CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 2638
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C57162 FSH test date and time

The date and time the subject's FSH test was performed

 Supplemental Neuroendocrine Labs False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57234 Sweat unusual decrease inability indicator

The indicator relating to whether the subject has experienced an unusual decrease in sweating or the inability to sweat in the past 6 months

 Supplemental Neuroendocrine/Hypothalamic Symptoms False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58157 Qualitative EEG time series data type

Type of time series data exported from qualitative EEG (qEEG)

 Supplemental-Highly Recommended Low Resolution Electromagnetic Tomography (LORETA) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C20436 Beck Depression Inventory II (BDI-II) - Sleep pattern change scale

Scale identifying level of change in sleep pattern, as part of the Beck Depression Inventory II (BDI-II)

 Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56642 Imaging magnetoencephalography channel group other text

Text describing another channel group used for MEG recording

 Supplemental-Highly Recommended Magnetoencephalography (MEG) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52711 Woodcock Johnson III (WJ-III) - Reading fluency correct count

Count of correct reading fluency responses from the test subject as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58021 Nose summary assessment status

The status of summary nose assessment in physical examination

 Supplemental-Highly Recommended Physical Examination False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57804 Blood immune condition inactive resolved type

Any type of blood and/or immune system conditions that are no longer active in the subject or are considered resolved or cured

 Exploratory Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57065 Post-exertional malaise activity duration

Duration of the activity being measured for the PEM study

 Exploratory PEM-Focused Studies Questionnaire False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57416 Eye condition diagnosis year number

The year that the subject was diagnosed with an eye condition

 Exploratory Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54714 Epworth Sleepiness Scale Children (ESS-C) - Doze sleep likelihood sit talk code

The code denoting the subect/participant's self-reported likelihood of dozing off or falling asleep while sitting and talking, as part of the Epworth Sleepiness Scale, Children's version (ESS-C)

 Exploratory Epworth Sleepiness Scale (ESS) - Children's Version False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C20354 Pittsburgh Sleep Quality Index (PSQI) - Cannot breathe comfortably past month scale

The scale to which the subject had trouble breathing comfortably during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53797 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 24 score

The score for Word Reading item 24, as part of Wide Range Achievement Test 4 (WRAT-4)

 Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56304 NIH Toolbox Cognitive – Picture vocabulary age 3 up age adjusted scale score

The age adjusted scale score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery

 Supplemental NIH Toolbox Cognitive Battery False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53939 California Verbal Learning Test Childrens version (CVLT-C) - Neither list prototipical words count

Count of neitehr list prototipical (NP) recalls in List A Long-Delay Recognition trial, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score

 Supplemental-Highly Recommended California Verbal Learning Test - Children (CVLT-C) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56265 Anaerobic threshold maximum oxygen uptake systolic pressure percentage value

The subject's anaerobic threshold as a percentage of his/her maximum oxygen uptake with respect to systolic blood pressure

 Supplemental Cardiopulmonary Exercise Testing (CPET) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54525 Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) - Outpatient ever history indicate code

Code indicating whether the subject/participant has ever received outpatient treatment, as part of the Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL)

 Exploratory Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C55945 California Verbal Learning Test - Second Edition (CVLT-II) - Total accuracy expressed percent value

Percent accuracy as part of the CVLT-II

 Supplemental-Highly Recommended California Verbal Learning Test - Second Edition (CVLT-II) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58344 Past current tumors cancer illness type

Any type of past and current tumors or cancer illnesses that the subject/participant has ever been diagnosed with

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53757 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 2 score

The score for Word Reading item 2, as part of Wide Range Achievement Test 4 (WRAT-4)

 Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52787 Woodcock Johnson III (WJ-III) - Handwriting overall legibility rating value

Value of rating scored by raters of overall handwriting legibility from writing samples test as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58069 Skin too dry assessment status

The status of skin too dry assessment in physical examination

 Supplemental-Highly Recommended Physical Examination False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58277 Tanning bed use indicator

Indicator of whether the subject/participant uses tanning beds

 Exploratory Exposure History False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56225 Rest heart rate measurement

The subject's heart rate at rest

 Supplemental Cardiopulmonary Exercise Testing (CPET) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57170 Progesterone test result unit of measure

The unit used to measure the results from the Progesterone test

 Supplemental Neuroendocrine Labs False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 51 - 75 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.