CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2758-C57967	C57967	Abnormal result date	Date of abnormal result	Supplemental	Laboratory Test Results	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57557	C57557	Spent upright activity hours day 2 before test duration	Duration of test time spent in upright activities (in chair or standing) (in hours) on day 2 before recording date start	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2751-C58129	C58129	Other treatments reason type	Type of reason for other treatments given to subject/participant	Supplemental-Highly Recommended	Medication and Other Treatments	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2726-C53919	C53919	California Verbal Learning Test Childrens version (CVLT-C) - Serial position recall region type	Type of region (primacy region, middle region, or recency region), as part of California Verbal Learning Test Children's version (CVLT-C)	Supplemental-Highly Recommended	California Verbal Learning Test - Children (CVLT-C)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2744-C56435	C56435	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 percentile rank value	The percentile rank the subject placed in with respect to Full Scale IQ for all four subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Exploratory	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2721-C54215	C54215	Woodcock Johnson III (WJ-III) - Story recall delayed stories seven and eight total points count	Count of the total number of correct test subject responses from story recall - delayed stories seven and eight tests as part of the Woodcock Johnson III (WJ-III) tests of achievement	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57371	C57371	Tired month duration	Duration of how long and individual has been tired (in months)	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2719-C58338	C58338	Lightheadedness activity interfere scale	Scale of lightheadedness interference with daily living activities	Exploratory	Modified Orthostatic Symptom Grading Scale	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2723-C55978	C55978	California Verbal Learning Test - Second Edition (CVLT-II) - Total false positive standard score	Total standard score for false-positives produced by the subject, as part of the California Verbal Learning Test (CVLT-II)	Supplemental-Highly Recommended	California Verbal Learning Test - Second Edition (CVLT-II)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2709-C56244	C56244	Anaerobic threshold oxygen ventilatory equivalent value	The subject's ventilatory equivalent for oxygen at anaerobic threshold	Supplemental	Cardiopulmonary Exercise Testing (CPET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2721-C52817	C52817	Woodcock Johnson III (WJ-III) - Writing fluency total time	Total time of writing fluency calculated by subtracting WJ3WritingFluencyStartTime from WJ3WritingFluencyEndTime as part of the Woodcock Johnson III (WJ-III) tests of achievement	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2707-C19247	C19247	Subject ID	Subject identification ID	Supplemental-Highly Recommended	Sleep Focused Study Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2765-C58215	C58215	Laboratory test Chlamydia pneumoniae sample type	Element related to the sample type used to test for Chlamydia pneumoniae	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2699-C53782	C53782	Wide Range Achievement Test 4 (WRAT-4) - Word reading item 16 text	The word used for Word Reading item 16, as part of Wide Range Achievement Test 4 (WRAT-4)	Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2709-C56204	C56204	Predicted maximum oxygen uptake kilogram measurement	The predicted measurement of the subject's maximum oxygen uptake using kilograms	Supplemental	Cardiopulmonary Exercise Testing (CPET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2791-C58394	C58394	Position held minute text	The time in minutes a position is held	Supplemental-Highly Recommended	Passive Standing Test Protocol	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2572-C53663	C53663	Kiddie Schedule for Affective Disorders Present and Lifetime (KSADS-PL) - Clinic name	The name of the clinic, as part of the Kiddie Schedule for Affective Disorders Present and Lifetime version (KSADS-PL)	Exploratory	Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C57898	C57898	Cranial nerve facial expression assessment status	The status of facial expression cranial nerves assessment in neurological examination	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2704-C20423	C20423	Beck Depression Inventory II (BDI-II) - Past failure scale	Scale identifying level of past failure, as part of the Beck Depression Inventory II (BDI-II)	Supplemental-Highly Recommended	Beck Depression Inventory II (BDI-II)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2765-C58174	C58174	Laboratory test immune name	Name representing the lab test performed on body fluid(s). Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2755-C56717	C56717	Imaging magnetoencephalography spectral magnitude other text	Text describing another spectral magnitude that was used for the analysis of the magnetoencephalography (MEG) data	Supplemental-Highly Recommended	Magnetoencephalography (MEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2699-C53742	C53742	Wide Range Achievement Test 4 (WRAT-4) - Letter 10 score	Score for Letter Recognition item 10, as a part of the Wide Range Achievement Test 4 (WRAT-4)	Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2760-C58087	C58087	Family health problems blood disorders history type	Any type of blood disorder(s) health problems that the subject's/participant's family relative has ever been diagnosed with	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2747-C57914	C57914	Reflex wrist assessment status	The status of wrist reflexes assessment in neurological examination	Supplemental	Neurological Exam	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2758-C57975	C57975	Laboratory procedure total protein value	Value of total protein	Supplemental	Laboratory Test Results	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.