CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1049-C12265	C12265	Biopsy and autopsy diagnostic abnormalities severity grade	Severity of the diagnostic muscle abnormalities	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12256	C12256	Biopsy and autopsy eccentric nuclei estimated fibers percent value	Estimated percent of fibers in eccentric nuclei	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12238	C12238	Biopsy and autopsy epon embedded tissue abnormalities location type	Type of abnormality observed microscopically in epon-embedded tissue specimen	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1983-C12238	C12238	Biopsy and autopsy epon embedded tissue abnormalities location type	Type of abnormality observed microscopically in epon-embedded tissue specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12266	C12266	Biopsy and autopsy excessive intracellular lipid severity grade	Severe lipid storage pathology involves excess Oil Red O+ material that is easily identifiable on light microscopy and is evident on other stains including H and E. Mild lipid storage pathology is difficult to determine at the light microscopic level and may only be evident on Oil Red O stain or on electron microscopy	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12525	C12525	Biopsy and autopsy fiber abnormality type	Fiber type abnormalities on a muscle biopsy	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12252	C12252	Biopsy and autopsy fiber size variation result type	Distribution of the atrophic fibers	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12249	C12249	Biopsy and Autopsy histochemical stains diagnostic abnormalities present type	The diagnostic abnormalities present on the histochenmical stains for the participant's/subject's tissue	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12269	C12269	Biopsy and autopsy immunohistochemical immunofluorescence assays performed	List of stains used	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12259	C12259	Biopsy and autopsy inflammation type	Perivascular inflammation is focused around blood vessels, whereas diffuse inflammation also spreads across the muscle tissue. Inflammatory cells identified include lymphocytes, neutrophils, macrophages, and eosinophils. At times, microorganisms can be identified and should be mentioned	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12261	C12261	Biopsy and autopsy inflammatory cell type	Type of inflammatory cells identified	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12267	C12267	Biopsy and autopsy liver biopsy autopsy results	The results of the liver biopsy	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12262	C12262	Biopsy and autopsy microorganisms name	Name of microorganisms identified in biopsy or autopsy specimen	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12276	C12276	Biopsy and autopsy mitochondria abnormality type	Type of mitochondria abnormality in muscle biopsy	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12254	C12254	Biopsy and autopsy myopathy-associated pathological structures type	The type of myopathy-associated pathological structures seen in the histology of the biopsy or autopsy specimen	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12257	C12257	Biopsy and autopsy nemaline rod type	Rod-shaped structures, visible at high magnification, which are most visible on Gomori trichrome stain and on EM preparations	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12528	C12528	Biopsy and autopsy nemaline rods restricted to one fiber text	Nemaline rods restricted to one fiber text	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12273	C12273	Biopsy and autopsy normal immunoreactivity assay name	Name of the normal immunoreactivity assay used	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C17904	C17904	Biopsy and autopsy pathological inclusions text	Text describing pathological inclusions (if any)	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12260	C12260	Biopsy and autopsy perivascular inflammation type	Evidence of vascular damage includes damaged vessels in association with perivascular inflammation and the presence of fibrin thrombi located within vascular spaces	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12529	C12529	Biopsy and autopsy ragged red fibers estimated count	Ragged red fibers estimated number	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12274	C12274	Biopsy and autopsy reduced immunoreactivity assay name	Reduced immunoreactivity that were noted on the immunohistochemical stains	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12247	C12247	Biopsy and Autopsy tissue collection method type	The type of method used for collection of the tissue specimen	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F2000-C12247	C12247	Biopsy and Autopsy tissue collection method type	The type of method used for collection of the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12526	C12526	Biopsy and autopsy type 1 predominance fiber percentage value	Percentage of Type 1 predominance fiber present	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.