CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 2638
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58521 Tender point pair knee type

The type of knee paired tender point in pain assessment

 Supplemental Pain Assessment False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53674 Kiddie Schedule for Affective Disorders Present and Lifetime (KSADS-PL) - child age value

The age of the participant/subject, as part of the Kiddie Schedule for Affective Disorders Present and Lifetime version (KSADS-PL)

 Exploratory Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57908 Muscle rise chair tiptoe assessment status

The status of rise from chair to tiptoes muscles assessment in neurological examination

 Supplemental-Highly Recommended Physical Examination False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C20432 Beck Depression Inventory II (BDI-II) - Interest loss scale

Scale identifying level of loss of interest, as part of the Beck Depression Inventory II (BDI-II)

 Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56726 Imaging magnetoencephalography abnormal activity activation count

The number of abnormal activities/activations found in the magnetoencephalography (MEG) recording

 Supplemental-Highly Recommended Magnetoencephalography (MEG) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53751 Wide Range Achievement Test 4 (WRAT-4) - Letter 15 text

The letter used for Letter Recognition item 15, as part of Wide Range Achievement Test 4 (WRAT-4)

 Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58096 Gastrointestinal stomach problems type text

Text of type of gastrointestinal stomach problems that the subject's/participant's family relative has ever been diagnosed with

 Supplemental-Highly Recommended Family Health History False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57984 Laboratory procedure thyroid-stimulating hormone value

Value of thyroid stimulating hormone

 Supplemental Laboratory Test Results False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57268 Medical history immune symptom onset text

Text describing symptoms at onset the participant/subject experienced for immune conditions as part of medical history

 Exploratory Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56684 Imaging magnetoencephalography power line filter width measurement

The measurement of the width of the power-line filter used for magnetoencephalography (MEG)

 Supplemental-Highly Recommended Magnetoencephalography (MEG) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57883 Cerebellar rapid alternate movement assessment status

The status of rapid alternating movements (forefinger to thumb) cerebellar assessment in neurological examination

 Supplemental Neurological Exam False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57200 Cold limb indicator

The indicator relating to whether the subject has cold limbs (arms/legs/hands/feet)

 Supplemental Neuroendocrine/Hypothalamic Symptoms False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57493 Day per week for activity count

Count of days per week an activity was completed

 Exploratory Physical Functioning and Activities of Daily Living False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57944 Lymph node exam axillary status

The status of the axillary nodes during a lymph node exam

 Supplemental-Highly Recommended Physical Exam - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C20557 Quality of Life in Neurological Disorders (Neuro-Qol) - Usual activity assistance need fatigue assessment past week scale

The scale representing how often the participant needed help doing usual activities because of fatigue in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

 Exploratory Neuro-QOL Adult Bank - Fatigue False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56411 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Vocabulary T score

The T score converted from the raw score that the subject received on the Vocabulary subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

 Exploratory Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54164 Woodcock Johnson III (WJ-III) - Story recall stories 3-4 total point count

Count of the number of correct test subject responses from story recall stories 3 and 4 as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57298 Health problem interfere working good day scale

Scale related to how much an individual's health problems interfere with his/her working on a good day

 Exploratory Physical Functioning and Activities of Daily Living False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58443 Objective measure describe equipment used text

Text describing what objective measures equipment used

 Supplemental Sleep Focused Study Questionnaire False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58235 Laboratory test autoimmune muscarinic receptor type text

Free-text field to specify type of muscarinic receptor used in autoimmunological antibody laboratory testing

 Supplemental Laboratory Tests - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C55948 California Verbal Learning Test - Second Edition (CVLT-II) - Total learning slope trial 2 5 score

Score of the learning slope for trials 2-5, as part of the California Verbal Learning Test (CVLT-II)

 Supplemental-Highly Recommended California Verbal Learning Test - Second Edition (CVLT-II) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56314 NIH Toolbox Cognitive – Flanker inhibitory control and attention age 3 up age adjusted scale score

The age adjusted scale score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery

 Supplemental NIH Toolbox Cognitive Battery False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57420 Ear nose throat condition medication past year indicator

The indicator relating to whether the subject has taken medication for an ear, nose, throat condition in the past year

 Exploratory Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56285 NIH Toolbox Cognitive ? Cognition fluid composite unadjusted scale score

The unadjusted scale score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery

 Supplemental NIH Toolbox Cognitive Battery False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57175 DHEA-S test result value

Value describing the results from the DHEA-S test

 Supplemental Neuroendocrine Labs False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 101 - 125 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.