CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 176 - 200 of 2638
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54218 Woodcock Johnson III (WJ-III) - Story recall delayed story five points count

Count of the number of correct test subject responses from story recall - delayed story 5 test as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57440 Daily activity sleep bad day duration

Duration of how long an individual spends sleeping (in hours) on a bad day

Exploratory Physical Functioning and Activities of Daily Living Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58360 Severity of problems thinking and concentrating scale

Severity of problems with thinking and concetrating while standing scale

Exploratory Modified Orthostatic Symptom Grading Scale Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52875 Woodcock Johnson III (WJ-III) - Story recall stories 3-6 total count

Total number count of story recall stories 3-6 test responses, sum of WJ3StoryRecallStories34PtVal and WJ3StoryRecallStories56PtVal as part of Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53673 Kiddie Schedule for Affective Disorders Present and Lifetime (KSADS-PL) - Birth date

The date of birth of the participant/subject, as part of the Kiddie Schedule for Affective Disorders Present and Lifetime version (KSADS-PL)

Exploratory Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C17824 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - less able complete tasks requiring physical effort scale

Scale for having been less able to complete tasks that require physical effort as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

Exploratory Modified Fatigue Impact Scale (MFIS) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52708 Woodcock Johnson III (WJ-III) - Reading fluency start time

Start time of reading fluency as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58264 Cell tower live within 300 meter indicator

Indicator of whether the subject/participant currently lives within 300 meters of a cell tower

Exploratory Exposure History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54716 Epworth Sleepiness Scale Children (ESS-C) - Doze sleep likelihood homework take test code

The code denoting the subect/participant's self-reported likelihood of dozing off or falling asleep while doing homework or taking a test, as part of the Epworth Sleepiness Scale, Children's version (ESS-C)

Exploratory Epworth Sleepiness Scale (ESS) - Children's Version Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57774 Blood immune condition medication work well indicator

The indicator relating to whether the medication(s) the subject is taking for blood or immune conditions is (are) working well

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57383 Eye condition medication work well indicator

The indicator relating to whether the subject's medication(s) for eye conditons is(are) working well

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52786 Woodcock Johnson III (WJ-III) - Handwriting line quality type

Type of quality of the subject/participant's handwriting, as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52726 Woodcock Johnson III (WJ-III) - Story recall stories 9-10 point value

Value of the points scored for story recall stories 9-10 as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58274 Insect borne pathogen endemic area ever live within 300 meter year range

Range of years during which the subject/participant lived within 300 meters of an area with an endemic insect-borne pathogen (e.g., Lyme disease, Zika virus)

Exploratory Exposure History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57810 Infection condition medication past year indicator

The indicator relating to whether the subject has taken medication for infections in the past year

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57423 Ear nose throat condition medication name

The name of the medication(s) the subject is taking for an ear, nose, throat condition

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52738 Woodcock Johnson III (WJ-III) - Math fluency time duration

Duration time of math fluency as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58286 Residence ownership type

Type of ownership of the subject/participant's residence

Exploratory Exposure History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52641 Woodcock Johnson III (WJ-III) - Additional information subject glasses use indicator

Indicator whether test subject uses glasses as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57958 Antibiotic long term repeated history indicator

Indicator related to whether the participant/subject has a history of repeated or long-term antibiotic use

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57499 Lung condition medication work well indicator

The indicator relating to whether the medication(s) the subject is taking for lung condition(s) is(are) working

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52756 Woodcock Johnson III (WJ-III) - Writing fluency end time

End time of writing fluency as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58296 Residential vacuum equipment other text

The free-text field related to 'Residential vacuum equipment type' specifying other text

Exploratory Exposure History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52653 Woodcock Johnson III (WJ-III) - Conversational proficiency level status

Status level of test subject's conversational proficiency as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58245 Dump site live within 300 meter indicator

Indicator of whether the subject/participant currently lives within 300 meters of a dump site

Exploratory Exposure History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 176 - 200 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.