CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17982 Thymectomy procedure comment text

Additional text commenting the thymectomy procedure

Supplemental Thymectomy - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12811 Thymectomy date and time

Date and time (if applicable and known) thymectomy procedure was performed

Core Thymectomy - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12781 Test assay result

Result of the confirmatory diagnostic test or assay performed

Core Confirmatory Diagnostic Tests - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12778 Test assay perform indicator

Indicator of whether the confirmatory diagnostic test/assay was performed

Core Confirmatory Diagnostic Tests - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12779 Test assay perform date

Date the confirmatory diagnostic test or assay was performed

Core Confirmatory Diagnostic Tests - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12780 Test assay abnormality type

Whether the result of the confirmatory diagnostic test was normal or abnormal

Core Confirmatory Diagnostic Tests - MG Myasthenia Gravis Myasthenia Gravis (MG)
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

Supplemental Electrophysiology - MG Myasthenia Gravis Myasthenia Gravis (MG)
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

Supplemental Vital Signs Myasthenia Gravis Myasthenia Gravis (MG)
C18767 Temperature measurement other text

The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured

Supplemental Vital Signs Myasthenia Gravis Myasthenia Gravis (MG)
C01550 Temperature measurement anatomic site

Anatomic site on or within the body where the temperature was measured

Supplemental Vital Signs Myasthenia Gravis Myasthenia Gravis (MG)
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Electrophysiology - MG Myasthenia Gravis Myasthenia Gravis (MG)
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Vital Signs Myasthenia Gravis Myasthenia Gravis (MG)
C08006 Symptoms first appear date and time

Date (and time if applicable and known) the symptoms for the disease or disorder first appeared as confirmed by the participant's/subject's medical history obtained by a physician

Core Medical History of MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12245 Symptom presentation type

Symptoms participant/ subject shows at presentation

Supplemental Muscle Biopsy and Autopsy Tissue Myasthenia Gravis Myasthenia Gravis (MG)
C18802 Symptom first experienced other text

The free-text field related to 'Symptom first experienced text' specifying other text. First symptom of the disease/disorder experienced by the participant/subject

Core Medical History of MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C18865 Symptom first experienced distribution other text

The free-text field related to 'Symptom first experienced distribution category' specifying other text. System or region of the body that exhibited the first symptoms of the disease/disorder

Core Medical History of MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12642 Symptom first experienced distribution category

System or region of the body that exhibited the first symptoms of the disease/disorder

Core Medical History of MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical History Myasthenia Gravis Myasthenia Gravis (MG)
C21669 Surgical therapeutic procedure ICD-10-CM other text

The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure

Supplemental Surgical History Myasthenia Gravis Myasthenia Gravis (MG)
C12672 Surgical or therapeutic procedure ventilated indicator

Whether the participant/subject was ventilated during the surgical or therapeutic procedure

Supplemental Surgical History Myasthenia Gravis Myasthenia Gravis (MG)
C05105 Surgical or therapeutic procedure end date and time

Date on which the surgical or therapeutic procedure ended

Supplemental Surgical History Myasthenia Gravis Myasthenia Gravis (MG)
C08020 Surgery reason indication type

Reason participant/subject is in need of surgery

Supplemental Surgical History Myasthenia Gravis Myasthenia Gravis (MG)
C18759 Surgery reason indication other text

The free-text field related to 'Surgery reason indication type' specifying other text. Reason participant/subject is in need of surgery

Supplemental Surgical History Myasthenia Gravis Myasthenia Gravis (MG)
C12671 Surgery lifetime total count

Total number of surgeries the participant/subject has undergone in his/her lifetime

Supplemental Surgical History Myasthenia Gravis Myasthenia Gravis (MG)
C08018 Surgery age value

Age of the participant/subject at the time of the selected surgical procedure

Supplemental Surgical History Myasthenia Gravis Myasthenia Gravis (MG)
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.