CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 401 - 425 of 1067
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental Prenatal and Perinatal History Myasthenia Gravis Myasthenia Gravis (MG)
C12899 Echocardiogram right ventricle end diastolic volume index measurement

Calculated from end diastolic volume over body surface area - right ventricle

Supplemental Echocardiogram Myasthenia Gravis Myasthenia Gravis (MG)
C12858 Cardiac MRI other cardiac anatomy evaluate name

Name of other cardiac anatomy that was evaluated by cardiac MRI

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Myasthenia Gravis Myasthenia Gravis (MG)
C17875 Pulmonary function test text

Other type of pulmonary function testing performed

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
C17902 Elevated creatine kinase value

The elevated creatine kinase value

Supplemental Muscle Biopsy and Autopsy Tissue Myasthenia Gravis Myasthenia Gravis (MG)
C12818 Gene second allele identical indicator

Whether allele #2 is identical to allele #1

Supplemental Mutation Analysis Myasthenia Gravis Myasthenia Gravis (MG)
C10927 Imaging inversion time

The time period between the 180° inversion pulse and the 90° excitation pulse in an Inversion Recovery pulse sequence

Supplemental Magnetic Resonance Imaging (MRI) Myasthenia Gravis Myasthenia Gravis (MG)
C12399 Respiratory support schedule use time day type

The type as it relates to the time(s) of day the ventilation device is used by the participant/subject

Supplemental Respiratory Interventions Myasthenia Gravis Myasthenia Gravis (MG)
C12603 Birth length value

Measurement of the participant's/subject's length at birth

Supplemental Prenatal and Perinatal History Myasthenia Gravis Myasthenia Gravis (MG)
C12254 Biopsy and autopsy myopathy-associated pathological structures type

The type of myopathy-associated pathological structures seen in the histology of the biopsy or autopsy specimen

Supplemental Muscle Biopsy and Autopsy Tissue Myasthenia Gravis Myasthenia Gravis (MG)
C12907 Echocardiogram right ventricle non-compaction status

Status of non-compaction in the right ventricle as assessed by echocardiography

Supplemental Echocardiogram Myasthenia Gravis Myasthenia Gravis (MG)
C01535 Respiratory rate

Rate of the participant/subject's breathing (inhalation and exhalation)

Supplemental Vital Signs Myasthenia Gravis Myasthenia Gravis (MG)
C12357 Respiratory medication nebulized type

Type of the medication(s) nebulized

Supplemental Respiratory Interventions Myasthenia Gravis Myasthenia Gravis (MG)
C12647 Myasthenia gravis muscle manual testing (MG-MMT) - score

Participant/subject's score on the Myasthenia gravis muscle manual testing (MG-MMT)

Supplemental Medical History of MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

Supplemental Brain Magnetic Resonance Imaging (MRI) Myasthenia Gravis Myasthenia Gravis (MG)
C02499 Imaging pulse sequence type

Type of imaging pulse sequence used

Supplemental Diffusion Tensor Imaging (DTI) Myasthenia Gravis Myasthenia Gravis (MG)
C17896 Variant mutational analysis not performed reason

Why the mutational analysis was not performed

Supplemental Mutation Analysis Myasthenia Gravis Myasthenia Gravis (MG)
C12541 Imaging contrast agent injection time

Time contrast medium was administered

Supplemental Magnetic Resonance Imaging (MRI) Myasthenia Gravis Myasthenia Gravis (MG)
C17881 Respiratory support ventilation mode negative pressure text

Text specifying the negative pressure support ventilation used by the support ventilation device

Supplemental Respiratory Interventions Myasthenia Gravis Myasthenia Gravis (MG)
C12262 Biopsy and autopsy microorganisms name

Name of microorganisms identified in biopsy or autopsy specimen

Supplemental Muscle Biopsy and Autopsy Tissue Myasthenia Gravis Myasthenia Gravis (MG)
C17961 Cardiovascular aortic stenosis regurgitation comment text

The text detailing the comments of the degree of stenosis and regurgitation for the aortic valve

Supplemental Echocardiogram Myasthenia Gravis Myasthenia Gravis (MG)
C01582 Height unit of measure

Unit of measure for the height numerical value for subject/participant

Supplemental Vital Signs Myasthenia Gravis Myasthenia Gravis (MG)
C12365 Respiratory airway clearance medication concentration value

Value of the concentration of the airway clearance medication used

Supplemental Respiratory Interventions Myasthenia Gravis Myasthenia Gravis (MG)
C12644 Institute of Neurology Carlo Besta (INNCB) Myasthenia Gravis scale - total score

Participant/Subject's total score for the Fondazione Istituto Neurologico "Carlo Besta" (INNCB) Myasthenia Gravis Scale

Supplemental MG Status - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12864 Echocardiogram left atrial dimension measurement

Dimension of the left atrium measured with echocardiography

Supplemental Echocardiogram Myasthenia Gravis Myasthenia Gravis (MG)
Displaying 401 - 425 of 1067

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.