CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 2638
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C57222 Abnormal unintentional weight loss 6 month status

The status of the severity of the subject's abnormal/unintentional weight loss in the past 6 months

Supplemental Neuroendocrine/Hypothalamic Symptoms Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57104 Acclimation period before study indicator

Indicator of whether there was an acclimation period (e.g. a night when subjects were set up for a polysomnography (PSG) but no official measurements (taken) or instructions given to subjects before the study began to individual subjects

Supplemental-Highly Recommended Sleep Focused Study Questionnaire Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57105 Acclimation process description text

Free text field related to the description of the acclimation process used

Supplemental-Highly Recommended Sleep Focused Study Questionnaire Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57187 ACTH test date and time

The date and time the subject's ACTH test was performed

Supplemental Neuroendocrine Labs Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57186 ACTH test result unit of measure

The unit used to measure the results of the ACTH test

Supplemental Neuroendocrine Labs Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57185 ACTH test result value

Value describing the results from the ACTH test

Supplemental Neuroendocrine Labs Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57360 Activity affect by fatigue status

Status of how an individual's activities have been affected by tiredness, weariness or fatigue

Exploratory Physical Functioning and Activities of Daily Living Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57501 Actual recording start date

Date in which actual recording started

Exploratory Physical Functioning and Activities of Daily Living Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57252 Adrenal insufficiency diagnosis age value

The value representing the age the subject was when he/she was diagnosed with adrenal insufficiency

Supplemental Reproductive and Hormonal History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57251 Adrenal insufficiency indicator

The indicator relating to whether the subject has adrenal insuffciency

Supplemental Reproductive and Hormonal History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57312 Adverse drug reaction indicator

The indicator relating to whether the subject experiences reactions to adverse drugs

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57313 Adverse reaction drug name

The name of the drug to which the participant/subject has an adverse reaction

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57316 Adverse reaction drug receive year text

Free-text field to indicate the year(s) the participant/subject has received a drug which causes an adverse reaction

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57315 Adverse reaction drug route text

Free-text field to describe the route used for a drug which causes an adverse reaction for the participant/subject

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57282 Adverse reaction drug type text

Free-text field to describe the type of adverse reaction the participant/subject has from a drug

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57492 Age activity range

Range of ages at which the individual participated in the indicated activity

Exploratory Physical Functioning and Activities of Daily Living Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

Supplemental-Highly Recommended Quantitative Electroencephalography (qEEG) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

Supplemental Fatigue/Activity Record and Diary Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

Supplemental Cardiopulmonary Exercise Testing (CPET) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

Supplemental-Highly Recommended California Verbal Learning Test - Second Edition (CVLT-II) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

Exploratory Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

Supplemental-Highly Recommended Non-Quantitative Electroencephalography (EEG) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57184 Aldosterone test date and time

The date and time the subject's Aldosterone test was performed

Supplemental Neuroendocrine Labs Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57183 Aldosterone test result unit of measure

The unit used to measure the results of the Aldosterone test

Supplemental Neuroendocrine Labs Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 51 - 75 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.