CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09588 Brief Pain Inventory (BPI) - pain sleep interference scale

Scale assessing how much the pain has interfered with sleep, as part of the Brief Pain Inventory (BPI) form

Supplemental-Highly Recommended Brief Pain Inventory (Short Form) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09587 Brief Pain Inventory (BPI) - pain relations interference scale

Scale assessing how much the pain has interfered with relations with other people, as part of the Brief Pain Inventory (BPI) form

Supplemental-Highly Recommended Brief Pain Inventory (Short Form) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09586 Brief Pain Inventory (BPI) - pain normal work interference scale

Scale assessing how much the pain has interfered with normal work, as part of the Brief Pain Inventory (BPI) form

Supplemental-Highly Recommended Brief Pain Inventory (Short Form) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09584 Brief Pain Inventory (BPI) - pain mood interference scale

Scale assessing how much the pain has interfered with mood, as part of the Brief Pain Inventory (BPI) form

Supplemental-Highly Recommended Brief Pain Inventory (Short Form) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09583 Brief Pain Inventory (BPI) - pain general activity interference scale

Scale assessing how much the pain has interfered with general activity, as part of the Brief Pain Inventory (BPI) form

Supplemental-Highly Recommended Brief Pain Inventory (Short Form) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09589 Brief Pain Inventory (BPI) - pain enjoyment interference scale

Scale assessing how much the pain has interfered with enjoyment of life, as part of the Brief Pain Inventory (BPI) form

Supplemental-Highly Recommended Brief Pain Inventory (Short Form) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09576 Brief Pain Inventory (BPI) - pain area indicator

On the diagram, shade in the areas where you feel pain. Put an X on the area that hurts the most, as part of the Brief Pain Inventory (BPI) form

Supplemental-Highly Recommended Brief Pain Inventory (Short Form) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09575 Brief Pain Inventory (BPI) - other pain indicator

Indicates if the subject had pain other than everyday kinds of pain, as part of the Brief Pain Inventory (BPI) form

Supplemental-Highly Recommended Brief Pain Inventory (Short Form) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09578 Brief Pain Inventory (BPI) - least pain rating scale

Scale indicating the rating of the least pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form

Supplemental-Highly Recommended Brief Pain Inventory (Short Form) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09580 Brief Pain Inventory (BPI) - current pain rating scale

Scale rating the pain the subject is feeling right now, as part of the Brief Pain Inventory (BPI) form

Supplemental-Highly Recommended Brief Pain Inventory (Short Form) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09579 Brief Pain Inventory (BPI) - average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form

Supplemental-Highly Recommended Brief Pain Inventory (Short Form) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58154 Brain volume qualitative analysis category

Category of the brain volume analysed, in qualitative terms

Supplemental-Highly Recommended Low Resolution Electromagnetic Tomography (LORETA) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C13970 Brain region of interest type

Region of interest in the brain

Supplemental-Highly Recommended Low Resolution Electromagnetic Tomography (LORETA) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C18895 Brain region of interest other text

The free-text field related to 'Brain region of interest type' specifying other text. Region of interest in the brain

Supplemental-Highly Recommended Low Resolution Electromagnetic Tomography (LORETA) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58156 Brain part text

Text describing the part of the brain examined if less than the full brain volume

Supplemental-Highly Recommended Low Resolution Electromagnetic Tomography (LORETA) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58379 Blurry vision stand duration scale

Scale for the duration of standing time before blurry vision occurs

Exploratory Modified Orthostatic Symptom Grading Scale Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58371 Blurry vision severity scale

Severity of blurry vision scale

Exploratory Modified Orthostatic Symptom Grading Scale Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58375 Blurry vision occurrence condition scale

Scale of the frequency of conditions in which blurry vision occurs

Exploratory Modified Orthostatic Symptom Grading Scale Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58369 Blurry vision frequency scale

Frequency of blurry vision scale

Exploratory Modified Orthostatic Symptom Grading Scale Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58376 Blurry vision activity interference scale

Scale of blurry vision interference with daily living activities

Exploratory Modified Orthostatic Symptom Grading Scale Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58414 Blood sample peripheral blood mononuclear cell isolation method type

Isolation method used for blood peripheral blood mononuclear cells

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58415 Blood sample peripheral blood mononuclear cell isolation method other text

Free-text field to describe other isolation method used for blood peripheral blood mononuclear cells

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Supplemental-Highly Recommended Physical Examination Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C19565 Blood Pressure measurement

Blood pressure measurement with systolic measurement over diastolic measurement

Supplemental-Highly Recommended Passive Standing Test Protocol Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Supplemental-Highly Recommended Physical Examination Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.