CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1001 - 1025 of 1067

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1085-C18865	C18865	Symptom first experienced distribution other text	The free-text field related to 'Symptom first experienced distribution category' specifying other text. System or region of the body that exhibited the first symptoms of the disease/disorder	Core	Medical History of MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1085-C18802	C18802	Symptom first experienced other text	The free-text field related to 'Symptom first experienced text' specifying other text. First symptom of the disease/disorder experienced by the participant/subject	Core	Medical History of MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12245	C12245	Symptom presentation type	Symptoms participant/ subject shows at presentation	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1085-C08006	C08006	Symptoms first appear date and time	Date (and time if applicable and known) the symptoms for the disease or disorder first appeared as confirmed by the participant's/subject's medical history obtained by a physician	Core	Medical History of MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1059-C59694	C59694	Tachycardia episode unit of measure	Unit of measure for the episode of tachycardia	Supplemental	Holter Examination	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1083-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1994-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Vital Signs	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1994-C01550	C01550	Temperature measurement anatomic site	Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1994-C18767	C18767	Temperature measurement other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1994-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental	Vital Signs	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1083-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1080-C12780	C12780	Test assay abnormality type	Whether the result of the confirmatory diagnostic test was normal or abnormal	Core	Confirmatory Diagnostic Tests - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1080-C12779	C12779	Test assay perform date	Date the confirmatory diagnostic test or assay was performed	Core	Confirmatory Diagnostic Tests - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1080-C12778	C12778	Test assay perform indicator	Indicator of whether the confirmatory diagnostic test/assay was performed	Core	Confirmatory Diagnostic Tests - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1080-C12781	C12781	Test assay result	Result of the confirmatory diagnostic test or assay performed	Core	Confirmatory Diagnostic Tests - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1088-C12811	C12811	Thymectomy date and time	Date and time (if applicable and known) thymectomy procedure was performed	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1088-C17982	C17982	Thymectomy procedure comment text	Additional text commenting the thymectomy procedure	Supplemental	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1088-C12812	C12812	Thymectomy technique type	Type of technique used for the thymectomy procedure	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1088-C12813	C12813	Thymectomy transcervical type	The type of transcervical thymectomy performed	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1088-C12815	C12815	Thymectomy transsternal type	The type of transsternal thymectomy performed	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1088-C12814	C12814	Thymectomy videoscopic type	The type of videoscopic thymectomy performed	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1088-C12817	C12817	Thymoma histology grade	The World Health Organization (WHO) grade for thymoma histology	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1088-C12816	C12816	Thymus non-thymoma histology grade	Results from the non-thymoma thymus histology	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1084-C19521	C19521	Thyroid condition type	Type of thyroid condition	Supplemental	Family History - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1983-C12283	C12283	Tissue abnormality mitochondria type	Type of any mitochondrial abnormality observed in the epon-embedded tissue specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Myasthenia Gravis	Myasthenia Gravis (MG)

Displaying 1001 - 1025 of 1067

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.