CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1049-C17902	C17902	Elevated creatine kinase value	The elevated creatine kinase value	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C17901	C17901	Elevated creatine kinase Indicator	Indicator of whether participant/subject experienced elevated creatine kinase levels	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C17900	C17900	Age presentation year value	Age (in years) of participant/subject at presentation	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C17899	C17899	Preservation technique not used indicator	Indicates preservation technique used is not known	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C17898	C17898	Laboratory director unknown indicator	Indicator of unknown laboratory director	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1993-C17897	C17897	Histological finding other comment text	Text describing the participant's comments about the histological findings	Supplemental	Fat Aspirate Tissue Specimens	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1995-C17896	C17896	Variant mutational analysis not performed reason	Reason for why the mutational analysis was not performed	Supplemental	Mutation Analysis	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1995-C17895	C17895	Genes sequenced with no mutations text	The free-text field about additional genes sequenced with no mutations detected	Supplemental	Mutation Analysis	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1995-C17894	C17894	Gene missense nonsense variant point mutation location intron text	The free-text field about missense/nonsense variant or point mutation at the intron	Supplemental	Mutation Analysis	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1995-C17893	C17893	Gene missense nonsense variant point mutation location other text	The free-text field about missense/nonsense variant or point mutation at locations other than the exon and intron	Supplemental	Mutation Analysis	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1995-C17891	C17891	Gene additional variants unknown significance text	The free-text field about additional variants in other genes of unknown significance	Supplemental	Mutation Analysis	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1995-C17890	C17890	Allele number one missense nonsense variant or point mutation subclass information type	Type of missense/nonsense variant or point mutation subclass information, first allele number one	Supplemental	Mutation Analysis	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1995-C17889	C17889	Gene missense nonsense variant point mutation location exon text	The free-text field about missense/nonsense variant or point mutation at the exon	Supplemental	Mutation Analysis	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1039-C17887	C17887	Gastrointestinal therapy continuous feed end time value	The value for the time of day that the participant/subject's continuous feeding is normally ended	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1039-C17885	C17885	Gastrointestinal therapy other feed tube text	Text identification of unlisted tube type through which the participant/subject receives therapeutic tube feedings	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1039-C17884	C17884	Gastrointestinal therapy continuous feed start time value	The value for the time of day that the participant/subject's continuous feeding is normally begun	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1039-C17883	C17883	Gastrointestinal therapy water flush status	The status of whether water was used to flush the participant/subject's feeding tube, if applicable	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C17881	C17881	Respiratory support ventilation mode negative pressure text	Text specifying the negative pressure support ventilation used by the support ventilation device	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C17880	C17880	Respiratory support ventilation device other model name	Name of other support ventilation device used by the participant/subject	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1036-C17879	C17879	Polysomnography start time clock type	Type of clock used to record the time at which the sleep study began	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1036-C17878	C17878	Polysomnography limited type text	Text description of the polysomnography being reported if it is not a full polysomnography	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1036-C17877	C17877	Polysomnography end time clock type	Type of clock used to record the time at which the sleep study ended	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1979-C17876	C17876	Pulmonary function test not done text	If the PFT was not performed on the participant/subject, specify other reason	Supplemental	Pulmonary Function Testing	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1979-C17875	C17875	Pulmonary function test text	Other type of pulmonary function testing performed	Supplemental	Pulmonary Function Testing	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1979-C17874	C17874	Pulmonary function test not done indicator	Was the pulmonary function test not done	Supplemental	Pulmonary Function Testing	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.