CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 2638
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C55009 Specimen storage temperature value

The temperature value for the specimen being stored

Supplemental-Highly Recommended Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58425 Saliva collection oral hygiene use text

Describe oral hygiene used in saliva collection

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56114 CSF specimen red blood cell count

The number of red blood cells (RBCs) counted in the participant's CSF specimen

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58464 Blood collection tube lysing stabilizing media text

Free-text field to specify lysing/stabilizing media used in blood collection tube

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57921 Blood collected volume value

Volume of blood collected

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57929 Saliva collection oral hygiene use indicator

Indicate whether oral hygiene used in saliva collection

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58409 Blood collection tube catalog number

Catalog number of blood collection tube

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Supplemental-Highly Recommended Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58417 Ficoll catalog number

Ficoll catalog number

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56102 Biomarker specimen type

The type of specimen or specimens collected from the participant/subject for biomarkers

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58426 Biomarker specimen collected aliquot number

The number of aliquots made for specimens collected from the participant/subject for biomarkers

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56117 CSF specimen total protein value

The value representing the total protein found in the participant's CSF specimen

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58465 Blood collection tube lysing stabilizing media concentration value

Free-text field to specify concentration of lysing/stabilizing media used in blood collection tube

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57922 Blood collection system type

Indicate type of system used to collect blood

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57930 Saliva collection oral hygiene use time

Time of oral hygiene use in saliva collection

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58410 Blood collection tube sterile indicator

Indicator related to whether blood collection tube is sterile

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C10564 Lab blood specimen fast prior indicator

Indicator of whether the participant was fasting prior to collection of blood lab specimen

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58418 Ficoll volume ratio used value

Ficoll volume ratio used

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09579 Brief Pain Inventory (BPI) - average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form

Supplemental-Highly Recommended Brief Pain Inventory (Short Form) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09587 Brief Pain Inventory (BPI) - pain relations interference scale

Scale assessing how much the pain has interfered with relations with other people, as part of the Brief Pain Inventory (BPI) form

Supplemental-Highly Recommended Brief Pain Inventory (Short Form) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09580 Brief Pain Inventory (BPI) - current pain rating scale

Scale rating the pain the subject is feeling right now, as part of the Brief Pain Inventory (BPI) form

Supplemental-Highly Recommended Brief Pain Inventory (Short Form) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09588 Brief Pain Inventory (BPI) - pain sleep interference scale

Scale assessing how much the pain has interfered with sleep, as part of the Brief Pain Inventory (BPI) form

Supplemental-Highly Recommended Brief Pain Inventory (Short Form) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09581 Brief Pain Inventory (BPI) - treatment received text

Text of treatment/medication subject receives for the pain, as part of the Brief Pain Inventory (BPI) form

Supplemental-Highly Recommended Brief Pain Inventory (Short Form) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09589 Brief Pain Inventory (BPI) - pain enjoyment interference scale

Scale assessing how much the pain has interfered with enjoyment of life, as part of the Brief Pain Inventory (BPI) form

Supplemental-Highly Recommended Brief Pain Inventory (Short Form) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09582 Brief Pain Inventory (BPI) - relief received percentage number

Indicates the relief received from medication use, as part of the Brief Pain Inventory (BPI) form

Supplemental-Highly Recommended Brief Pain Inventory (Short Form) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 126 - 150 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.