CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 2638
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11914 Modified Fatigue Impact Scale (MFIS) - pace physical activity score

Scale for having paced self in the physical activities as part of Modified Fatigue Impact Scale form

 Exploratory Modified Fatigue Impact Scale (MFIS) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C11654 Checklist Individual Strength (CIS20R) - activity total score

Sum of items 7, 10, 17 (range 3-21). Part of the Checklist Individual Strength (CIS20R) questionnaire

 Supplemental Checklist for Individual Strength - Fatigue (CIS) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58545 Imaging matrix size axis 1 measurement

Measurement, in voxels, of the axis 1 dimension of the matrix within the anatomy of interest

 Supplemental-Highly Recommended Positron Emission Tomography (PET) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C08535 36-item Short Form Health Survey (SF-36) - Expect worse health score

Score of how true or false surveyee perceived the statement: I expect my health to get worse, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C11922 Modified Fatigue Impact Scale (MFIS) - physical uncomfort score

Scale for having been physically uncomfortable as part of Modified Fatigue Impact Scale form

 Exploratory Modified Fatigue Impact Scale (MFIS) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09640 Fatigue Severity Scale (FSS) - exercise fatigue scale

Scale used to describe the extent to which exercise brought on the patient's fatigue in the past week, as part of the Fatigue Severity Scale (FSS)

 Supplemental-Highly Recommended Fatigue Severity Scale (FSS) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C11930 Modified Fatigue Impact Scale (MFIS) - physical sub score

Sum of MFIS Physical items (range: 0-36)

 Exploratory Modified Fatigue Impact Scale (MFIS) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C10477 Fatigue Severity Scale (FSS) - total score

Score calculated by adding all scale values, as part of the Fatigue Severity Scale (FSS)

 Supplemental-Highly Recommended Fatigue Severity Scale (FSS) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C17828 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble maintaining long physical effort scale

Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Exploratory Modified Fatigue Impact Scale (MFIS) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C17858 Imaging voxel size axis 2 measurement

Measurement, in millimeters, of the axis 2 dimension of the voxel within the anatomy of interest

 Supplemental-Highly Recommended Positron Emission Tomography (PET) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C11638 Checklist Individual Strength (CIS20R) - task focus ability scale

Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: When I am doing something, I can keep my thoughts on it. Part of the Checklist Individual Strength (CIS20R) questionnaire

 Supplemental Checklist for Individual Strength - Fatigue (CIS) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C08519 36-item Short Form Health Survey (SF-36) - Work not carefully emotional problems indicator

Indicator for surveyee-reported doing work or other activities not as carefully as usual as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C11646 Checklist Individual Strength (CIS20R) - tire easily scale

Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: I tire easily. Part of the Checklist Individual Strength (CIS20R) questionnaire

 Supplemental Checklist for Individual Strength - Fatigue (CIS) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C10858 Grip strength target value

Value of the target grip strength for the grip strength fatigue trial being recorded

 Exploratory Grip Strength Fatigue False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57933 Imaging parallel acquisition acceleration factor value

Value of the acceleration factor for the parallel acquisition used, if any, in the MRI sequence being reported

 Supplemental-Highly Recommended Diffusion Tensor Imaging (DTI) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C11915 Modified Fatigue Impact Scale (MFIS) - less motivate physical effort score

Scale for having been less motivated to do anything that requires physical effort as part of Modified Fatigue Impact Scale form

 Exploratory Modified Fatigue Impact Scale (MFIS) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58546 Imaging matrix size axis 2 measurement

Measurement, in voxels, of the axis 2 dimension of the matrix within the anatomy of interest

 Supplemental-Highly Recommended Positron Emission Tomography (PET) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C08536 36-item Short Form Health Survey (SF-36) - Excellent health score

Score of how true or false surveyee perceived the statement: My health is excellent, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C11923 Modified Fatigue Impact Scale (MFIS) - trouble finish task require think score

Scale for having had trouble finishing tasks that require thinking as part of Modified Fatigue Impact Scale form

 Exploratory Modified Fatigue Impact Scale (MFIS) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09641 Fatigue Severity Scale (FSS) - easy fatigue scale

Scale used to describe the extent to which the patient was easily fatigued in the past week, as part of the Fatigue Severity Scale (FSS)

 Supplemental-Highly Recommended Fatigue Severity Scale (FSS) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C11931 Modified Fatigue Impact Scale (MFIS) - cognitive score

Sum of MFIS Cognitive items (range: 0-40)

 Exploratory Modified Fatigue Impact Scale (MFIS) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C11631 Checklist Individual Strength (CIS20R) - tired feeling scale

Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: I feel tired. Part of the Checklist Individual Strength (CIS20R) questionnaire

 Supplemental Checklist for Individual Strength - Fatigue (CIS) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C17859 Imaging voxel size axis 3 measurement

Measurement, in millimeters, of the axis 3 dimension of the voxel within the anatomy of interest

 Supplemental-Highly Recommended Positron Emission Tomography (PET) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C11639 Checklist Individual Strength (CIS20R) - powerless feeling scale

Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: I feel powerless. Part of the Checklist Individual Strength (CIS20R) questionnaire

 Supplemental Checklist for Individual Strength - Fatigue (CIS) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C11647 Checklist Individual Strength (CIS20R) - done little activity scale

Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: I get little done. Part of the Checklist Individual Strength (CIS20R) questionnaire

 Supplemental Checklist for Individual Strength - Fatigue (CIS) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 201 - 225 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.