CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2721-C54156	C54156	Woodcock Johnson III (WJ-III) - Handwriting line quality comments text	Comments pertaining to handwriting line quality on the handwriting elements checklist as part of the Woodcock Johnson III (WJ-III) tests of achievement	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2744-C56431	C56431	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning confidence interval lower bound value	The lower bound of the subject's Perceptual Reasoning confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Exploratory	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57501	C57501	Actual recording start date	Date in which actual recording started	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2721-C19247	C19247	Subject ID	Subject identification ID	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2724-C20560	C20560	Quality of Life in Neurological Disorders (Neuro-Qol) - Sleep need during day past week scale	The scale representing how often the participant needed to sleep during the day in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)	Exploratory	Neuro-QOL Adult Bank - Fatigue	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2721-C54165	C54165	Woodcock Johnson III (WJ-III) - Story recall story 5 points count	Count of the number of correct test subject responses from story recall story 5 test as part of the Woodcock Johnson III (WJ-III) tests of achievement	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57299	C57299	Health problem interfere working bad day scale	Scale related to how much an individual's health problems interfere with his/her working on a bad day	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2744-C56440	C56440	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 confidence interval lower bound value	The lower bound of the subject's Full Scale IQ-2 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Exploratory	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57543	C57543	Spent awake engage activity mental clarity 6 day before test duration	Duration of test time spent by an individual while awake engaging in activities that required mental clarity on day 6 before recording date start	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2724-C20577	C20577	Quality of Life in Neurological Disorders (Neuro-Qol) - Limit social activity physical weakness fatigue asssessment past week scale	The scale representing how often the participant had to limit social activity because of being physically weak in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)	Exploratory	Neuro-QOL Adult Bank - Fatigue	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57264	C57264	Antibiotic long term repeated history use year text	The year(s) that the subject has used antibiotics repeatedly or long term	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2721-C54173	C54173	Woodcock Johnson III (WJ-III) - Understanding directions picture 1 points count	Count of the number of correct test subject responses from picture 1 of the understanding directions test as part of the Woodcock Johnson III (WJ-III) tests of achievement	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57324	C57324	Health problem interfere exercising good day scale	Scale related to how much an individual's health problems interfere with his/her exercising on a good day	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2721-C52800	C52800	Woodcock Johnson III (WJ-III) - Oral comprehension score	Score from the oral comprehension test as part of the Woodcock Johnson III (WJ-III) tests of achievement	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2744-C56407	C56407	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Vocabulary raw score	The raw score that the subject received on the Vocabulary subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Exploratory	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2706-C57076	C57076	National Health and Nutrition Examination Survey (NHANES) - Unrest feeling frequency category	Range of how often an individual feels unrested during the day, no matter how many hours of sleep he/she had, as part of the National Health and Nutrition Examination Survey (NHANES)	Exploratory	Sleep Questions For All Studies	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57551	C57551	Spent awake engage activity mental clarity 4 day before test duration	Duration of test time spent by an individual while awake engaging in activities that required mental clarity on day 4 before recording date start	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57273	C57273	Gut condition diagnosis year value	The year that the subject was diagnosed with gut condition(s)	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2721-C54209	C54209	Woodcock Johnson III (WJ-III) - Story recall delayed story one points count	Count of the number of correct test subject responses from story recall - delayed story 1 test as part of the Woodcock Johnson III (WJ-III) tests of achievement	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57347	C57347	Severity fatigue average day over month type	Type of fatigue severity faced on an average day over the past few months	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2719-C58332	C58332	Fatigue occurrence condition frequency scale	Scale of the frequency of conditions when fatigue occurs	Exploratory	Modified Orthostatic Symptom Grading Scale	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2721-C52811	C52811	Woodcock Johnson III (WJ-III) - Reading vocabulary analogies correct count	Count of the number of correct test subject responses from the reading vocabulary analogies test as part of the Woodcock Johnson III (WJ-III) tests of achievement	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2744-C56415	C56415	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning T score sum value	The sum of the T scores the subject received on the Perceptual reasoning subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Exploratory	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2713-C57190	C57190	Fluid deprivation test with DDAVP date and time	The date and time the subject's Fluid deprivation test with DDAVP was performed	Exploratory	Neuroendocrine Labs	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2799-C10855	C10855	Grip strength maximum measurement	Measurement of the maximum grip strength attained in the trial being recorded	Exploratory	Grip Strength Fatigue	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.