CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 126 - 150 of 2638
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56351 NIH Toolbox Cognitive – Oral reading recognition english age 7 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58210 Laboratory test Epstein Barr Virus sample type

Element related to the sample type used to test for Epstein-Barr Virus (EBV)

Supplemental Laboratory Tests - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57191 Prolactin test result value

Value describing the results from the Prolactin test

Supplemental Neuroendocrine Labs Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57097 DePaul Symptom Questionnaire (DSQ) - Minimum exercise make physical tired frequency scale

Frequency of how often an individual feels as if minimum exercise makes him/her physically tired, as part of the DePaul Symptom Questionnaire (DSQ)

Core Core PEM Assessment Questionnaire Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58124 Other condition other important condition type text

Text of other conditions other important conditions type that the subject's/participant's family relative has ever been diagnosed with

Supplemental-Highly Recommended Family Health History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58549 Imaging acquisition plane type

The type of anatomical plane used in acquisition of the imaging scan

Supplemental-Highly Recommended Positron Emission Tomography (PET) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57893 Cerebellar summary assessment status

The status of summary cerebellar assessment in neurological examination

Supplemental-Highly Recommended Physical Examination Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56301 NIH Toolbox Cognitive – Picture vocabulary age 3 up raw score

The raw score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57101 MECFS prior history sleep problem indicator

Indicator of whether the subject had a history of sleep problems prior to MECFS

Supplemental-Highly Recommended Sleep Focused Study Questionnaire Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57358 ROME I criteria type

The type of ROME I criteria for Irritable Bowel Syndrome that has continuously or recurrently occurred for at least 3 months

Supplemental-Highly Recommended Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57040 Fatigue diary activity type

Type of activity entered in the Fatigue Diary

Supplemental Fatigue/Activity Record and Diary Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56712 Imaging magnetoencephalography spectral pattern type

The type of spectral pattern used for the analysis of the magnetoencephalography (MEG) data

Supplemental-Highly Recommended Magnetoencephalography (MEG) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53783 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 16 score

The score for Word Reading item 16, as part of Wide Range Achievement Test 4 (WRAT-4)

Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57909 Muscle involuntary movement assessment status

The status of involuntary movements muscles assessment in neurological examination

Exploratory Neurological Exam Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56271 Anaerobic threshold maximum oxygen uptake diastolic pressure percentage value

The subject's anaerobic threshold as a percentage of his/her maximum oxygen uptake with respect to diastolic blood pressure

Supplemental Cardiopulmonary Exercise Testing (CPET) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57225 Increased thirst 6 month status

The status of the severity of the subject's increased thirst in the past 6 months

Supplemental Neuroendocrine/Hypothalamic Symptoms Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58307 Pesticide use pet indicator

Indicator of whether pesticides are used on the subject/participant's pets (as sprays, collars, powders, etc.)

Exploratory Exposure History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52671 Woodcock Johnson III (WJ-III) - Testing session results unfair estimate reason

Any reason that results of test session may not be a fair estimate of the subject's abilities as referred to in WJ3TestSessionFair SampRsnInd as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58288 Other cardiovascular condition text

Specifies other cardiovascular conditions not listed in the table

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54526 Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) - Outpatient treatment first age value

Value of the subject/participant's age at his or her first outpatient treatment, as part of the Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL)

Exploratory Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58051 Extremities pulses tibial dorsalis pedis artery left assessment value

The value of left tibial artery or dorsalis pedis artery pulse extremity assessment in physical examination

Supplemental-Highly Recommended Physical Examination Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58254 Industrial plant live within 300 meter type

Type of industrial plant that the subject/participant within 300 meters of which the subject/participant lives now or has lived

Exploratory Exposure History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57961 Imaging rest state functional sequence type

The type of sequence used in resting state functional imaging

Supplemental-Highly Recommended Functional Magnetic Resonance Imaging (fMRI) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53870 Wide Range Achievement Test 4 (WRAT-4) - Letter 8 score

Score for Letter Recognition item 8, as a part of the Wide Range Achievement Test 4 (WRAT-4)

Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56632 Imaging magnetoencephalography acquisition mode other text

Text describing another mode of acquisition of MEG data

Supplemental-Highly Recommended Magnetoencephalography (MEG) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 126 - 150 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.