CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 2526 - 2550 of 2638
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54219 Woodcock Johnson III (WJ-III) - Story recall delayed story six points count

Count of the number of correct test subject responses from story recall - delayed story 6 test as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57444 Daily activity bed chair good day duration

Duration of how long an individual spends doing activities in bed or chair (ex. TV, audiobooks) (in hours) on a good day

 Exploratory Physical Functioning and Activities of Daily Living False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58364 Problems thinking and concentrating occurrence condition frequency scale

Scale of the frequency of conditions when problems thinking and concentrating occur

 Exploratory Modified Orthostatic Symptom Grading Scale False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52876 Woodcock Johnson III (WJ-III) - Story recall stories 5-8 total count

Total number count of story recall stories 5-6 test responses, sum of WJ3StoryRecallStories56PtVal and WJ3StoryRecallStories78PtVal as part of Woodcock Johnson III (WJ-III) tests of achievement

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53674 Kiddie Schedule for Affective Disorders Present and Lifetime (KSADS-PL) - child age value

The age of the participant/subject, as part of the Kiddie Schedule for Affective Disorders Present and Lifetime version (KSADS-PL)

 Exploratory Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57629 Prior exercise frequency

Frequency of the prior exercise the individual has engaged in (days/week on average)

 Exploratory Physical Functioning and Activities of Daily Living False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57263 Antibiotic long term repeated history name

The name of the antibiotic(s) that the subject has a history of using repeatedly or long term

 Exploratory Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57471 Pain prohibit exercise stationary cycle indicator

Indicator of whether the individual has either pain/injury that would prohibit them from exercising on a stationary cycle

 Exploratory Physical Functioning and Activities of Daily Living False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C20548 Quality of Life in Neurological Disorders (Neuro-Qol) - No household chore fatigue assessment past week scale

The scale representing how often the participant felt too tired to do household chores in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

 Exploratory Neuro-QOL Adult Bank - Fatigue False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56406 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Block Design raw score

The raw score that the subject received on the Block Design subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

 Exploratory Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58639 Marital status code

Code for the subject/participant's marital status

 Core Demographics False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58343 Past current skin problems type

Any type of past and current skin problems that the subject/participant has ever been diagnosed with

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57096 DePaul Symptom Questionnaire (DSQ) - mentally tired after slight effort severity scale

Scale related to the severity of the individual feeling mentally tired after the slightest effort, as part of the DePaul Symptom Questionnaire (DSQ)

 Core Core PEM Assessment Questionnaire False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58353 Other skin problems type text

Text of type of other skin problems that the subject/participant has ever been diagnosed with

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C11063 Parity maternal value

Number of live born children the participant's/subject's mother has delivered

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core General Core False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58239 Past current cardiovascular illness type

Any type of past and current cardiovascular illnesses that the subject/participant has ever been diagnosed with

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58297 Past current chest illness type

Any type of past and current chest illnesses that the subject/participant has ever been diagnosed with

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core Demographics False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58320 Other liver disease text

Specifies other liver disease not listed in the table

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57069 Post-exertional malaise DePaul Symptom Questionnaire threshold met indicator

Indicator of whether DSQ PEM threshold was met

 Core Core PEM Assessment Questionnaire False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C19247 Subject ID

Subject identification ID

 Core Sleep Questions For All Studies False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57081 DePaul Symptom Questionnaire (DSQ) - Need nap daily frequency scale

Frequency of how often the individual needs to nap daily, as part of the DePaul Symptom Questionnaire (DSQ)

 Core Sleep Questions For All Studies False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58363 Immune deficiency type text

Any other type of past and current immune deficiency other than HIV that the subject/participant has ever been diagnosed with

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 2526 - 2550 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.