CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 2638
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54211 Woodcock Johnson III (WJ-III) - Story recall delayed story three points count

Count of the number of correct test subject responses from story recall - delayed story 3 test as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57360 Activity affect by fatigue status

Status of how an individual's activities have been affected by tiredness, weariness or fatigue

Exploratory Physical Functioning and Activities of Daily Living Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58334 Fatigue stand duration scale

Scale for the duration of standing time before fatigue occurs

Exploratory Modified Orthostatic Symptom Grading Scale Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C55973 California Verbal Learning Test - Second Edition (CVLT-II) - Forced choice recognition hit raw score

Raw score for forced choice recognition hits of the long delay trial, as part of the California Verbal Learning Test (CVLT-II)

Supplemental-Highly Recommended California Verbal Learning Test - Second Edition (CVLT-II) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56240 Predicted carbon dioxide ventilatory equivalent value

The subject's predicted ventilatory equivalent for carbon dioxide

Supplemental Cardiopulmonary Exercise Testing (CPET) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52813 Woodcock Johnson III (WJ-III) - Story recall-delayed test date

The date when the story recall-delayed test was performed as part of the Woodcock Johnson III (WJ-III) tests of achievement

Exploratory Woodcock-Johnson III Test of Cognitive Abilities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58211 Laboratory test Cytomegalovirus sample type

Element related to the sample type used to test for Cytomegalovirus (CMV)

Supplemental Laboratory Tests - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57088 DePaul Symptom Questionnaire (DSQ) - Wake-up early severity scale

Scale related to the severity of the individual waking-up early in the morning (e.g. 3 am), as part of the DePaul Symptom Questionnaire (DSQ)

Core Sleep Questions For All Studies Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57192 Prolactin test result unit of measure

The unit used to measure the results of the Prolactin test

Supplemental Neuroendocrine Labs Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53778 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 14 text

The word used for Word Reading item 14, as part of Wide Range Achievement Test 4 (WRAT-4)

Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56200 Oxygen maximum uptake versus predicted ventilation BTPS percentage value

The subject's ventilation at BTPS (body temperature and pressure saturated) at maximum oxygen uptake compared to the predicted ventilation at BTPS, calculated as a percent

Supplemental Cardiopulmonary Exercise Testing (CPET) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56295 NIH Toolbox Cognitive – Cognition total composition raw score

The total composite raw score for the Cognition field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58550 Imaging acquisition plane other text

The free-text field related to 'Imaging acquisition plan type' specifying other text. The type of anatomical plane used in acquisition of the imaging scan

Supplemental-Highly Recommended Positron Emission Tomography (PET) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57894 Cranial nerve extra ocular muscle assessment status

The status of extra ocular muscles (eye movements) cranial nerves assessment in neurological examination

Supplemental-Highly Recommended Physical Examination Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C21866 Beck Anxiety Inventory (BAI) - Unsteady bother scale

Scale that represents how much the participant has been bothered by feeling unsteady as part of the Beck Anxiety Inventory (BAI)

Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57359 ROME I criteria abdominal pain discomfort type

The type of abdominal pain or discomfort that the subject might be experiencing in relation to the ROME I criteria for Irritable Bowel Syndrome

Supplemental-Highly Recommended Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56713 Imaging magnetoencephalography spectral pattern other text

Text describing another spectral pattern used for analysis of the magnetoencephalography (MEG) data

Supplemental-Highly Recommended Magnetoencephalography (MEG) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53738 Wide Range Achievement Test 4 (WRAT-4) - Letter 6 score

Score for Letter Recognition item 6, as a part of the Wide Range Achievement Test 4 (WRAT-4)

Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57910 Muscle proximal muscle strength assessment status

The status of proximal muscle strength muscles assessment in neurological examination

Supplemental Neurological Exam Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57971 Laboratory procedure erythrocyte sedimentary rate value

Value of erythrocyte sedimentary rate

Supplemental Laboratory Test Results Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C21689 Beighton Score - Total score

Total score as related to the Beighton Score

Supplemental-Highly Recommended Beighton Score Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57593 Current exercise type text

Text field related to the type of exercise the individual is currently engaging in

Exploratory Physical Functioning and Activities of Daily Living Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58390 Medication symptom status

Status of symptoms with medication use

Supplemental-Highly Recommended Medication and Other Treatments Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56671 Imaging magnetoencephalography bad epoch identified indicator

The indicator relating to whether any bad epochs (trials) were identified during MEG preprocessing

Supplemental-Highly Recommended Magnetoencephalography (MEG) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53923 California Verbal Learning Test Childrens version (CVLT-C) - List B recall item response order number

List B item response number, as part of California Verbal Learning Test Children's version (CVLT-C)

Supplemental-Highly Recommended California Verbal Learning Test - Children (CVLT-C) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.