CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 201 - 225 of 2638
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20549 Quality of Life in Neurological Disorders (Neuro-Qol) - Not leave house fatigue assessment past week scale

The scale representing how often the participant felt too tired to leave the house in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

Exploratory Neuro-QOL Adult Bank - Fatigue Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56407 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Vocabulary raw score

The raw score that the subject received on the Vocabulary subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Exploratory Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54160 Woodcock Johnson III (WJ-III) - Story recall stories 1-2 total point count

Count of the number of correct test subject responses from story recall stories 1 and 2 as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57284 Health problem interfere eating average scale

Scale related to how much an individual's health problems interfere with his/her eating on average

Exploratory Physical Functioning and Activities of Daily Living Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54514 Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) - Major depressive disorder diagnosis subtype text

Free-text field for identifying the subtype for a diagnosis of Major Depressive Disorder selected for ''Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) - Summary Lifetime Diagnoses Checklist diagnosis type'', as part of the Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL)

Exploratory Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57273 Gut condition diagnosis year value

The year that the subject was diagnosed with gut condition(s)

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57525 Spent bed sleep hours day 7 before test duration

Duration of test time spent sleeping (in hours) in bed on day 7 before recording date start

Exploratory Physical Functioning and Activities of Daily Living Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C50680 Examiner name

The name of the person performing the exam

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C20569 Quality of Life in Neurological Disorders (Neuro-Qol) - No short walk fatigue assessment past week scale

The scale representing how often the participant was too tired to take a short walk in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

Exploratory Neuro-QOL Adult Bank - Fatigue Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56415 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning T score sum value

The sum of the T scores the subject received on the Perceptual reasoning subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Exploratory Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54168 Woodcock Johnson III (WJ-III) - Story recall story 8 points count

Count of the number of correct test subject responses from story recall story 8 test as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57311 Health problem interfere household task bad day scale

Scale related to how much an individual's health problems interfere with his/her doing household tasks (making beds, vacuuming) on a bad day

Exploratory Physical Functioning and Activities of Daily Living Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C10855 Grip strength maximum measurement

Measurement of the maximum grip strength attained in the trial being recorded

Exploratory Grip Strength Fatigue Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52794 Woodcock Johnson III (WJ-III) - Story recall-delayed stories 9-10 point value

Value of the points scored for story recall-delayed stories 9-10 as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54525 Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) - Outpatient ever history indicate code

Code indicating whether the subject/participant has ever received outpatient treatment, as part of the Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL)

Exploratory Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57285 Skin condition diagnosis year value

The year skin condition(s) was diagnosed

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C11912 Modified Fatigue Impact Scale (MFIS) - clumsy uncoordinated score

Scale for having been clumsy and uncoordinated as part of Modified Fatigue Impact Scale form

Exploratory Modified Fatigue Impact Scale (MFIS) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57546 Spent bed sleep hours day 5 before test duration

Duration of test time spent sleeping (in hours) in bed on day 5 before recording date start

Exploratory Physical Functioning and Activities of Daily Living Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56423 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid other used indicator

The indicator relating to whether the examinee used his/her other visual or hearing aid during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Exploratory Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54176 Woodcock Johnson III (WJ-III) - Understanding directions pictures 2-3 total point count

Count of the total number of correct test subject responses for pictures 2 and 3 of the understanding directions test as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57331 Health problem interfere socializing good day scale

Scale related to how much an individual's health problems interfere with his/her socializing on a good day

Exploratory Physical Functioning and Activities of Daily Living Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52806 Woodcock Johnson III (WJ-III) - Reading vocabulary synonyms score

Score from the reading vocabulary synonyms test as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54533 Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) - Antipsychotic medication history text

The free-text field related to 'Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) - Antipsychotic medication history indicate code' specifying other text, as part of the Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL)

Exploratory Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57323 Atopic allergy disorder condition diagnosed information status

Status for atopy/allergic disorder(s) with which the participant/subject has been diagnosed

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C11920 Modified Fatigue Impact Scale (MFIS) - less motivate activity require think score

Scale for having been less motivated to do anything that requires thinking as part of Modified Fatigue Impact Scale form

Exploratory Modified Fatigue Impact Scale (MFIS) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 201 - 225 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.