CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 1067
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12917 Cardiovascular Holter predominant heart rhythm type

Heart rhythm the participant/subject exhibited the majority of the time during the Holter examination

 Supplemental Holter Examination False Myasthenia Gravis Myasthenia Gravis (MG)
C17963 Cardiovascular mitral stenosis regurgitation comment text

The text detailing the comments of the degree of stenosis and regurgitation for the mitral valve

 Supplemental Echocardiogram False Myasthenia Gravis Myasthenia Gravis (MG)
C17962 Cardiovascular tricuspid stenosis regurgitation comment text

The text detailing the comments of the degree of stenosis and regurgitation for the tricuspid valve

 Supplemental Echocardiogram False Myasthenia Gravis Myasthenia Gravis (MG)
C17956 Cardiovascular ventricular dysrhythmia episode duration

Duration, in seconds, of the ventricular dysrhythmia episode

 Supplemental Holter Examination False Myasthenia Gravis Myasthenia Gravis (MG)
C17955 Cardiovascular ventricular dysrhythmia episode total number

Total number of episodes of a specific ventricular dysrhythmia event recorded during the Holter examination

 Supplemental Holter Examination False Myasthenia Gravis Myasthenia Gravis (MG)
C18872 Confirmatory diagnostic test assay other text

The free-text field related to 'Confirmatory diagnostic test assay type' specifying other text. Name of the confirmatory diagnostic test/assay used

 Core Confirmatory Diagnostic Tests - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12777 Confirmatory diagnostic test assay type

Name of the confirmatory diagnostic test/assay used

 Core Confirmatory Diagnostic Tests - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Core MG Status - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C21665 Death cause ICD-10-CM code

ICD-10-CM code that describes the cause of participant/subject's death

 Supplemental Death Report False Myasthenia Gravis Myasthenia Gravis (MG)
C04800 Death cause text

Text describing the primary reason or cause of the participant/subject's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate

 Supplemental Death Report False Myasthenia Gravis Myasthenia Gravis (MG)
C04802 Death date and time

Date (and time, if known) of participant's/subject's death

 Supplemental Death Report False Myasthenia Gravis Myasthenia Gravis (MG)
C18862 Death location other text

The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died

 Supplemental Death Report False Myasthenia Gravis Myasthenia Gravis (MG)
C12610 Death location type

Type of location where the participant/subject died

 Supplemental Death Report False Myasthenia Gravis Myasthenia Gravis (MG)
C06358 Diabetes mellitus type

Type of diabetes mellitus

 Supplemental Family History - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

 Core Medical History of MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C18876 Diagnosis thymoma other text

The free-text field related to 'Diagnosis thymoma type' specifying other text. Type of thymoma observed

 Core Chest Imaging - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12810 Diagnosis thymoma type

Type of thymoma observed

 Core Chest Imaging - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12176 Dual energy X-ray absorptiometry participant age value

Age of the participant/subject when the Dual X-ray absorptiometry (DEXA) was done

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Myasthenia Gravis Myasthenia Gravis (MG)
C12193 Dual X-ray absorptiometry appendicular lean soft tissue value

The amount of appendicular lean soft tissue (ALST) mass for dual X-ray absorptiometry (DEXA)

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Myasthenia Gravis Myasthenia Gravis (MG)
C12172 Dual X-ray absorptiometry beam technique type

The type of beam technique used for Dual X-ray absorptiometry (DEXA)

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Myasthenia Gravis Myasthenia Gravis (MG)
C17921 Dual X-ray absorptiometry current corticosteroid use indicator

Whether or not the participant is currently taking any corticosteroids for Dual X-ray absorptiometry (DEXA)

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Myasthenia Gravis Myasthenia Gravis (MG)
C12186 Dual X-ray absorptiometry distal femur raw score

Dual X-ray absorptiometry (DEXA) distal femur raw score result value

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Myasthenia Gravis Myasthenia Gravis (MG)
C12187 Dual X-ray absorptiometry distal femur T score

Dual X-ray absorptiometry (DEXA) distal femur T score result value

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Myasthenia Gravis Myasthenia Gravis (MG)
C12188 Dual X-ray absorptiometry distal femur Z score

Dual X-ray absorptiometry (DEXA) distal femur Z score result value

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Myasthenia Gravis Myasthenia Gravis (MG)
C12515 Dual X-ray absorptiometry distal forearm Z score

The Z score the for dual X-ray absorptiometry (DEXA) of the distal forearm

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Myasthenia Gravis Myasthenia Gravis (MG)
Displaying 126 - 150 of 1067

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.