CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 2601 - 2625 of 2638

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2764-C58297	C58297	Past current chest illness type	Any type of past and current chest illnesses that the subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2767-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58320	C58320	Other liver disease text	Specifies other liver disease not listed in the table	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2698-C57069	C57069	Post-exertional malaise DePaul Symptom Questionnaire threshold met indicator	Indicator of whether DSQ PEM threshold was met	Core	Core PEM Assessment Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2767-C58639	C58639	Marital status code	Code for the subject/participant's marital status	Core	Demographics	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58343	C58343	Past current skin problems type	Any type of past and current skin problems that the subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2698-C57096	C57096	DePaul Symptom Questionnaire (DSQ) - mentally tired after slight effort severity scale	Scale related to the severity of the individual feeling mentally tired after the slightest effort, as part of the DePaul Symptom Questionnaire (DSQ)	Core	Core PEM Assessment Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58353	C58353	Other skin problems type text	Text of type of other skin problems that the subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C11063	C11063	Parity maternal value	Number of live born children the participant's/subject's mother has delivered	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2706-C57089	C57089	DePaul Symptom Questionnaire (DSQ) - Sleep during day awake night frequency scale	Frequency related to the individual sleeping during the day and staying awake during the night, as part of the DePaul Symptom Questionnaire (DSQ)	Core	Sleep Questions For All Studies	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2706-C19247	C19247	Subject ID	Subject identification ID	Core	Sleep Questions For All Studies	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2706-C57081	C57081	DePaul Symptom Questionnaire (DSQ) - Need nap daily frequency scale	Frequency of how often the individual needs to nap daily, as part of the DePaul Symptom Questionnaire (DSQ)	Core	Sleep Questions For All Studies	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58363	C58363	Immune deficiency type text	Any other type of past and current immune deficiency other than HIV that the subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58271	C58271	Past current cardiovascular heart disease type text	Text of past and current cardiovascular heart disease type that the subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58301	C58301	Pneumonia type text	Text of type of pneumonia that the subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58321	C58321	Past current neurological illness type	Any type of past and current neurological illnesses that the subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2698-C57070	C57070	Post-exertional malaise diagnosis method type	Type of method used to determine whether PEM is experienced	Core	Core PEM Assessment Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58344	C58344	Past current tumors cancer illness type	Any type of past and current tumors or cancer illnesses that the subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2698-C57097	C57097	DePaul Symptom Questionnaire (DSQ) - Minimum exercise make physical tired frequency scale	Frequency of how often an individual feels as if minimum exercise makes him/her physically tired, as part of the DePaul Symptom Questionnaire (DSQ)	Core	Core PEM Assessment Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58354	C58354	Other cancer type text	Text of type of other cancer(s) that the subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C11065	C11065	Gravida maternal value	Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58365	C58365	Organ type text	Specifies type of organ transplanted in subject/participant	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2706-C57090	C57090	DePaul Symptom Questionnaire (DSQ) - sleep during day awake night severity scale	Scale related to the severity of the individual sleeping during the day and stay awake during the night, as part of the DePaul Symptom Questionnaire (DSQ)	Core	Sleep Questions For All Studies	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Displaying 2601 - 2625 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.