CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2786-C58386	C58386	Other disability benefits type text	Specifies other disability benefits	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58387	C58387	Other description of highest level job type text	Specifies other highest level job	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58377	C58377	Able work full time last date	Date when participant/subjects was last able to work full time	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C00222	C00222	Job classification category	Category that classifies work performed by participant/subject	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58388	C58388	Other current or last job type text	Specifies other current or last job	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58378	C58378	Disability situation description indicator	Description of participant/subjects disability situation	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58339	C58339	Current employment status	Status of participant/subjects current employment status	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58391	C58391	Other condition disability type text	Specifies other condition	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58380	C58380	Disability benefits receiving indicator	Indicator of the type of disability benefits the participant/subject is receiving	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58340	C58340	Title description of current or last job text	Free text field to identify participants current or last job title and description	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58392	C58392	Other times turned down count	Specifies number of other times turned down for disability benefits	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58381	C58381	Applying for disability benefits indicator	Indicator of whether the participant/subject is applying for disability benefits	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58342	C58342	Never employed indicator	Indicator of whether the participant has never been employed	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58393	C58393	Highest grade degree completed type	Indicates the highest grade or degree the subject/participant has completed	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58382	C58382	Receiving disability for ME/CFS another condition both indicator	Indicator if the participant/subject is receiving disability for ME/CFS or for another condition	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58349	C58349	Job highest level category	Category that classifies participant/subjects work highest level	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58384	C58384	Past apply disability benefits turned down indicator	Indicator of whether the participant/subject has been turned down in the past for disability benefits	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58362	C58362	Work study hour count	Indicator of how many hours per week the participant/subject works or studies	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58385	C58385	Other current situation type text	Specifies other current situation	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2703-C21851	C21851	Beck Anxiety Inventory (BAI) - Feel nervous bother scale	Scale that represents how much the participant has been bothered by feeling nervous as part of the Beck Anxiety Inventory (BAI)	Supplemental-Highly Recommended	Beck Anxiety Inventory (BAI)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2703-C21866	C21866	Beck Anxiety Inventory (BAI) - Unsteady bother scale	Scale that represents how much the participant has been bothered by feeling unsteady as part of the Beck Anxiety Inventory (BAI)	Supplemental-Highly Recommended	Beck Anxiety Inventory (BAI)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2703-C21830	C21830	Beck Anxiety Inventory (BAI) - Fear worst bother scale	Scale that represents how much the participant has been bothered by fear of the worst happening as part of the Beck Anxiety Inventory (BAI)	Supplemental-Highly Recommended	Beck Anxiety Inventory (BAI)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2703-C21852	C21852	Beck Anxiety Inventory (BAI) - Numbness bother scale	Scale that represents how much the participant has been bothered by numbness as part of the Beck Anxiety Inventory (BAI)	Supplemental-Highly Recommended	Beck Anxiety Inventory (BAI)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2703-C21868	C21868	Beck Anxiety Inventory (BAI) - Wobbliness bother scale	Scale that represents how much the participant has been bothered by wobbliness in the legs as part of the Beck Anxiety Inventory (BAI)	Supplemental-Highly Recommended	Beck Anxiety Inventory (BAI)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2703-C21811	C21811	Beck Anxiety Inventory (BAI) - Feel choke bother scale	Scale that represents how much the participant has been bothered by feeling of choking as part of the Beck Anxiety Inventory (BAI)	Supplemental-Highly Recommended	Beck Anxiety Inventory (BAI)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.