CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2786-C58381	C58381	Applying for disability benefits indicator	Indicator of whether the participant/subject is applying for disability benefits	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58382	C58382	Receiving disability for ME/CFS another condition both indicator	Indicator if the participant/subject is receiving disability for ME/CFS or for another condition	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2763-C58383	C58383	Imaging interest region voxel select method type	Type of method used to select the voxels related to the region of interest	Supplemental-Highly Recommended	Low Resolution Electromagnetic Tomography (LORETA)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58384	C58384	Past apply disability benefits turned down indicator	Indicator of whether the participant/subject has been turned down in the past for disability benefits	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58385	C58385	Other current situation type text	Specifies other current situation	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58386	C58386	Other disability benefits type text	Specifies other disability benefits	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58387	C58387	Other description of highest level job type text	Specifies other highest level job	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58388	C58388	Other current or last job type text	Specifies other current or last job	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2751-C58389	C58389	Medication actual use schedule frequency	Actual frequency of use of medication	Supplemental-Highly Recommended	Medication and Other Treatments	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2751-C58390	C58390	Medication symptom status	Status of symptoms with medication use	Supplemental-Highly Recommended	Medication and Other Treatments	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58391	C58391	Other condition disability type text	Specifies other condition	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58392	C58392	Other times turned down count	Specifies number of other times turned down for disability benefits	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2791-C58394	C58394	Position held minute text	The time in minutes a position is held	Supplemental-Highly Recommended	Passive Standing Test Protocol	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58393	C58393	Highest grade degree completed type	Indicates the highest grade or degree the subject/participant has completed	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2751-C58395	C58395	Other treatments reason type text	Text specifying other subject/participant treatments	Supplemental-Highly Recommended	Medication and Other Treatments	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C58433	C58433	Vertical activity mean hour day count	Count of the mean hours per day the individual spends in activites requiring him or her to be in a vertical position	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C58434	C58434	Horizontal activity mean hour day count	Count of the mean hours per day the individual spends in activites requiring him or her to be in a horizontal position	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2707-C58438	C58438	Prior to study medication stopped duration	Yes or other instructions given indicating the duration of time prior to the sleep study that that subject stopped medications that could affect sleep	Supplemental-Highly Recommended	Sleep Focused Study Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2707-C58439	C58439	Medication stopped other instructions given specify text	Other instructions given to subject indicating if medications that could affect sleep were stopped prior to sleep study	Supplemental-Highly Recommended	Sleep Focused Study Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2707-C58440	C58440	Objective measure taken what measure text	Text indicating what objective measures were taken	Supplemental	Sleep Focused Study Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2707-C58441	C58441	Objective measure method of measurement text	Text indicating objective measures method of measurement	Supplemental	Sleep Focused Study Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2707-C58442	C58442	Objective measure when performed text	Text indicating when the objective measures were performed	Supplemental	Sleep Focused Study Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2707-C58443	C58443	Objective measure describe equipment used text	Text describing what objective measures equipment used	Supplemental	Sleep Focused Study Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2708-C58444	C58444	Polysomnography sleep stage grade	Grade of sleep stage measurement being reported	Supplemental	Polysomnography (PSG) for ME/CFS	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2708-C58445	C58445	Polysomnography sleep stage heart rate results value	Value of sleep stages heart rate results	Supplemental	Polysomnography (PSG) for ME/CFS	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.