CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2696-C17402	C17402	Site name	The name of the site for the study	Supplemental	Fatigue/Activity Record and Diary	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2696-C19247	C19247	Subject ID	Subject identification ID	Supplemental	Fatigue/Activity Record and Diary	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2696-C52339	C52339	Subject initial text	The free-text field related to the initials of the subject	Supplemental	Fatigue/Activity Record and Diary	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2696-C57037	C57037	Fatigue diary entry start date and time	Start date and time for the fatigue diary entry	Supplemental	Fatigue/Activity Record and Diary	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2696-C57038	C57038	Fatigue diary entry end date and time	End date and time for the fatigue diary entry	Supplemental	Fatigue/Activity Record and Diary	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2696-C57039	C57039	Fatigue diary day indicator	Indication of Day (also broken down further into hours) within the Fatigue Diary	Supplemental	Fatigue/Activity Record and Diary	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2696-C57040	C57040	Fatigue diary activity type	Type of activity entered in the Fatigue Diary	Supplemental	Fatigue/Activity Record and Diary	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2696-C57041	C57041	Fatigue diary fatigue level value	Value of the level of fatigue an individual has entered within the Fatigue Diary	Supplemental	Fatigue/Activity Record and Diary	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2697-C14517	C14517	Device manufacturer name	The company responsible for development of the device	Exploratory	PEM-Focused Studies Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2697-C17402	C17402	Site name	The name of the site for the study	Supplemental	PEM-Focused Studies Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2697-C19247	C19247	Subject ID	Subject identification ID	Supplemental	PEM-Focused Studies Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2697-C57042	C57042	Post exertional malaise external stimulus induce type	Type of exertional stimulus that was used to induce PEM	Supplemental-Highly Recommended	PEM-Focused Studies Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2697-C57043	C57043	Post-exertional malaise determine stimulus research participant type	Indicator of whether the stimulus was researcher-applied/determined or study-participant-determined	Supplemental-Highly Recommended	PEM-Focused Studies Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2697-C57044	C57044	Post-exertional malaise researcher determine stimulus type description text	Free text field related to thedescription of the research applied determined stimulus type	Supplemental-Highly Recommended	PEM-Focused Studies Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2697-C57045	C57045	Post-exertional malaise researcher determine stimulus protocol description text	Free text field related to the description of the research applied determined stimulus protocol	Supplemental-Highly Recommended	PEM-Focused Studies Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2697-C57046	C57046	Post-exertional malaise study participant determine stimulus measurement type	Type or description of how the study participant determined stimulus was measured	Supplemental-Highly Recommended	PEM-Focused Studies Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2697-C57047	C57047	Post-exertional malaise termination stimulus indicator	Indicator of who determined when the stimulus would be determined	Supplemental-Highly Recommended	PEM-Focused Studies Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2697-C57048	C57048	Post-exertional malaise study participant determine termination criteria type	Type of termination criteria that was determined based on the participant	Supplemental-Highly Recommended	PEM-Focused Studies Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2697-C57049	C57049	Post-exertional malaise researcher determine termination type	Type of researcher determined termination	Supplemental-Highly Recommended	PEM-Focused Studies Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2697-C57050	C57050	Post-exertional malaise maximum heart rate percentage value	Value of maximum heart rate percentage value	Supplemental-Highly Recommended	PEM-Focused Studies Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2697-C57051	C57051	Post-exertional malaise duration frequency related text	Text field related to the duration/frequency related termination	Supplemental-Highly Recommended	PEM-Focused Studies Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2697-C57052	C57052	Post-exertional malaise stimulus relate text	Text field related to stimulus-related termination	Supplemental-Highly Recommended	PEM-Focused Studies Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2697-C57053	C57053	Post-exertional malaise symptom examine indicator	Indication of PEM symptoms being examined in this study	Supplemental-Highly Recommended	PEM-Focused Studies Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2697-C57054	C57054	Post-exertional malaise additional symptom text	Text field related to additional symptoms shownin PEM study	Supplemental-Highly Recommended	PEM-Focused Studies Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2697-C57055	C57055	Post-exertional malaise outcome measure time indicator	Indication of timing of outcome measures in PEM study	Supplemental-Highly Recommended	PEM-Focused Studies Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.