CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1113
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

Core Social Status - MG Myasthenia Gravis Myasthenia Gravis (MG)
C18865 Symptom first experienced distribution other text

The free-text field related to 'Symptom first experienced distribution category' specifying other text. System or region of the body that exhibited the first symptoms of the disease/disorder

Core Medical History of MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C12652 Myasthenia Gravis Foundation of America (MGFA) - post-intervention status

The Myasthenia Gravis Foundation of America (MGFA) post intervention status

Core MG Status - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00319 Medical history condition ongoing indicator

Indicator of whether a medical condition/disease experienced by the participant/subject is ongoing

Core Medical History - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12814 Thymectomy videoscopic type

The type of videoscopic thymectomy performed

Core Thymectomy - MG Myasthenia Gravis Myasthenia Gravis (MG)
C18876 Diagnosis thymoma other text

The free-text field related to 'Diagnosis thymoma type' specifying other text. Type of thymoma observed

Core Chest Imaging - MG Myasthenia Gravis Myasthenia Gravis (MG)
C18863 Birth location state other text

The free-text field related to 'Birth location state name' specifying other text. Name of the state/province/similar political division in which participant/subject was born

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C16606 Myasthenia Gravis Composite (MGC) - breath difficult score

Score for difficulty breathing, as part of the Myasthenia Gravis Composite (MGC)

Core Myasthenia Gravis Composite - MGC Myasthenia Gravis Myasthenia Gravis (MG)
C12780 Test assay abnormality type

Whether the result of the confirmatory diagnostic test was normal or abnormal

Core Confirmatory Diagnostic Tests - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Core Muscle Biopsy and Autopsy Tissue Myasthenia Gravis Myasthenia Gravis (MG)
C18736 Medication prior or concomitant dose unit of measure other text

The free-text field related to 'Medication prior or concomitant dose unit of measure' specifying other text. Dosage unit of measure of the prior or concomitant medication administered.

Core Prior and Current Treatments for MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject

Core Family History - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00021 Ethnicity USA paternal category

Ethnicity the participant/subject's father most closely identifies with

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions.

Core Laboratory Tests and Tracking Myasthenia Gravis Myasthenia Gravis (MG)
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed.

Core MG Status - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories.

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12815 Thymectomy transsternal type

The type of transsternal thymectomy performed

Core Thymectomy - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Myasthenia Gravis Myasthenia Gravis (MG)
C16600 Myasthenia Gravis Composite (MGC) - ptosis up gaze duration score

Score for duration of delay before ptosis in upward gaze, as part of the Myasthenia Gravis Composite (MGC)

Core Myasthenia Gravis Composite - MGC Myasthenia Gravis Myasthenia Gravis (MG)
C01706 Lab test result text

Result of the laboratory test

Core Laboratory Tests and Tracking Myasthenia Gravis Myasthenia Gravis (MG)
C01519 Vital signs date and time

Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time

Core Vital Signs Myasthenia Gravis Myasthenia Gravis (MG)
C16607 Myasthenia Gravis Composite (MGC) - neck flex extend weak score

Score for weakest neck flexion or extension, as part of the Myasthenia Gravis Composite (MGC)

Core Myasthenia Gravis Composite - MGC Myasthenia Gravis Myasthenia Gravis (MG)
C12781 Test assay result

Result of the confirmatory diagnostic test or assay performed

Core Confirmatory Diagnostic Tests - MG Myasthenia Gravis Myasthenia Gravis (MG)
Displaying 1 - 25 of 1113

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.