CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
2638 results.
Operations
Selected 13 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58036 Heart large artery summary assessment status

The status of summary heart and large artery assessment in physical examination

 Supplemental-Highly Recommended Physical Examination False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57063 Post-exertional malaise activity start time

Time at which the activity being measured started for the PEM study

 Exploratory PEM-Focused Studies Questionnaire False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58430 Atopy allergic disorder condition diagnosis other text

The free-text field to describe other type of condition(s) that the participant/subject was diagnosed with in relation to his/her history of atopy/allergic disorders

 Exploratory Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56599 Imaging functional scan patient task other text

Text describing another patient task performed during the evoked functional scan, if applicable

 Supplemental-Highly Recommended Functional Magnetic Resonance Imaging (fMRI) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C20355 Pittsburgh Sleep Quality Index (PSQI) - Feel hot past month scale

The scale to which the subject felt too hot during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56617 Imaging magnetoencephalography coil configuration type

The type of coil configuration used for the MEG imaging

 Supplemental-Highly Recommended Magnetoencephalography (MEG) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54712 Epworth Sleepiness Scale Children (ESS-C) - Doze sleep likelihood car passenger code

The code denoting the subect/participant's self-reported likelihood of dozing off or falling asleep while a passenger in a car, as part of the Epworth Sleepiness Scale, Children's version (ESS-C)

 Exploratory Epworth Sleepiness Scale (ESS) - Children's Version False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58426 Biomarker specimen collected aliquot number

The number of aliquots made for specimens collected from the participant/subject for biomarkers

 Supplemental Biomarker-Related Sample and Collection Questions False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57584 Ear nose throat condition diagnosed other specify text

Free-text field related to describe other ear, nose, throat conditions with which the participant/subject has been diagnosed

 Exploratory Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57247 Hypothyroidism indicator

The indicator relating to whether the subject has hypothyroidism

 Supplemental Reproductive and Hormonal History False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56305 NIH Toolbox Cognitive - Picture vocabulary age 3 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery

 Supplemental NIH Toolbox Cognitive Battery False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C55917 California Verbal Learning Test - Second Edition (CVLT-II) - Semantic clustering chance adjusted score

Score of the semantic clustering chance adjusted, as part of the California Verbal Learning Test (CVLT-II)

 Supplemental-Highly Recommended California Verbal Learning Test - Second Edition (CVLT-II) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56117 CSF specimen total protein value

The value representing the total protein found in the participant's CSF specimen

 Supplemental Biomarker-Related Sample and Collection Questions False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
2638 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.