CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 276 - 300 of 2638
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58218 Laboratory test parvovirus sample type

Element related to the sample type used to test for parvovirus

Supplemental Laboratory Tests - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57239 Hormonal therapy medication device dose frequency text

Text indicating the dose of the medication or frequency of the device being used for hormonal therapy

Supplemental Reproductive and Hormonal History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58459 Fibromyalgia diagnosis indicator

The indicator related to the diagnosis for fibromyalgia

Supplemental-Highly Recommended Pain Assessment Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C55909 California Verbal Learning Test - Second Edition (CVLT-II) - Short delay cue recall time

Time at the completion of the short delay cued recall portion, as part of California Verbal Learning Test- Second Edition (CVLT-II)

Supplemental-Highly Recommended California Verbal Learning Test - Second Edition (CVLT-II) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57902 Sensory pinprick assessment status

The status of pinprick sensory (hands, feet) assessment in neurological examination

Supplemental-Highly Recommended Physical Examination Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56102 Biomarker specimen type

The type of specimen or specimens collected from the participant/subject for biomarkers

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56186 Predicted tidal volume body temperature pressure saturated measurement

The predicted measurement of tidal volume at BTPS (body temperature and pressure saturated)

Supplemental Cardiopulmonary Exercise Testing (CPET) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57097 DePaul Symptom Questionnaire (DSQ) - Minimum exercise make physical tired frequency scale

Frequency of how often an individual feels as if minimum exercise makes him/her physically tired, as part of the DePaul Symptom Questionnaire (DSQ)

Core Core PEM Assessment Questionnaire Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52739 Woodcock Johnson III (WJ-III) - Math fluency end time

End time of math fluency as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56720 Imaging magnetoencephalography waveform latency amplitude habituation result

Results of waveform latency/amplitude/habituation measures/comparison of the magnetoencephalography (MEG) study

Supplemental-Highly Recommended Magnetoencephalography (MEG) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53946 California Verbal Learning Test Childrens version (CVLT-C) - Total intrusions for all free recall trials count

Total count of intrusions for all free recall trials, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a raw score

Supplemental-Highly Recommended California Verbal Learning Test - Children (CVLT-C) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58090 Cardiovascular low blood pressure type text

Text of cardiovascular low blood pressure type that the subject's/participant's family relative has ever been diagnosed with

Supplemental-Highly Recommended Family Health History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C21830 Beck Anxiety Inventory (BAI) - Fear worst bother scale

Scale that represents how much the participant has been bothered by fear of the worst happening as part of the Beck Anxiety Inventory (BAI)

Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57137 Salivary cortisol test result value

Value describing the results from the Salivary Cortisol Test

Supplemental Neuroendocrine Labs Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57210 Weight gain duration

The time duration in which the subject experienced his/her marked weight gain

Supplemental Neuroendocrine/Hypothalamic Symptoms Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57978 Laboratory procedure alanine aminotransferase value

Value of alanine aminotransferase (ALT)

Supplemental Laboratory Test Results Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C19641 Polysomnography arousal index type total sleep event count

Count of total sleep events recorded for the type of arousal index being reported

Supplemental Polysomnography (PSG) for ME/CFS Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57262 Antibiotic long term repeated history indication text

Free-text field to describe the indication for which the participant/subject has had a history of long-term or repeated use

Exploratory Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57040 Fatigue diary activity type

Type of activity entered in the Fatigue Diary

Supplemental Fatigue/Activity Record and Diary Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52642 Woodcock Johnson III (WJ-III) - Additional information subject testing glasses use indicator

Indicator whether test subject uses glasses during testing as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56678 Imaging magnetoencephalography waveform classification based average value

The waveform average value for classification based averaging

Supplemental-Highly Recommended Magnetoencephalography (MEG) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53849 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 52 score

The score for Word Reading item 52, as part of Wide Range Achievement Test 4 (WRAT-4)

Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56271 Anaerobic threshold maximum oxygen uptake diastolic pressure percentage value

The subject's anaerobic threshold as a percentage of his/her maximum oxygen uptake with respect to diastolic blood pressure

Supplemental Cardiopulmonary Exercise Testing (CPET) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57938 Oropharyngeal exam abnormal result text

Free-text field to describe abnormal results of an oropharyngeal exam

Supplemental-Highly Recommended Physical Exam - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58426 Biomarker specimen collected aliquot number

The number of aliquots made for specimens collected from the participant/subject for biomarkers

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.