CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 2638
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20527 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category

Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58313 Chemical biological exposure substance type

Type of chemical or biological substance to which the subject/participant has ever been exposed

 Exploratory Exposure History False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52704 Woodcock Johnson III (WJ-III) - Reading fluency time duration

Duration time of reading fluency as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57065 Post-exertional malaise activity duration

Duration of the activity being measured for the PEM study

 Exploratory PEM-Focused Studies Questionnaire False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58261 Electrical tower live within 300 meter indicator

Indicator of whether the subject/participant currently lives within 300 meters of an electrical tower

 Exploratory Exposure History False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54714 Epworth Sleepiness Scale Children (ESS-C) - Doze sleep likelihood sit talk code

The code denoting the subect/participant's self-reported likelihood of dozing off or falling asleep while sitting and talking, as part of the Epworth Sleepiness Scale, Children's version (ESS-C)

 Exploratory Epworth Sleepiness Scale (ESS) - Children's Version False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57772 Blood immune condition medication currently indicator

The indicator relating to whether the subject takes medication for blood or immune conditions daily

 Exploratory Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57276 Health problem interfere sleep good day scale

Scale related to how much an individual's health problems interfere with his/her sleep on a good day

 Exploratory Physical Functioning and Activities of Daily Living False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57381 Eye condition medication current indicator

The indicator relating to whether the subject currently takes medication for eye conditions

 Exploratory Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52784 Woodcock Johnson III (WJ-III) - Handwriting letter formation type

Type of letter formation on the handwriting elements checklist as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58433 Vertical activity mean hour day count

Count of the mean hours per day the individual spends in activites requiring him or her to be in a vertical position

 Exploratory Physical Functioning and Activities of Daily Living False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52724 Woodcock Johnson III (WJ-III) - Story recall stories 5-6 point value

Value of the points scored for story recall stories 5-6 as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58272 Moldy building ever live within 300 meter year range

Range of years during which the subject/participant lived within 300 meters of a moldy building

 Exploratory Exposure History False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57808 Infection diagnosis other text

Text specifying an infection other than the ones previously mentioned that the subject has ever been diagnosed with

 Exploratory Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57420 Ear nose throat condition medication past year indicator

The indicator relating to whether the subject has taken medication for an ear, nose, throat condition in the past year

 Exploratory Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C11914 Modified Fatigue Impact Scale (MFIS) - pace physical activity score

Scale for having paced self in the physical activities as part of Modified Fatigue Impact Scale form

 Exploratory Modified Fatigue Impact Scale (MFIS) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52736 Woodcock Johnson III (WJ-III) - Calculation correct count

Count of correct calculation test responses from the test subject as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58283 Apartment building floor count

Count of floors in the building containing the apartment residence

 Exploratory Exposure History False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52638 Woodcock Johnson III (WJ-III) - Education years retained count

Count in the number of years test subject has retained education

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57882 Immune disorder treatment received indicator

Indicator related to whether treatments were received for any immune disorders

 Exploratory Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57497 Lung condition medication currently indicator

The indicator relating to whether the subject currently takes medication for lung condiiton(s)

 Exploratory Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C11922 Modified Fatigue Impact Scale (MFIS) - physical uncomfort score

Scale for having been physically uncomfortable as part of Modified Fatigue Impact Scale form

 Exploratory Modified Fatigue Impact Scale (MFIS) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52745 Woodcock Johnson III (WJ-III) - Writing fluency score

Score from the writing fluency test as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58294 Residence renovation text

The free-text field for describing the renovations done to the subject/participant's residence

 Exploratory Exposure History False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52648 Woodcock Johnson III (WJ-III) - Year round school instruction days completed count

Count of the number of completed days of test subject's instruction if attends school year-round as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 201 - 225 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.