CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 2638
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C55573 Pain intensity visual analogue scale value

Value indicated by the subject/participant for his or her pain intensity using a visual analogue scale

 Supplemental Pain Assessment False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56179 Maximum oxygen uptake speed measurement

The speed at which work is generated at the subject's maximum oxygen uptake

 Supplemental Cardiopulmonary Exercise Testing (CPET) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57901 Sensory light touch assessment status

The status of light touch (compare hand to foot) sensory (hands, feet) assessment in neurological examination

 Supplemental-Highly Recommended Physical Examination False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C21811 Beck Anxiety Inventory (BAI) - Feel choke bother scale

Scale that represents how much the participant has been bothered by feeling of choking as part of the Beck Anxiety Inventory (BAI)

 Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56719 Imaging magnetoencephalography source imaging other text

Text describing another source imaging parameter used for the analysis of the magnetoencephalography (MEG) data

 Supplemental-Highly Recommended Magnetoencephalography (MEG) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58089 Family health problems cardiovascular history type

Any type of cardiovascular health problems that the subject's/participant's family relative has ever been diagnosed with

 Supplemental-Highly Recommended Family Health History False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57916 Reflex ankle jerk assessment status

The status of ankle jerk reflexes assessment in neurological examination

 Supplemental Neurological Exam False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57097 DePaul Symptom Questionnaire (DSQ) - Minimum exercise make physical tired frequency scale

Frequency of how often an individual feels as if minimum exercise makes him/her physically tired, as part of the DePaul Symptom Questionnaire (DSQ)

 Core Core PEM Assessment Questionnaire False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57977 Laboratory procedure globulin value

Value of globulin

 Supplemental Laboratory Test Results False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57600 Before illness exercise type text

Text field related to the type of exercise the individual engaged in prior to his/her illness

 Exploratory Physical Functioning and Activities of Daily Living False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57261 Immune symptom onset type

The type of general immune/infectious symptom(s) that the subject experienced at onset (within first month of illness)

 Core Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53842 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 48 text

The word used for Word Reading item 48, as part of Wide Range Achievement Test 4 (WRAT-4)

 Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56677 Imaging magnetoencephalography waveform trigger based average value

The waveform average value for trigger based averaging

 Supplemental-Highly Recommended Magnetoencephalography (MEG) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53929 California Verbal Learning Test Childrens version (CVLT-C) - Cued recall category

Category of a cued recall provided to the subject, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score

 Supplemental-Highly Recommended California Verbal Learning Test - Children (CVLT-C) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57040 Fatigue diary activity type

Type of activity entered in the Fatigue Diary

 Supplemental Fatigue/Activity Record and Diary False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C19247 Subject ID

Subject identification ID

 Supplemental Neuroendocrine/Hypothalamic Symptoms False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57465 Daily activity exercise good day duration

Duration of how long an individual spends exercising (in hours) on a good day

 Exploratory Physical Functioning and Activities of Daily Living False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57937 Oropharyngeal exam status

The results of an oropharyngeal exam

 Supplemental-Highly Recommended Physical Exam - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56281 NIH Toolbox Cognitive – Cognition crystallized composite national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery

 Supplemental NIH Toolbox Cognitive Battery False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58376 Blurry vision activity interference scale

Scale of blurry vision interference with daily living activities

 Exploratory Modified Orthostatic Symptom Grading Scale False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C20546 Quality of Life in Neurological Disorders (Neuro-Qol) - No energy fatigue asssessment past week scale

The scale representing how often the participant felt no energy in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

 Exploratory Neuro-QOL Adult Bank - Fatigue False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C50680 Examiner name

The name of the person performing the exam

 Exploratory Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56254 Oxygen maximum uptake versus predicted partial pressure end tidal carbon dioxide percentage value

The subject's partial pressure of end-tidal carbon dioxide (PETCO2) measured at his/her maximum oxygen uptake compared to his/her predicted PETCO2, calculated as a percentage

 Supplemental Cardiopulmonary Exercise Testing (CPET) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54156 Woodcock Johnson III (WJ-III) - Handwriting line quality comments text

Comments pertaining to handwriting line quality on the handwriting elements checklist as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58228 Laboratory test Chlamydia pneumoniae sample specify text

Free-text field to specify other type of sample used to test for Chlamydia pneumoniae

 Supplemental Laboratory Tests - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 201 - 225 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.