CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C19020	Imaging stimulation other text	The free-text field related to 'Imaging stimulation type' specifying other text. Type of stimulation	Supplemental-Highly Recommended	Functional Magnetic Resonance Imaging (fMRI)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C14655	Functional Disability Inventory (FDI) - child form sleep scale	The scale of the child's or adolescent's ability to sleep and stay asleep at night when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C15636	Imaging comparison P-values number	P-values used for comparisons between cohorts or the group averages	Supplemental-Highly Recommended	Functional Magnetic Resonance Imaging (fMRI)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C14669	Functional Disability Inventory (FDI) - parent form child difficulty shopping scale	Scale determining level of physical trouble or difficulty child experiences going shopping, as a part of the Functional Disability (FDI) Parent Form	Supplemental	Functional Disability Inventory - Parent Form (FDI)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C15580	Imaging acquisition type	Type of imaging acquisition	Supplemental-Highly Recommended	Functional Magnetic Resonance Imaging (fMRI)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C14663	Functional Disability Inventory (FDI) - parent form child difficulty school all day scale	Scale determining level of physical trouble or difficulty child experiences when being at school all day, as a part of the Functional Disability (FDI) Parent Form	Supplemental	Functional Disability Inventory - Parent Form (FDI)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C14670	Functional Disability Inventory (FDI) - parent form child difficulty sleep scale	Scale determining level of physical trouble or difficulty child experiences getting to sleep at night and staying asleep, as part of the Functional Disability (FDI) Parent Form	Supplemental	Functional Disability Inventory - Parent Form (FDI)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C18014	Imaging analysis assumptions text	Description of the assumptions and settings for the first-level time series analysis	Supplemental-Highly Recommended	Functional Magnetic Resonance Imaging (fMRI)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C15639	Imaging coordinate of significant cluster text	Text representing the coordinate of significant clusters	Supplemental-Highly Recommended	Magnetoencephalography (MEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C14648	Functional Disability Inventory (FDI) - child school all day scale	The scale of the child's or adolescent's ability to staying at school when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58413	Serum plasma sample storage temperature value	Storage temperature used for serum and plasma samples	Supplemental-Highly Recommended	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	Laboratory Test Results	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C15603	Imaging randomization technique type	The type of randomization technique used during stimulation	Supplemental-Highly Recommended	Functional Magnetic Resonance Imaging (fMRI)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C15637	Imaging preprocessing method performed type	Imaging preprocessing method(s) performed	Supplemental-Highly Recommended	Functional Magnetic Resonance Imaging (fMRI)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C15626	Imaging nonstimulation eye assessment indicator	Participant's/subject's eyes status	Supplemental-Highly Recommended	Quantitative Electroencephalography (qEEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C15910	Assessment date and time	The date of participant's injury	Supplemental-Highly Recommended	Stroop Test	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C15585	Imaging stimulation type	Type of stimulation	Supplemental-Highly Recommended	Functional Magnetic Resonance Imaging (fMRI)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C14656	Functional Disability Inventory (FDI) - parent form child difficulty bathroom walk scale	Scale determining level of physical trouble or difficulty child experiences when walking to the bathroom, as a part of the Functional Disability (FDI) Parent Form	Supplemental	Functional Disability Inventory - Parent Form (FDI)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C14664	Functional Disability Inventory (FDI) - parent form child difficulty sports scale	Scale determining level of physical trouble or difficulty child experiences doing the activities in gym class, as a part of the Functional Disability (FDI) Parent Form	Supplemental	Functional Disability Inventory - Parent Form (FDI)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C15638	Imaging multiple comparisons method text	Type of method(s) chosen for correcting for multiple comparisons	Supplemental-Highly Recommended	Functional Magnetic Resonance Imaging (fMRI)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C14641	Functional Disability Inventory (FDI) - child form walk bathroom scale	The scale of the child's or adolescent's ability to walk to the bathroom when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C18018	Imaging rationale threshold results text	Rationale for thresholds	Supplemental-Highly Recommended	Functional Magnetic Resonance Imaging (fMRI)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C15640	Imaging corrective analysis P-values number	P-values used for any corrective analysis	Supplemental-Highly Recommended	Magnetoencephalography (MEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C14649	Functional Disability Inventory (FDI) - child sports scale	The scale of the child's or adolescent's ability to performing activites in gym class when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58414	Blood sample peripheral blood mononuclear cell isolation method type	Isolation method used for blood peripheral blood mononuclear cells	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.