CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2753-C10592	C10592	Imaging flow compensation indicator	Indicator of whether flow compensation was used in imaging acquisition	Supplemental-Highly Recommended	Magnetic Resonance Imaging (MRI)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2748-C10594	C10594	Imaging parallel acquisition used indicator	Indicator of whether a parallel acquisition method is used in imaging acquisition	Supplemental-Highly Recommended	Diffusion Tensor Imaging (DTI)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2709-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Supplemental	Cardiopulmonary Exercise Testing (CPET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2744-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Exploratory	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2713-C01702	C01702	Pregnancy test date and time	The date (and time if applicable and known) when the pregnancy test was performed	Supplemental	Neuroendocrine Labs	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2757-C10945	C10945	Imaging voxel volume measurement	Volume of the voxel calculated by multiplying the three size measurements	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2754-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental-Highly Recommended	Positron Emission Tomography (PET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2747-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Exploratory	Neurological Exam	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2753-C10593	C10593	Imaging fat signal suppressed indicator	Indicator as to whether or not fat signal was suppressed in imaging acquisition	Supplemental-Highly Recommended	Magnetic Resonance Imaging (MRI)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2799-C10171	C10171	Trial number	The number representing the sequence for any repeated measure test or assessment when it is performed multiple times	Exploratory	Grip Strength Fatigue	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2765-C58176	C58176	Laboratory test immunoglobulin positive indicator	The indicator relating to whether the immunoglobulin laboratory test result was positive	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2765-C58184	C58184	Laboratory test lipopolyaccharide negative source specify text	Free-text field to specify the type of source tested which yielded negative laboratory test results	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2765-C58177	C58177	Laboratory test tick borne disease immunoglobulin M positive text	Free-text field to specify which tick-borne disease IgM laboratory test yielded positive results	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2765-C58185	C58185	Laboratory test lipopolyaccharide immunoglobulin positive specify text	Free-text field to specify which immunoglobulin tested yielded positive laboratory test results	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2765-C58401	C58401	Laboratory test infectious disease positive result indicator	The indicator relating to whether the infectious disease laboratory test result was positive	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2755-C18524	C18524	Imaging magnetoencephalography evoked field acquisition sedation type	Indicates type of sedative drugs were used to facilitate magnetoencephalography (MEG) acquisition	Supplemental-Highly Recommended	Magnetoencephalography (MEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2765-C58178	C58178	Laboratory test tick borne disease immunoglobulin M negative text	Free-text field to specify which tick-borne disease IgM laboratory test yielded negative results	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2765-C58186	C58186	Laboratory test lipopolyaccharide immunoglobulin negative specify text	Free-text field to specify which immunoglobulin tested yielded negative laboratory test results	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2765-C58240	C58240	Laboratory test parvovirus IgG positive strain text	Free-text field to specify which strain of parvovirus yielded positive IgG laboratory test results	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2765-C58179	C58179	Laboratory test parvovirus IgM positive strain text	Free-text field to specify which strain of parvovirus yielded positive IgM laboratory test results	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2765-C58187	C58187	Laboratory test tick borne disease immunoglobulin G negative text	Free-text field to specify which tick-borne disease IgG laboratory test yielded negative results	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2765-C58241	C58241	Laboratory test parvovirus IgG negative strain text	Free-text field to specify which strain of parvovirus yielded negative IgG laboratory test results	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2765-C58180	C58180	Laboratory test parvovirus IgM negative strain text	Free-text field to specify which strain of parvovirus yielded negative IgM laboratory test results	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2765-C58188	C58188	Laboratory test tick borne disease immunoglobulin G positive text	Free-text field to specify which tick-borne disease IgG laboratory test yielded positive results	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.