CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 101 - 125 of 2638

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2699-C53857	C53857	Wide Range Achievement Test 4 Revision 4 (WRAT) - total raw score	Word reading total raw score for the Wide Range Achievement Test Revision 4 (WRAT)	Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58239	C58239	Past current cardiovascular illness type	Any type of past and current cardiovascular illnesses that the subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2123-C20385	C20385	Pittsburgh Sleep Quality Index (PSQI) - Day dysfunction due to sleepiness scale	The scale to which day dysfunction due to sleepiness was calculated, as part of the Pittsburgh Sleep quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2755-C56665	C56665	Imaging magnetoencephalography other device system in magnetic shielded room text	Text specifying any other devices or systems present in the magnetic shielded room	Supplemental-Highly Recommended	Magnetoencephalography (MEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2697-C57052	C57052	Post-exertional malaise stimulus relate text	Text field related to stimulus-related termination	Supplemental-Highly Recommended	PEM-Focused Studies Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C58044	C58044	Spleen summary assessment status	The status of summary spleen assessment in physical examination	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2766-C58246	C58246	Dump site ever live within 300 meter year range	Range of years during which the subject/participant lived within 300 meters of a dump site	Exploratory	Exposure History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2756-C56607	C56607	Imaging region size measurement	The measurement of the size of the imaging region	Supplemental-Highly Recommended	Functional Magnetic Resonance Imaging (fMRI)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2699-C53817	C53817	Wide Range Achievement Test 4 (WRAT-4) - Word reading item 34 score	The score for Word Reading item 34, as part of Wide Range Achievement Test 4 (WRAT-4)	Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2762-C58145	C58145	Imaging session problem record method text	Text describing the method used for recording problems that occur during an imaging session	Supplemental-Highly Recommended	Quantitative Electroencephalography (qEEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2016-C56344	C56344	NIH Toolbox Cognitive Picture sequence memory age 3 up age adjusted scale score	The age adjusted scale score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2755-C56625	C56625	Imaging magnetoencephalography magnetic noise assessment type	The type of assessment of magnetic noise performed on the subject	Supplemental-Highly Recommended	Magnetoencephalography (MEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2572-C54539	C54539	Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) - Stimulant history text	The free-text field related to 'Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) - Stimulant medication history indicate code' specifying other text, as part of the Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL)	Exploratory	Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C58004	C58004	Thyroid visible assessment indicator	The indicator of thyroid visible assessment in physical examination	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58465	C58465	Blood collection tube lysing stabilizing media concentration value	Free-text field to specify concentration of lysing/stabilizing media used in blood collection tube	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57607	C57607	Gut condition medication work well indicator	The indicator relating to whether the medication(s) for gut condition the subject is taking is(are) working well	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2739-C57255	C57255	Diabetes insipidus indicator	The indicator relating to whether the subject has diabetes insipidus	Supplemental	Reproductive and Hormonal History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2723-C55925	C55925	California Verbal Learning Test - Second Edition (CVLT - II) - Immediate free recall correct raw score	Correct raw score for immediate free recall trials 1-5, calculated as s the sum of correct responses on the five presentations, as part of California Verbal Learning Test- Second Edition (CVLT-II)	Supplemental-Highly Recommended	California Verbal Learning Test - Second Edition (CVLT-II)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C57922	C57922	Blood collection system type	Indicate type of system used to collect blood	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2721-C52771	C52771	Woodcock Johnson III (WJ-III) - Writing samples items 7-18 points value	Value of the points scored in writing samples items 7-18 as part of the Woodcock Johnson III (WJ-III) tests of achievement	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2713-C57154	C57154	Free T3 test result unit of measure	The unit used to measure the results of the Free T3 test	Supplemental	Neuroendocrine Labs	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2722-C57226	C57226	Decreased urination 6 month status	The status of the severity of the subject's decreased urination in the past 6 months	Supplemental	Neuroendocrine/Hypothalamic Symptoms	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2766-C58308	C58308	Pesticide pet type	The type of pesticide used on the subject/participant's pets (as sprays, collars, powders, etc.)	Exploratory	Exposure History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2721-C52672	C52672	Woodcock Johnson III (WJ-III) - Standardized test procedures modifications indicator	Indicator of any modifications made to standardized test procedures during test administration as part of the Woodcock Johnson III (WJ-III) tests of achievement	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57594	C57594	Current exercise intensity type	Type of intensity of the exercise the individual has engaged in	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.