CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C19534	Immunosuppressant specify	The free-text field related to Immunosuppresant, specify specifying other text	Core	Prior and Current Treatments for MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18828	Histochemical stains used other text	The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C16608	Myasthenia Gravis Composite (MGC) - shoulder abduct weak score	Score for weakness in shoulder abduction, as part of the Myasthenia Gravis Composite (MGC)	Core	Myasthenia Gravis Composite - MGC	True	Myasthenia Gravis	Myasthenia Gravis (MG)
C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18872	Confirmatory diagnostic test assay other text	The free-text field related to 'Confirmatory diagnostic test assay type' specifying other text. Name of the confirmatory diagnostic test/assay used	Core	Confirmatory Diagnostic Tests - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12226	Specimen source type	Type of specimen collection source	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C02022	Medication prior or concomitant dose unit of measure	Dosage unit of measure of the prior or concomitant medication administered	Core	Prior and Current Treatments for MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C01711	Lab test result unit of measure	Unit of measure for the laboratory test result	Core	Laboratory Tests and Tracking	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C02437	Imaging modality type	Type of radiologic study performed on the participant/subject	Core	Chest Imaging - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Core	Fat Aspirate Tissue Specimens	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12817	Thymoma histology grade	The World Health Organization (WHO) grade for thymoma histology	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Core	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C08006	Symptoms first appear date and time	Date (and time if applicable and known) the symptoms for the disease or disorder first appeared as confirmed by the participant's/subject's medical history obtained by a physician	Core	Medical History of MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	Medical History - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C19535	Myasthenia gravis treatment other text	The free-text field related to Myasthenia gravis treatment type specifying other text	Core	Prior and Current Treatments for MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00032	Race USA paternal category	Race(s) the participant/subject's father most closely identifies with	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18830	Tissue specimen collection anatomic site other text	The free-text field related to 'Tissue specimen collection anatomic site' specifying other text. Anatomic site from which the tissue specimen was collected	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12229	Tissue specimen size measurement	Measurement of the size of the tissue specimen collected	Core	Peripheral Nerves - Biopsies and Autopsies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C16609	Myasthenia Gravis Composite (MGC) - hip flex weak score	Score for weakness in hip flexion, as part of the Myasthenia Gravis Composite (MGC)	Core	Myasthenia Gravis Composite - MGC	True	Myasthenia Gravis	Myasthenia Gravis (MG)
C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Core	Chest Imaging - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C08007	Diagnosis first given date and time	Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder	Core	Medical History of MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant/subject's medical history was taken	Core	Medical History - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.