CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 2638
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19256 Study protocol name

Name of study protocol

 Supplemental-Highly Recommended Medication and Other Treatments False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53917 California Verbal Learning Test Childrens version (CVLT-C) - List A semantic cluster total score

Total score for List A semantic cluster, as part of California Verbal Learning Test Children's version (CVLT-C)

 Supplemental-Highly Recommended California Verbal Learning Test - Children (CVLT-C) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C55975 California Verbal Learning Test - Second Edition (CVLT-II) - Total false positive count

Total number of false-positives produced by the subject, as part of the California Verbal Learning Test (CVLT-II)

 Supplemental-Highly Recommended California Verbal Learning Test - Second Edition (CVLT-II) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09639 Fatigue Severity Scale (FSS) - low motivation scale

Scale used to describe the extent to which the patient's motivation was lower in the past week, as part of the Fatigue Severity Scale (FSS)

 Supplemental-Highly Recommended Fatigue Severity Scale (FSS) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53780 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 15 text

The word used for Word Reading item 15, as part of Wide Range Achievement Test 4 (WRAT-4)

 Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

 Supplemental-Highly Recommended Quantitative Electroencephalography (qEEG) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C19500 Assessment performed date

The date of assessment of the examination being performed

 Supplemental-Highly Recommended Passive Standing Test Protocol False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57896 Cranial nerve shoulder raise assessment status

The status of shoulder raise cranial nerves assessment in neurological examination

 Supplemental-Highly Recommended Physical Examination False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C20421 Beck Depression Inventory II (BDI-II) - Sadness scale

Scale identifying level of sadness, as part of the Beck Depression Inventory II (BDI-II)

 Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57362 ROME I criteria indicator

The indicator relating to whether the ROME I criteria for Irritable Bowel Syndrome has been met

 Supplemental-Highly Recommended Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56715 Imaging magnetoencephalography spectral latency other text

Text describing another spectral latency used in the analysis of the magnetoencephalography (MEG) data

 Supplemental-Highly Recommended Magnetoencephalography (MEG) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53740 Wide Range Achievement Test 4 (WRAT-4) - Letter 9 score

Score for Letter Recognition item 9, as a part of the Wide Range Achievement Test 4 (WRAT-4)

 Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C19256 Study protocol name

Name of study protocol

 Supplemental-Highly Recommended Family Health History False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C02498 Imaging scanner software version number text

Free-text field specifying the version number of the imaging scanner software

 Supplemental-Highly Recommended Positron Emission Tomography (PET) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C08502 36-item Short Form Health Survey (SF-36) - Now heath score

Score of surveyee-reported present general heath compared to a year ago as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56673 Imaging magnetoencephalography bad trial list text

Text listing all of the bad trials found during MEG preprocessing

 Supplemental-Highly Recommended Magnetoencephalography (MEG) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53925 California Verbal Learning Test Childrens version (CVLT-C) - List B free recall trial correct words count

Total count of correct words recalled from the interference list - List B (Total C), as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score

 Supplemental-Highly Recommended California Verbal Learning Test - Children (CVLT-C) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C10568 Imaging radio frequency coil channel count

Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

 Supplemental-Highly Recommended Magnetic Resonance Imaging (MRI) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C55984 California Verbal Learning Test- Second Edition (CVLT-II) - Total recognition discriminability raw score

Total raw score for recognition discriminability of the long delay trials, as part of the California Verbal Learning Test (CVLT-II)

 Supplemental-Highly Recommended California Verbal Learning Test - Second Edition (CVLT-II) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57106 Medication help sleep problem indicator

Indicator of whether medication was taken regularly to help with sleep problems

 Supplemental-Highly Recommended Sleep Focused Study Questionnaire False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09647 Fatigue Severity Scale (FSS) - interfere work family social scale

Scale used to describe the extent to which fatigue interferes with the patient's work, family, or social life, as part of the Fatigue Severity Scale (FSS)

 Supplemental-Highly Recommended Fatigue Severity Scale (FSS) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53788 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 20 text

The word used for Word Reading item 20, as part of Wide Range Achievement Test 4 (WRAT-4)

 Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C14550 EEG video indicator

A test involving simultaneous electroencephalogram (EEG) and video recording

 Supplemental-Highly Recommended Quantitative Electroencephalography (qEEG) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57905 Sensory summary assessment status

The status of summary sensory (hands, feet) assessment in neurological examination

 Supplemental-Highly Recommended Physical Examination False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C20429 Beck Depression Inventory II (BDI-II) - Suicidal thought wish scale

Scale identifying level of suicidal thoughts or wishes, as part of the Beck Depression Inventory II (BDI-II)

 Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 301 - 325 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.