CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C12719	Electrophysiology repetitive nerve stimulation study preactivation amplitude measurement	Measurement, in mV, of the amplitude of the preactivation being described for the repetitive nerve study being recorded	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12720	Electrophysiology repetitive nerve stimulation study preactivation area measurement	Measurement, in mVms, of the area of the preactivation being described for the repetitive nerve study being recorded	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12718	Electrophysiology repetitive nerve stimulation study preactivation number	The numeric identifier corresponding to the amplitude and area values recorded for preactivation during the repetitive nerve stimulation study	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12715	Electrophysiology repetitive nerve stimulation study stimulation rate value	Value, in Hz, of the stimulation rate used in the repetitive nerve study being recorded	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12716	Electrophysiology repetitive nerve stimulation study stimulus duration	Duration, in ?s, of stimulation in the repetitive nerve study being recorded	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12717	Electrophysiology repetitive nerve stimulation study stimulus intensity value	Value, in mV, of stimulation intensity in the repetitive nerve study being recorded	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C10777	Electrophysiology study type	Type of electrophysiology study conducted	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17901	Elevated creatine kinase Indicator	Indicator of whether participant/subject experienced elevated creatine kinase levels	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17902	Elevated creatine kinase value	The elevated creatine kinase value	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12518	Endomysial fibrosis severity status	Severity of the Endomysial fibrosis muscle diagnostic abnormalities	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17973	Ethnic race relation indicator	Indicator of the participant/subject's relation to the person about whom the following questions on ethnic and racial identity apply	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00022	Ethnicity USA maternal category	Ethnicity the participant/subject's mother most closely identifies with	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00021	Ethnicity USA paternal category	Ethnicity the participant/subject's father most closely identifies with	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12664	Family history condition text	The specific condition or type of condition the participant/subject or participant's/subject's family member has, if applicable	Supplemental	Family History - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant/subject has had a history of the particular medical condition or health related event	Core	Family History - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18678	Family history medical condition other text	The free-text field related to 'Family history medical condition type' specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject	Core	Family History - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type' specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Family History - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12663	Family history member with medical condition count	Count of family members with history of medical condition	Supplemental	Family History - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18866	Family history muscle disease other text	The free-text field related to 'Family history muscle disease type' specifying other text. Type of muscle disease for which participant/subject has family history	Supplemental	Family History - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12666	Family history muscle disease type	Type of muscle disease for which participant/subject has family history	Supplemental	Family History - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12517	Fatty replacement severity status	Severity of the Fatty replacement muscle diagnostic abnormalities	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.