CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 2638
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54219 Woodcock Johnson III (WJ-III) - Story recall delayed story six points count

Count of the number of correct test subject responses from story recall - delayed story 6 test as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58300 Bath water source

Source of the water used by the subject/participant for bathing

 Exploratory Exposure History False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57444 Daily activity bed chair good day duration

Duration of how long an individual spends doing activities in bed or chair (ex. TV, audiobooks) (in hours) on a good day

 Exploratory Physical Functioning and Activities of Daily Living False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52876 Woodcock Johnson III (WJ-III) - Story recall stories 5-8 total count

Total number count of story recall stories 5-6 test responses, sum of WJ3StoryRecallStories56PtVal and WJ3StoryRecallStories78PtVal as part of Woodcock Johnson III (WJ-III) tests of achievement

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58248 Pesticide spray area live within 300 meter indicator

Indicator of whether the subject/participant currently lives within 300 meters of a pesticide spray area (e.g., farm, orchard, golf course)

 Exploratory Exposure History False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57711 Skin condition diagnosis type

Any type of the skin conditions listed that the subject has ever been diagnosed with

 Exploratory Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C11932 Modified Fatigue Impact Scale (MFIS) - psychosocial score

Sum of MFIS Psychosocial items (range: 0-8)

 Exploratory Modified Fatigue Impact Scale (MFIS) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57629 Prior exercise frequency

Frequency of the prior exercise the individual has engaged in (days/week on average)

 Exploratory Physical Functioning and Activities of Daily Living False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58310 Pesticide use lawn garden indicator

Indicator of whether pesticide is used on the subject/particpant's lawn or garden

 Exploratory Exposure History False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57471 Pain prohibit exercise stationary cycle indicator

Indicator of whether the individual has either pain/injury that would prohibit them from exercising on a stationary cycle

 Exploratory Physical Functioning and Activities of Daily Living False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C20548 Quality of Life in Neurological Disorders (Neuro-Qol) - No household chore fatigue assessment past week scale

The scale representing how often the participant felt too tired to do household chores in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

 Exploratory Neuro-QOL Adult Bank - Fatigue False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56406 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Block Design raw score

The raw score that the subject received on the Block Design subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

 Exploratory Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54159 Woodcock Johnson III (WJ-III) - Story recall story 2 points count

Count of the number of correct test subject responses from story recall story 2 test as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58257 Polluted waterway live within 300 meter type

Type of polluted waterway that the subject/participant within 300 meters of which the subject/participant lives now or has lived

 Exploratory Exposure History False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57768 Blood immune system condition diagnosis type

Any type of blood and/or immune system condition(s) that the subject has ever been diagnosed with

 Exploratory Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57373 Medical history eye condition other text

Text describing another eye condition the subject has a medical history of

 Exploratory Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57919 Reflex summary assessment status

The status of summary reflexes assessment in neurological examination

 Exploratory Neurological Exam False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57519 Spent bed hours day 6 before test duration

Duration of test time spent (in hours) in bed on day 6 before recording date start

 Exploratory Physical Functioning and Activities of Daily Living False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C20566 Quality of Life in Neurological Disorders (Neuro-Qol) - Difficulty finish task fatigue assessment past week scale

The scale representing how often the participant had trouble finishing things because they were too tired in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

 Exploratory Neuro-QOL Adult Bank - Fatigue False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56414 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension T score sum value

The sum of the T scores the subject received on the Verbal Comprehension subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

 Exploratory Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54167 Woodcock Johnson III (WJ-III) - Story recall story 7 points count

Count of the number of correct test subject responses from story recall story 7 test as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58268 Windmill ever live within 300 meter year range

Range of years during which the subject/participant lived within 300 meters of a windmill

 Exploratory Exposure History False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57307 Health problem interfere household task good day scale

Scale related to how much an individual's health problems interfere with his/her doing household tasks (making beds, vacuuming) on a good day

 Exploratory Physical Functioning and Activities of Daily Living False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52793 Woodcock Johnson III (WJ-III) - Story recall-delayed stories 7-8 point value

Value of the points scored for story recall-delayed stories 7-8 as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57805 Blood immune condition inactive resolved other text

Text specifying a blood and/or immune system condition other than the ones previously mentioned that is no longer active in the subject or is considered resolved or cured

 Exploratory Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 201 - 225 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.