CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C57363	ROME II criteria type	The type of condition that is required for the ROME II criteria for Irritable Bowel Syndrome to be met.	Supplemental-Highly Recommended	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56716	Imaging magnetoencephalography spectral magnitude type	The type of spectral magnitude used for the analysis of the magnetoencephalography (MEG) data.	Supplemental-Highly Recommended	Magnetoencephalography (MEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58086	Family health problems history relative type	Field where participant/subject can indicate which family member(s) has a history of the listed health problem conditions.	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53741	Wide Range Achievement Test 4 (WRAT-4) - Letter 10 text	The letter used for Letter Recognition item 10, as part of Wide Range Achievement Test 4 (WRAT-4).	Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C21917	Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward longest string score	Score is longest string that was repeated exactly in reverse order, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest	Supplemental	Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57913	Reflex bicep assessment status	The status of biceps reflexes assessment in neurological examination.	Supplemental	Neurological Exam	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57974	Laboratory procedure glucose value	Value of glucose.	Supplemental	Laboratory Test Results	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57597	Exercise minute average value	Value of how many minutes of exercise is completed on average by the individual	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56674	Imaging magnetoencephalography artifact removal method indicator	The indicator related to whether there was a method for artifact removal during magnetoencephalography (MEG).	Supplemental-Highly Recommended	Magnetoencephalography (MEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53926	California Verbal Learning Test Childrens version (CVLT-C) - List B, trial total intrusions count	Total count of intrusions recited by the subject for List B for a given trial (Total I), as part of California Verbal Learning Test Children's version (CVLT-C).	Supplemental-Highly Recommended	California Verbal Learning Test - Children (CVLT-C)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56444	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 expected score	The Full Scale IQ score for all four subtests that the subject was expected to receive, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II).	Exploratory	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54222	Woodcock Johnson III (WJ-III) ? Story recall delayed story nine points count	Count of the number of correct test subject responses from story recall – delayed story 9 test as part of the Woodcock Johnson III (WJ-III) tests of achievement.	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57462	Daily activity light bad day duration	Duration of how long an individual spends doing light activities (example, use computer at desk, microwave a meal, pay bills) (in hours) on a bad day	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58369	Blurry vision frequency scale	Frequency of blurry vision scale	Exploratory	Modified Orthostatic Symptom Grading Scale	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C55985	California Verbal Learning Test- Second Edition (CVLT-II) - Total recognition discriminability standard score	Total standard score for recognition discriminability of the long delay trials, as part of the California Verbal Learning Test (CVLT-II).	Supplemental-Highly Recommended	California Verbal Learning Test - Second Edition (CVLT-II)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56251	Oxygen maximum uptake partial pressure end tidal carbon dioxide measurement	The measurement of the subject's partial pressure of end-tidal carbon dioxide at maximum oxygen uptake.	Supplemental	Cardiopulmonary Exercise Testing (CPET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54152	Woodcock Johnson III (WJ-III) ? Understanding directions score	Score from the understanding directions battery as part of the Woodcock Johnson III (WJ-III) tests of achievement.	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58225	Laboratory test Coxsackie B virus sample specify text	Free-text field to specify other type of sample used to test for Coxsackie B virus (CBV)	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57107	Medication taken neurologic psychiatric affect sleep indicator	Indicator of if the subject has taken any neurologic or psychiatric medication that is known to affect sleep	Supplemental-Highly Recommended	Sleep Focused Study Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53789	Wide Range Achievement Test 4 (WRAT-4) - Word reading item 20 score	The score for Word Reading item 20, as part of Wide Range Achievement Test 4 (WRAT-4).	Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58519	Tender point pair second rib type	The type of second rib paired tender point in pain assessment.	Supplemental	Pain Assessment	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56211	Anaerobic threshold maximum oxygen uptake percentage value	The subject's anaerobic threshold as a percentage of his/her maximum oxygen uptake.	Supplemental	Cardiopulmonary Exercise Testing (CPET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52990	Automated Neuropsychological Assessment Metrics (ANAM) - Composite score match sample mean reaction time score	Count related to the mean reaction time T score of the matching to sample composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).	Supplemental	Automated Neuropsychological Assessment Metrics (ANAM)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57906	Muscle tone assessment status	The status of tone muscles assessment in neurological examination.	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54503	Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL) - Section complete name	Name(s) of the sections completed, as part of the Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL)	Exploratory	Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.