CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2715-C11647	C11647	Checklist Individual Strength (CIS20R) - done little activity scale	Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: I get little done. Part of the Checklist Individual Strength (CIS20R) questionnaire	Supplemental	Checklist for Individual Strength - Fatigue (CIS)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2715-C11635	C11635	Checklist Individual Strength (CIS20R) - do nice thing feeling scale	Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: I feel like doing lots of nice things. Part of the Checklist Individual Strength (CIS20R) questionnaire	Supplemental	Checklist for Individual Strength - Fatigue (CIS)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2715-C11637	C11637	Checklist Individual Strength (CIS20R) - daily activity perception scale	Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: I think I do a lot in a day. Part of the Checklist Individual Strength (CIS20R) questionnaire	Supplemental	Checklist for Individual Strength - Fatigue (CIS)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2715-C11652	C11652	Checklist Individual Strength (CIS20R) - concentration total score	Sum of items 3, 8, 11, 13, 19 (range 5-35). Part of the Checklist Individual Strength (CIS20R) questionnaire	Supplemental	Checklist for Individual Strength - Fatigue (CIS)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2715-C11643	C11643	Checklist Individual Strength (CIS20R) - concentration effort scale	Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: It takes a lot of effort to concentrate on things. Part of the Checklist Individual Strength (CIS20R) questionnaire	Supplemental	Checklist for Individual Strength - Fatigue (CIS)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2715-C11644	C11644	Checklist Individual Strength (CIS20R) - bad form feeling scale	Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: Physically I fell I am in bad form. Part of the Checklist Individual Strength (CIS20R) questionnaire	Supplemental	Checklist for Individual Strength - Fatigue (CIS)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2715-C11654	C11654	Checklist Individual Strength (CIS20R) - activity total score	Sum of items 7, 10, 17 (range 3-21). Part of the Checklist Individual Strength (CIS20R) questionnaire	Supplemental	Checklist for Individual Strength - Fatigue (CIS)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2715-C11648	C11648	Checklist Individual Strength (CIS20R) - activity interest low scale	Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: I don't feel like doing anything. Part of the Checklist Individual Strength (CIS20R) questionnaire	Supplemental	Checklist for Individual Strength - Fatigue (CIS)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2715-C11632	C11632	Checklist Individual Strength (CIS20R) - active feeling scale	Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: I feel very active. Part of the Checklist Individual Strength (CIS20R) questionnaire	Supplemental	Checklist for Individual Strength - Fatigue (CIS)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C57374	C57374	Changed medication name text	Name of changed medication(s) taken by subject/participant	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C57377	C57377	Changed medication frequency status	Frequency status of changed medication given to subject/participant	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58405	C58405	Changed medication frequency other text	Free-text field to describe change(s) to medication	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C57375	C57375	Changed medication dose text	Dose of changed medication(s) taken by subject/participant	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58406	C58406	Change medication time status text	Free-text field to specify changes to medication	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C58078	C58078	Cerebellar tandem stance gait augmentation assessment status	The status of tandem stance/gait with augmentation cerebellar assessment in neurological examination	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C58077	C58077	Cerebellar tandem stance gait assessment status	The status of tandem stance/gait cerebellar assessment in neurological examination	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2747-C57891	C57891	Cerebellar tandem Romberg assessment status	The status of tandem Romberg cerebellar assessment in neurological examination	Supplemental-Highly Recommended	Neurological Exam	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C57891	C57891	Cerebellar tandem Romberg assessment status	The status of tandem Romberg cerebellar assessment in neurological examination	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2747-C57893	C57893	Cerebellar summary assessment status	The status of summary cerebellar assessment in neurological examination	Exploratory	Neurological Exam	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C57893	C57893	Cerebellar summary assessment status	The status of summary cerebellar assessment in neurological examination	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2747-C57892	C57892	Cerebellar Romberg sway assessment indicator	The indicator of sway during Romberg cerebellar assessment in neurological examination	Supplemental-Highly Recommended	Neurological Exam	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2747-C57883	C57883	Cerebellar rapid alternate movement assessment status	The status of rapid alternating movements (forefinger to thumb) cerebellar assessment in neurological examination	Supplemental	Neurological Exam	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2747-C57890	C57890	Cerebellar military Romberg assessment status	The status of military Romberg cerebellar assessment in neurological examination	Supplemental-Highly Recommended	Neurological Exam	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C57884	C57884	Cerebellar heel shin assessment status	The status of heel to shin cerebellar assessment in neurological examination	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2747-C57884	C57884	Cerebellar heel shin assessment status	The status of heel to shin cerebellar assessment in neurological examination	Exploratory	Neurological Exam	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.