CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1088-C17982	C17982	Thymectomy procedure comment text	Additional text commenting the thymectomy procedure	Supplemental	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1087-C17981	C17981	Other measure severity text	The text describing the specifics of the other measures of severity to test MG	Supplemental	MG Status - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1083-C17976	C17976	Electrophysiology neuromuscular jitter study date	Date of neuromuscular jitter studies done	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1082-C17973	C17973	Ethnic race relation indicator	Indicator of the participant/subject's relation to the person about whom the following questions on ethnic and racial identity apply	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1081-C17972	C17972	Medication prior concomitant dose frequency Clinical Data Interchange Standards Consortium Standard Data Tabulation Model code	Code that represents the frequency of the dosage of the prior or concomitant medication administered. Clinical Data Interchange Standards Consortium Standard Data Tabulation Model (CDISC SDTM)	Supplemental	Prior and Current Treatments for MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1991-C17967	C17967	ECG administer date time clock type	Type of clock system used to record time of electrocardiogram (ECG/EKG) administration	Supplemental	Electrocardiogram (ECG)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1991-C17966	C17966	ECG result text	Text description of any electrocardiogram (ECG) result selected other than Normal	Supplemental	Electrocardiogram (ECG)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1060-C17965	C17965	Echocardiogram abnormal result comment text	Free text about echocardiogram results that are not normal	Supplemental	Echocardiogram	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1060-C17964	C17964	Cardiovascular pulmonic valve stenosis regurgitation comment text	The free-text field detailing the comments of the degree of stenosis and regurgitation for the pulmonic valve	Supplemental	Echocardiogram	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1060-C17963	C17963	Cardiovascular mitral valve stenosis regurgitation comment text	The free-text field detailing the comments of the degree of stenosis and regurgitation for the mitral valve	Supplemental	Echocardiogram	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1060-C17962	C17962	Cardiovascular tricuspid valve stenosis regurgitation comment text	The free-text field detailing the comments of the degree of stenosis and regurgitation for the tricuspid valve	Supplemental	Echocardiogram	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1060-C17961	C17961	Cardiovascular aortic valve stenosis regurgitation comment text	The free-text field detailing the comments of the degree of stenosis and regurgitation for the aortic valve	Supplemental	Echocardiogram	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1059-C17960	C17960	Cardiovascular Holter exam tachycardia episode total count	Count of the total number of tachycardia episodes during the Holter examination	Supplemental	Holter Examination	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1059-C17959	C17959	Cardiovascular Holter exam longest run tachycardia episode value	Value of the longest run of a tachycardia episode during the Holter examination	Supplemental	Holter Examination	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1059-C17958	C17958	Cardiovascular Holter exam fastest run tachycardia episode value	Value of the heart rate during the fastest run of a tachycardia episode	Supplemental	Holter Examination	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1059-C17957	C17957	Cardiovascular Holter exam premature ventricular contraction count	Count of premature ventricular contractions per 24 hours	Supplemental	Holter Examination	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1059-C17956	C17956	Cardiovascular ventricular dysrhythmia episode duration	Duration, in seconds, of a specific ventricular dysrhythmia episode recorded during the Holter examination	Supplemental	Holter Examination	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1059-C17955	C17955	Cardiovascular ventricular dysrhythmia episode total count	Count of the total number of episodes of a specific ventricular dysrhythmia event recorded during the Holter examination	Supplemental	Holter Examination	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1059-C17954	C17954	Cardiovascular Holter exam atrial dysrhythmia episode duration	Duration, in seconds, of the atrial dysrhythmia episode	Supplemental	Holter Examination	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1058-C17953	C17953	Imaging other nuclei text	Text identification of unlisted nuclei in the image being reported	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1058-C17952	C17952	Spectroscopy sequence parameter echo time duration	Duration, in ms, of the echo time (TE) as a spectroscopic sequence parameter in the scan being reported	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1058-C17951	C17951	Spectroscopy sequence other type text	Text specification of unlisted spectroscopy sequences used in the scan being reported	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1058-C17950	C17950	Spectroscopy water signal suppression bandwidth indicator	Indicator related to bandwidth of water suppression of the spectroscopy scan being reported	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1058-C17949	C17949	Spectroscopy water reference data acquire averages count	Count of averages of water reference data, if any, acquired	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1058-C17948	C17948	Scanner magnetic field other strength value	Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported, if unlisted	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.