CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C58378	Disability situation description indicator	Description of participant/subjects disability situation	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58387	Other description of highest level job type text	Specifies other highest level job	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00222	Job classification category	Category that classifies work performed by participant/subject	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58380	Disability benefits receiving indicator	Indicator of the type of disability benefits the participant/subject is receiving	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58388	Other current or last job type text	Specifies other current or last job	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58339	Current employment status	Status of participant/subjects current employment status	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58381	Applying for disability benefits indicator	Indicator of whether the participant/subject is applying for disability benefits	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58391	Other condition disability type text	Specifies other condition	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58340	Title description of current or last job text	Free text field to identify participants current or last job title and description	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58392	Other times turned down count	Specifies number of other times turned down for disability benefits	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58342	Never employed indicator	Indicator of whether the participant has never been employed	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58393	Highest grade degree completed type	Indicates the highest grade or degree the subject/participant has completed	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58382	Receiving disability for ME/CFS another condition both indicator	Indicator if the participant/subject is receiving disability for ME/CFS or for another condition	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58349	Job highest level category	Category that classifies participant/subjects work highest level	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58384	Past apply disability benefits turned down indicator	Indicator of whether the participant/subject has been turned down in the past for disability benefits	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58362	Work study hour count	Indicator of how many hours per week the participant/subject works or studies	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58385	Other current situation type text	Specifies other current situation	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58377	Able work full time last date	Date when participant/subjects was last able to work full time	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58386	Other disability benefits type text	Specifies other disability benefits	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52992	Automated Neuropsychological Assessment Metrics (ANAM) - Composite score match sample mean reaction time standard score	Score related to the mean reaction time standard score of the matching to sample composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM)	Supplemental	Automated Neuropsychological Assessment Metrics (ANAM)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52890	Automated Neuropsychological Assessment Metrics (ANAM) - Composite score simple reaction time mean reaction time standard score	Score related to the mean reaction time standard score of the simple reaction time composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM)	Supplemental	Automated Neuropsychological Assessment Metrics (ANAM)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53001	Automated Neuropsychological Assessment Metrics (ANAM) - Composite score code substitution delay mean reaction time score	Score related to the mean reaction time score of the code substitution - delayed composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM)	Supplemental	Automated Neuropsychological Assessment Metrics (ANAM)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52946	Automated Neuropsychological Assessment Metrics (ANAM) - Composite score code substitution mean reaction time score	Score related to the mean reaction time score of the code substitution composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM)	Supplemental	Automated Neuropsychological Assessment Metrics (ANAM)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52966	Automated Neuropsychological Assessment Metrics (ANAM) - Composite score procedural reaction time incorrect count	Count related to incorrect procedural reaction time composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM)	Supplemental	Automated Neuropsychological Assessment Metrics (ANAM)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52974	Automated Neuropsychological Assessment Metrics (ANAM) - Composite score procedural reaction time standard deviation reaction time score	Score related to the standard deviation reaction time score of the procedural reaction time composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM)	Supplemental	Automated Neuropsychological Assessment Metrics (ANAM)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.