CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 2638
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58340 Title description of current or last job text

Free text field to identify participants current or last job title and description

Supplemental-Highly Recommended Adult Employment and Education History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58381 Applying for disability benefits indicator

Indicator of whether the participant/subject is applying for disability benefits

Supplemental-Highly Recommended Adult Employment and Education History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58392 Other times turned down count

Specifies number of other times turned down for disability benefits

Supplemental-Highly Recommended Adult Employment and Education History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58342 Never employed indicator

Indicator of whether the participant has never been employed

Supplemental-Highly Recommended Adult Employment and Education History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58382 Receiving disability for ME/CFS another condition both indicator

Indicator if the participant/subject is receiving disability for ME/CFS or for another condition

Supplemental-Highly Recommended Adult Employment and Education History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58393 Highest grade degree completed type

Indicates the highest grade or degree the subject/participant has completed

Supplemental-Highly Recommended Adult Employment and Education History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58349 Job highest level category

Category that classifies participant/subjects work highest level

Supplemental-Highly Recommended Adult Employment and Education History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58384 Past apply disability benefits turned down indicator

Indicator of whether the participant/subject has been turned down in the past for disability benefits

Supplemental-Highly Recommended Adult Employment and Education History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58362 Work study hour count

Indicator of how many hours per week the participant/subject works or studies

Supplemental-Highly Recommended Adult Employment and Education History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58385 Other current situation type text

Specifies other current situation

Supplemental-Highly Recommended Adult Employment and Education History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58386 Other disability benefits type text

Specifies other disability benefits

Supplemental-Highly Recommended Adult Employment and Education History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58377 Able work full time last date

Date when participant/subjects was last able to work full time

Supplemental-Highly Recommended Adult Employment and Education History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58387 Other description of highest level job type text

Specifies other highest level job

Supplemental-Highly Recommended Adult Employment and Education History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00222 Job classification category

Category that classifies work performed by participant/subject

Supplemental-Highly Recommended Adult Employment and Education History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58378 Disability situation description indicator

Description of participant/subjects disability situation

Supplemental-Highly Recommended Adult Employment and Education History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58388 Other current or last job type text

Specifies other current or last job

Supplemental-Highly Recommended Adult Employment and Education History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58339 Current employment status

Status of participant/subjects current employment status

Supplemental-Highly Recommended Adult Employment and Education History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58380 Disability benefits receiving indicator

Indicator of the type of disability benefits the participant/subject is receiving

Supplemental-Highly Recommended Adult Employment and Education History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58391 Other condition disability type text

Specifies other condition

Supplemental-Highly Recommended Adult Employment and Education History Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C21824 Beck Anxiety Inventory (BAI) - Dizziness bother scale

Scale that represents how much the participant has been bothered by dizziness as part of the Beck Anxiety Inventory (BAI)

Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C21847 Beck Anxiety Inventory (BAI) - Heart pound race bother scale

Scale that represents how much the participant has been bothered by heart pounding/racing as part of the Beck Anxiety Inventory (BAI)

Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C21857 Beck Anxiety Inventory (BAI) - Terrified afraid bother scale

Scale that represents how much the participant has been bothered by feeling terrified or afraid as part of the Beck Anxiety Inventory (BAI)

Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C21825 Beck Anxiety Inventory (BAI) - Face flush bother scale

Scale that represents how much the participant has been bothered by face flushed as part of the Beck Anxiety Inventory (BAI)

Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C21848 Beck Anxiety Inventory (BAI) - Hot cold sweat bother scale

Scale that represents how much the participant has been bothered by hot/cold sweats as part of the Beck Anxiety Inventory (BAI)

Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C21859 Beck Anxiety Inventory (BAI) - Total score

Total score as part of the Beck Anxiety Inventory (BAI)

Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 1 - 25 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.