CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1995-C18875	C18875	Gene targeted variant mutational analysis other text	The free-text field related to 'Gene targeted variant or mutational analysis type', specifying other text. Type of targeted variant or mutational analysis performed for the gene	Supplemental	Mutation Analysis	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1995-C18874	C18874	Gene variant mutation category other text	The free-text field related to 'Gene variant or mutation category', specifying other text. Category of the variant or mutation detected on the gene	Supplemental	Mutation Analysis	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1995-C18873	C18873	Gene mutation detected digenic result specify	The free-text field related to 'Gene mutation detected result type'. Type of gene mutation detected	Supplemental	Mutation Analysis	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1080-C18872	C18872	Confirmatory diagnostic test assay other text	The free-text field related to 'Confirmatory diagnostic test assay type' specifying other text. Name of the confirmatory diagnostic test/assay used	Core	Confirmatory Diagnostic Tests - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1084-C18866	C18866	Family history muscle disease other text	The free-text field related to 'Family history muscle disease type' specifying other text. Type of muscle disease for which participant/subject has family history	Supplemental	Family History - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1085-C18865	C18865	Symptom first experienced distribution other text	The free-text field related to 'Symptom first experienced distribution category' specifying other text. System or region of the body that exhibited the first symptoms of the disease/disorder	Core	Medical History of MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1082-C18863	C18863	Birth location state other text	The free-text field related to 'Birth location state name' specifying other text. Name of the state/province/similar political division in which participant/subject was born	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1089-C18862	C18862	Death location other text	The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died	Supplemental	Death Report	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C18860	C18860	Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity anatomic site other text	The free-text field related to 'Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity anatomic site', specifying other text. Anatomic site of the grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C18859	C18859	Imaging cerebellum abnormality other text	The free-text field related to 'Imaging cerebellum abnormality type' specifying other text. The type of abnormality in the cerebellum on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C18858	C18858	Imaging pons abnormality other text	The free-text field related to 'Imaging pons abnormality type' specifying other text. The type of abnormality in the pons on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C18857	C18857	Imaging brainstem abnormality other text	The free-text field related to 'Imaging brainstem abnormality type' specifying other text. The type of abnormality in the brainstem on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C18856	C18856	Imaging ventricle abnormality other text	The free-text field related to 'Imaging ventricle abnormality type' specifying other text. The type of abnormality in the ventricles on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C18855	C18855	Imaging other cortical abnormality other text	The free-text field related to 'Imaging other cortical abnormality type' specifying other text. The type of other cortical abnormality	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C18854	C18854	Imaging other incidental finding other text	The free-text field related to 'Imaging other incidental finding type' specifying other text. The type of other incidental findings found within the image studies	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1038-C18853	C18853	Pulmonary gas exchange assessment performed other text	The free-text field related to 'Pulmonary gas exchange assessment performed location' specifying other text. The location where the gas exchange assessment was performed	Supplemental	Measures of Gas Exchange	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1038-C18852	C18852	Respiratory oxygen administration method other text	The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used	Supplemental	Measures of Gas Exchange	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C18852	C18852	Respiratory oxygen administration method other text	The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C18851	C18851	Respiratory support ventilation mode other text	The free-text field related to 'Respiratory support ventilation mode type' specifying other text. Type of mode of ventilation for the support ventilation device used	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C18850	C18850	Respiratory tracheostomy tube timing other text	The free-text field related to 'Respiratory tracheostomy tube timing type' specifying other text. Type of inflation/deflation timing settings for cuffed tubes	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C18849	C18849	Respiratory support negative pressure device delivery method other text	The free-text field related to 'Respiratory support negative pressure device delivery method type' specifying other text. Type of non-invasive, negative pressure delivery method supported by the device	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C18848	C18848	Respiratory support positive pressure device delivery method other text	The free-text field related to 'Respiratory support positive pressure device delivery method type' specifying other text. Type of non-invasive, positive pressure delivery method supported by the device	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C18847	C18847	Respiratory support device other text	the free-text field related to 'Respiratory support device type' specifying other text. Type of respiratory support or assisted ventilation device used	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C18846	C18846	Respiratory other airway clearance method use other text	The free-text field related to 'Respiratory other airway clearance method use frequency' specifying other text. Frequency of use of other airway clearance methods	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C18845	C18845	Respiratory intrapulmonary percussive ventilation cup liquid other text	The free-text field related to 'Respiratory intrapulmonary percussive ventilation cup liquid type' specifying other text. Type of liquid in the intrapulmonary percussive ventilation cup	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.