CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 351 - 375 of 1067
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12651 Oosterhuis score

Oosterhuis score for Myasthenia Gravis

 Supplemental Medical History of MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12519 Myofiber degeneration severity status

Severity of the Myofiber degeneration muscle diagnostic abnormalities

 Supplemental Muscle Biopsy and Autopsy Tissue False Myasthenia Gravis Myasthenia Gravis (MG)
C12689 Myasthenia gravis treatment type

Type of treatment used for myasthenia gravis (MG)

 Core Prior and Current Treatments for MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C19535 Myasthenia gravis treatment other text

The free-text field related to Myasthenia gravis treatment type specifying other text

 Core Prior and Current Treatments for MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12653 Myasthenia Gravis Quality-of-Life Scale (MG-QOL15) - score

The participant/subject's 15-item Myasthenia Gravis Quality-of-Life Scale (MG-QOL15) score

 Supplemental MG Status - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12647 Myasthenia gravis muscle manual testing (MG-MMT) - score

Participant/subject's score on the Myasthenia gravis muscle manual testing (MG-MMT)

 Supplemental MG Status - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12647 Myasthenia gravis muscle manual testing (MG-MMT) - score

Participant/subject's score on the Myasthenia gravis muscle manual testing (MG-MMT)

 Supplemental Medical History of MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12643 Myasthenia Gravis Foundation of America (MGFA) classification type

The Myasthenia Gravis Foundation of America (MGFA) classification of the maximum severity of Myasthenia Gravis symptoms

 Core Medical History of MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12652 Myasthenia Gravis Foundation of America (MGFA) - post-intervention status

The Myasthenia Gravis Foundation of America (MGFA) post intervention status

 Core MG Status - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12648 Myasthenia gravis composite score

Participant/Subject's Myasthenia Gravis (MG) Composite score (0-50)

 Supplemental MG Status - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12648 Myasthenia gravis composite score

Participant/Subject's Myasthenia Gravis (MG) Composite score (0-50)

 Supplemental Medical History of MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12649 Myasthenia Gravis Activities of Daily Living (MG-ADL) - score

Participant/Subject's Myasthenia Gravis Activities of Daily Living (MG-ADL) score (0-24)

 Supplemental MG Status - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12649 Myasthenia Gravis Activities of Daily Living (MG-ADL) - score

Participant/Subject's Myasthenia Gravis Activities of Daily Living (MG-ADL) score (0-24)

 Supplemental Medical History of MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C13230 Modified Rankin Scale (mRS) Score

The overall modified Rankin Scale (mRS) score assigned to the participant/ subject

 Exploratory Modified Rankin Scale (mRS) True Myasthenia Gravis Myasthenia Gravis (MG)
C18616 Mitochondria abnormality location text

Text description of the location abnormality of observed in the mitochondria

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Myasthenia Gravis Myasthenia Gravis (MG)
C12243 Microscopy epon embedded tissue abnormality type

Type of microscopy employed to view abnormalities in epon-embedded tissue specimen

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Myasthenia Gravis Myasthenia Gravis (MG)
C12243 Microscopy epon embedded tissue abnormality type

Type of microscopy employed to view abnormalities in epon-embedded tissue specimen

 Supplemental Muscle Biopsy and Autopsy Tissue False Myasthenia Gravis Myasthenia Gravis (MG)
C12641 Medication side effect or complication indicator

Whether the participant/subject reports side effects or complications due to the medication

 Core Prior and Current Treatments for MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C02016 Medication prior or concomitant start date and time

The date (and time, if applicable and known) on which the prior/concomitant medication usage began

 Core Prior and Current Treatments for MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C02025 Medication prior or concomitant RXNorm code

Code for name of the prior/concomitant agent or drug administered

 Supplemental Prior and Current Treatments for MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12691 Medication prior or concomitant response text

Description of the response to the medication

 Core Prior and Current Treatments for MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C02003 Medication prior or concomitant ongoing indicator

Indicator of or description that the prior/concomitant medication usage is ongoing

 Supplemental Prior and Current Treatments for MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C02014 Medication prior or concomitant name

Name of the prior/concomitant agent or drug administered

 Supplemental Prior and Current Treatments for MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended

 Supplemental Prior and Current Treatments for MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C02013 Medication prior or concomitant dose unit of measure UCUM code

Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)

 Supplemental Prior and Current Treatments for MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
Displaying 351 - 375 of 1067

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.