CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 2638
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56287 NIH Toolbox Cognitive – Cognition fluid composite national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery

 Supplemental NIH Toolbox Cognitive Battery False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56635 Imaging minimum inter epoch time value

The minimum amount of time between trials

 Supplemental-Highly Recommended Magnetoencephalography (MEG) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58014 Eyes fundoscopic assessment status

The status of eyes fundoscopic assessment in physical examination

 Supplemental-Highly Recommended Physical Examination False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57124 AT/VO2 max ex time

Ex Time (in minutes) taken for AT/VO2 max

 Supplemental Cardiopulmonary Exercise Testing (CPET) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C19500 Assessment performed date

The date of assessment of the examination being performed

 Exploratory Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57768 Blood immune system condition diagnosis type

Any type of blood and/or immune system condition(s) that the subject has ever been diagnosed with

 Exploratory Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C18690 Imaging analysis software other text

The free-text field related to 'Imaging analysis software name' specifying other text. Name of the software used for data processing or analysis of the imaging study

 Supplemental-Highly Recommended Diffusion Tensor Imaging (DTI) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58559 Imaging adverse event radiopharmaceutical relate indicator

Indicator as to whether or not any adverse events related to the radiopharmaceutical used for the imaging scan occurred

 Supplemental-Highly Recommended Positron Emission Tomography (PET) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C55939 California Verbal Learning Test - Second Edition (CVLT-II) - Subjective clustering bidirectional chance adjusted score

Score of the subjective clustering bidirectional chance adjusted, as part of the California Verbal Learning Test (CVLT-II)

 Supplemental-Highly Recommended California Verbal Learning Test - Second Edition (CVLT-II) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58403 Medication baseline modification before study start indicator

Indicator related whether there were modifications to baseline medications prior to study start

 Supplemental-Highly Recommended Biomarker-Related Sample and Collection Questions False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57373 Medical history eye condition other text

Text describing another eye condition the subject has a medical history of

 Exploratory Medical History - Immune Module False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52781 Woodcock Johnson III (WJ-III) - Handwriting size comments text

Comments pertaining to handwriting size on the handwriting elements checklist as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54538 Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) - Stimulant medication history indicate code

Code indicating the history of the subject/particpant's treatment with stimulant medication, as part of the Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL)

 Exploratory Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57919 Reflex summary assessment status

The status of summary reflexes assessment in neurological examination

 Exploratory Neurological Exam False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57236 Decreased sexual interest 6 month status

The status of the severity of the subject's decreased sexual interest in the past 6 months

 Supplemental Neuroendocrine/Hypothalamic Symptoms False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58323 Have children indicator

Indicator of subject having children

 Supplemental Demographics False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52714 Woodcock Johnson III (WJ-III) - Reading fluency total points value

Total points value calculated from subtracting WJ3ReadingFluencyIncorrectCt from WJ3ReadingFluencyCorrect Count as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Exploratory Woodcock-Johnson III Test of Cognitive Abilities True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C55797 Test of Premorbid Functioning - Simple demographic based IQ equivalent estimate value

The simple estimate of the subject's IQ, based on a demographic equivalent score, as part of the Test of Premorbid Functioning

 Supplemental Test of Premorbid Functioning False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58325 Past current rheumatological illness type

Any type of past and current rheumatological illnesses that the subject/participant has ever been diagnosed with

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58062 Joints muscles feet assessment status

The status of joints muscles feet assessment in physical examination

 Supplemental-Highly Recommended Physical Examination False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57164 LH test result unit of measure

The unit used to measure the results for the LH test

 Supplemental Neuroendocrine Labs False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58268 Windmill ever live within 300 meter year range

Range of years during which the subject/participant lived within 300 meters of a windmill

 Exploratory Exposure History False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C21687 Beighton Score - Motion knee hyperextend score

Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score

 Supplemental-Highly Recommended Beighton Score False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58158 Data time series 2 second EEG windowing function type

Type of 2-second EEG segment windowing function time-series data exported

 Supplemental-Highly Recommended Low Resolution Electromagnetic Tomography (LORETA) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56295 NIH Toolbox Cognitive – Cognition total composition raw score

The total composite raw score for the Cognition field of the NIH Toolbox Cognitive Battery

 Supplemental NIH Toolbox Cognitive Battery False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 26 - 50 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.