CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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2638 results.

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Operations

Selected 13 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2752-C57590	C57590	Lung condition inactive resolved type	Any lung conditions the subject has had that are no longer active or are considered resolved or cured	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57595	C57595	Gut condition diagnosis type	Any gut conditions the subject has ever been diagnosed with	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57417	C57417	Ear nose throat condition diagnosed type	Any ear, nose, and/or throat condition that the subject has ever been diagnosed with	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2748-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental-Highly Recommended	Diffusion Tensor Imaging (DTI)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2753-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental-Highly Recommended	Magnetic Resonance Imaging (MRI)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58463	C58463	Medication adjusted frequency	Adjusted frequency of medication taken per administration prior to adjustments	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2751-C58389	C58389	Medication actual use schedule frequency	Actual frequency of use of medication	Supplemental-Highly Recommended	Medication and Other Treatments	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2723-C55979	C55979	California Verbal Learning Test - Second Edition (CVLT-II) - Across trial consistency score	Across trials consistency score, as part of the California Verbal Learning Test (CVLT-II)	Supplemental-Highly Recommended	California Verbal Learning Test - Second Edition (CVLT-II)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2749-C14550	C14550	EEG video indicator	A test involving simultaneous electroencephalogram (EEG) and video recording	Supplemental-Highly Recommended	Non-Quantitative Electroencephalography (EEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2762-C14550	C14550	EEG video indicator	A test involving simultaneous electroencephalogram (EEG) and video recording	Supplemental-Highly Recommended	Quantitative Electroencephalography (qEEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2755-C14047	C14047	Magnetoencephalography/ electroencephalography source analysis beamformer type	A signal processing technique used for determining location of electric activity that can be accomplished via different approaches	Supplemental-Highly Recommended	Magnetoencephalography (MEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C14428	C14428	Waist circumference measurement	A measurement of the body circumference at the level of the waist. It should be the smallest circumference of the natural waist, usually just above the belly button	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C14458	C14458	Hip circumference measurement	A measurement of the body circumference at the level of the hip. It should be the hip circumference at its widest part of the buttocks or hip	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

2638 results.

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.