (MG)
C12815 Thymectomy transsternal type

The type of transsternal thymectomy performed

 Core Thymectomy - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12777 Confirmatory diagnostic test assay type

Name of the confirmatory diagnostic test/assay used

 Core Confirmatory Diagnostic Tests - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

 Core Muscle Biopsy and Autopsy Tissue False Myasthenia Gravis Myasthenia Gravis (MG)
C18830 Tissue specimen collection anatomic site other text

The free-text field related to 'Tissue specimen collection anatomic site' specifying other text. Anatomic site from which the tissue specimen was collected

 Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Myasthenia Gravis Myasthenia Gravis (MG)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

 Core Peripheral Nerves - Biopsies and Autopsies False Myasthenia Gravis Myasthenia Gravis (MG)
C12781 Test assay result

Result of the confirmatory diagnostic test or assay performed

 Core Confirmatory Diagnostic Tests - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C02016 Medication prior or concomitant start date and time

The date (and time, if applicable and known) on which the prior/concomitant medication usage began

 Core Prior and Current Treatments for MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

 Core Laboratory Tests and Tracking False Myasthenia Gravis Myasthenia Gravis (MG)
C19533 Immunomodulating agent other specify

The free-text field related to Immunomodulating agent, specify specifying other text

 Core Prior and Current Treatments for MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

 Core Fat Aspirate Tissue Specimens False Myasthenia Gravis Myasthenia Gravis (MG)
C01709 Lab test result status

Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed

 Core Laboratory Tests and Tracking False Myasthenia Gravis Myasthenia Gravis (MG)
C00022 Ethnicity USA maternal category

Ethnicity the participant/subject's mother most closely identifies with

 Core Demographics - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core Medical History - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C08006 Symptoms first appear date and time

Date (and time if applicable and known) the symptoms for the disease or disorder first appeared as confirmed by the participant's/subject's medical history obtained by a physician

 Core Medical History of MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions

 Core Laboratory Tests and Tracking False Myasthenia Gravis Myasthenia Gravis (MG)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core General Core False Myasthenia Gravis Myasthenia Gravis (MG)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

 Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Myasthenia Gravis Myasthenia Gravis (MG)
C12816 Thymus non-thymoma histology grade

Results from the non-thymoma thymus histology

 Core Thymectomy - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12778 Test assay perform indicator

Indicator of whether the confirmatory diagnostic test/assay was performed

 Core Confirmatory Diagnostic Tests - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C18872 Confirmatory diagnostic test assay other text

The free-text field related to 'Confirmatory diagnostic test assay type' specifying other text. Name of the confirmatory diagnostic test/assay used

 Core Confirmatory Diagnostic Tests - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

 Core Prior and Current Treatments for MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C19534 Immunosuppressant specify

The free-text field related to Immunosuppresant, specify specifying other text

 Core Prior and Current Treatments for MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

 Core Fat Aspirate Tissue Specimens False Myasthenia Gravis Myasthenia Gravis (MG)
Displaying 51 - 75 of 1067

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.