CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 176 - 200 of 2638
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54712 Epworth Sleepiness Scale Children (ESS-C) - Doze sleep likelihood car passenger code

The code denoting the subect/participant's self-reported likelihood of dozing off or falling asleep while a passenger in a car, as part of the Epworth Sleepiness Scale, Children's version (ESS-C)

Exploratory Epworth Sleepiness Scale (ESS) - Children's Version Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C21117 Subject name

Name of subject/participant

Exploratory Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57769 Blood immune condition diagnosis other text

Text specifying a blood and/or immune system condition other than the ones previously mentioned that the subject has ever been diagnosed with

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C19247 Subject ID

Subject identification ID

Exploratory Physical Functioning and Activities of Daily Living Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57378 Eye condition active indicator

The indicator relating to whether the subject currently has an eye condition

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52782 Woodcock Johnson III (WJ-III) - Handwriting horizontal alignment type

Type of horizontal alignment on the handwriting elements checklist as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57631 Discomfort shortness breath pain exercise indicator

Indicator of if the individual had discomfort, shortness of breath or pain when exercising

Exploratory Physical Functioning and Activities of Daily Living Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52722 Woodcock Johnson III (WJ-III) - Story recall stories 1-2 point value

Value of the points scored for story recall stories 1-2 as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58269 Windmill live within 300 meter type

Type of windmill that the subject/participant within 300 meters of which the subject/participant lives now or has lived

Exploratory Exposure History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57806 Infection diagnosis type

Any type of the infections listed that the subject has ever been diagnosed with

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Exploratory Grip Strength Fatigue Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54520 Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) - Diagnosis current episode certainty code

Code for the certainty with which the current episode of the condition selected for 'Value of the subject/participant's age at onset of the first episode of the condition selected for 'Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) - Summary Lifetime Diagnoses Checklist diagnosis type', as part of the Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL)' was diagnosed for the subject/participant, as part of the Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL)

Exploratory Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57277 Food component hypersensitivity reaction type text

Free-text field describing the reaction the participant/subject has as a result of a food component hypersensitivity

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57540 Spent upright activity hours day 6 before test duration

Duration of test time spent in upright activities (in chair or standing) (in hours) on day 6 before recording date start

Exploratory Physical Functioning and Activities of Daily Living Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C20573 Quality of Life in Neurological Disorders (Neuro-Qol) - Overall weakness fatigue assessement past week scale

The scale representing how often the participant felt weak all over in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

Exploratory Neuro-QOL Adult Bank - Fatigue Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56418 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid type

The type of visual or hearing aid or aids that the examinee needed during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Exploratory Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54171 Woodcock Johnson III (WJ-III) - Story recall story 10 points count

Count of the number of correct test subject responses from story recall story 10 test as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57320 Health problem interfere shopping bad day scale

Scale related to how much an individual's health problems interfere with his/her shopping on a bad day

Exploratory Physical Functioning and Activities of Daily Living Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C10859 Grip strength fatigue percent target value

Value of (the percentage of) target grip strength for which grip hold duration is being measured in the grip strength fatigue trial being recorded

Exploratory Grip Strength Fatigue Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52797 Woodcock Johnson III (WJ-III) - Picture vocabulary score

Score from the picture vocabulary test as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54528 Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) - Psychiatric hospitalization total count

Count of all hospitalizations of the subject/participant for psychiatric reasons, as part of the Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL)

Exploratory Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57074 National Health and Nutrition Examination Survey (NHANES) - Wake up during night frequency category

Range of how often an individual wakes up during the night and has trouble getting back to sleep, as part of the National Health and Nutrition Examination Survey (NHANES)

Exploratory Sleep Questions For All Studies Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57313 Adverse reaction drug name

The name of the drug to which the participant/subject has an adverse reaction

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C11915 Modified Fatigue Impact Scale (MFIS) - less motivate physical effort score

Scale for having been less motivated to do anything that requires physical effort as part of Modified Fatigue Impact Scale form

Exploratory Modified Fatigue Impact Scale (MFIS) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57549 Spent upright activity hours day 4 before test duration

Duration of test time spent in upright activities (in chair or standing) (in hours) on day 4 before recording date start

Exploratory Physical Functioning and Activities of Daily Living Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 176 - 200 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.