CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

Displaying 2451 - 2475 of 2638

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1026-C11918	C11918	Modified Fatigue Impact Scale (MFIS) - trouble maintain physical effort long time score	Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale form	Exploratory	Modified Fatigue Impact Scale (MFIS)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2744-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Exploratory	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57716	C57716	Skin condition medication currently indicator	The indicator relating to whether the subject currently takes medication for skin condition(s)	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2741-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Exploratory	Bell CFIDS Disability Scale	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2721-C52777	C52777	Woodcock Johnson III (WJ-III) - Handwriting elements checklist grade	Grade pertaining to handwriting elements checklist as part of the Woodcock Johnson III (WJ-III) tests of achievement	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2731-C20529	C20529	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category	Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Exploratory	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57628	C57628	Prior to illness exercise intensity type	Type of intensity of the exercise the individual has engaged in prior to illness	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57262	C57262	Antibiotic long term repeated history indication text	Free-text field to describe the indication for which the participant/subject has had a history of long-term or repeated use	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57466	C57466	Daily activity exercise bad day duration	Duration of how long an individual spends exercising (in hours) on a bad day	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2719-C58379	C58379	Blurry vision stand duration scale	Scale for the duration of standing time before blurry vision occurs	Exploratory	Modified Orthostatic Symptom Grading Scale	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2724-C20547	C20547	Quality of Life in Neurological Disorders (Neuro-Qol) - Fatigue assessment past week scale	The scale representing how often the participant felt fatigued in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)	Exploratory	Neuro-QOL Adult Bank - Fatigue	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2744-C51670	C51670	School name	The name of the school that the subject currently attends, if applicable	Exploratory	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2766-C58273	C58273	Insect borne pathogen endemic area live within 300 meter indicator	Indicator of whether the subject/participant currently lives within 300 meters of an area with an endemic insect-borne pathogen (e.g., Lyme disease, Zika virus)	Exploratory	Exposure History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2721-C54158	C54158	Woodcock Johnson III (WJ-III) - Story recall story one points count	Count of the number of correct test subject responses from story recall story 1 test as part of the Woodcock Johnson III (WJ-III) tests of achievement	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57270	C57270	Medical history immune malignancy name text	The name of any malignancy or malignancies affecting the subject's immune system as part of the medical history	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2747-C57885	C57885	Cerebellar finger nose finger assessment status	The status of finger-nose-finger cerebellar assessment in neurological examination	Exploratory	Neurological Exam	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57517	C57517	Spent bed hour day 7 before test duration	Duration of test time spent (in hours) in bed on day 7 before recording date start	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2721-C19258	C19258	Occupation primary status	The status indicating the participant's/subject's current primary occupational status	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2724-C20563	C20563	Quality of Life in Neurological Disorders (Neuro-Qol) - Difficulty begin task fatigue assessment past week scale	The scale representing how often the participant had trouble starting things because they were too tired in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)	Exploratory	Neuro-QOL Adult Bank - Fatigue	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2744-C56413	C56413	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Similarities T score	The T score converted from the raw score that the subject received on the Similarities subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Exploratory	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2766-C58285	C58285	Apartment residence building floor number	Number of the building floor on which the apartment residence is located	Exploratory	Exposure History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2721-C54166	C54166	Woodcock Johnson III (WJ-III) - Story recall story 6 points count	Count of the number of correct test subject responses from story recall story 6 test as part of the Woodcock Johnson III (WJ-III) tests of achievement	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57302	C57302	Health problem interfere household task average scale	Scale related to how much an individual's health problems interfere with his/her doing household tasks (making beds, vacuuming) on average	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2721-C52792	C52792	Woodcock Johnson III (WJ-III) - Story recall-delayed stories 5-6 point value	Value of the points scored for story recall-delayed stories 5-6 as part of the Woodcock Johnson III (WJ-III) tests of achievement	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57281	C57281	Infection condition diagnosis year value	The year of diagnosis of infections	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Displaying 2451 - 2475 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.