CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth.	Core	General Core	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57072	Sleep issue treatment indicator	Indicator of whether study participant has received any treatment for sleep issues	Core	Sleep Questions For All Studies	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58291	Residence test radon indicator	Indicator of whether the subject/participant's residence has been tested for radon	Exploratory	Exposure History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52645	Woodcock Johnson III (WJ-III) - Additional information subject testing hearing aid use indicator	Indicator whether test subject uses a hearing aid during testing as part of the Woodcock Johnson III (WJ-III) tests of achievement.	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58220	Heavy traffic ever live within 300 meter year range	Range of years during which the subject/participant lived within 300 meters of heavy traffic	Exploratory	Exposure History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58436	Lung condition inactive resolved other text	Free-text field to specify any other lung conditions the subject has had that are no longer active or are considered resolved or cured	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57595	Gut condition diagnosis type	Any gut conditions the subject has ever been diagnosed with.	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52761	Woodcock Johnson III (WJ-III) ? Passive comprehension correct count	Count of correct passive comprehension test responses from the test subject as part of the Woodcock Johnson III (WJ-III) tests of achievement.	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58300	Bath water source	Source of the water used by the subject/participant for bathing	Exploratory	Exposure History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52659	Woodcock Johnson III (WJ-III) - Attention concentration status	Status level of test subject's attention and concentration as part of the Woodcock Johnson III (WJ-III) tests of achievement.	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58248	Pesticide spray area live within 300 meter indicator	Indicator of whether the subject/participant currently lives within 300 meters of a pesticide spray area (e.g., farm, orchard, golf course)	Exploratory	Exposure History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57711	Skin condition diagnosis type	Any type of the skin conditions listed that the subject has ever been diagnosed with.	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52773	Woodcock Johnson III (WJ-III) ? Writing samples items 13?24 points value	Value of the points scored in writing samples items 13–24 as part of the Woodcock Johnson III (WJ-III) tests of achievement.	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58310	Pesticide use lawn garden indicator	Indicator of whether pesticide is used on the subject/particpant's lawn or garden	Exploratory	Exposure History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52679	Woodcock Johnson III (WJ-III) ? Letter-word indentification score	Scoring for the letter-word identification battery as part of the Woodcock Johnson III (WJ-III) tests of achievement.	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57062	Post-exertional malaise measurement type	Type of measurement in PEM study	Exploratory	PEM-Focused Studies Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58257	Polluted waterway live within 300 meter type	Type of polluted waterway that the subject/participant within 300 meters of which the subject/participant lives now or has lived	Exploratory	Exposure History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C54711	Epworth Sleepiness Scale Children (ESS-C) - Doze sleep likelihood sit inactive public place code	The code denoting the subect/participant's self-reported likelihood of dozing off or falling asleep while sitting inactive in a public place (for example during a movie or in the classroom), as part of the Epworth Sleepiness Scale, Children's version (ESS-C)	Exploratory	Epworth Sleepiness Scale (ESS) ? Children's Version	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C19500	Assessment performed date	The date of assessment of the examination being performed.	Exploratory	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57768	Blood immune system condition diagnosis type	Any type of blood and/or immune system condition(s) that the subject has ever been diagnosed with.	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C17402	Site name	The name of the site for the study	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57373	Medical history eye condition other text	Text describing another eye condition the subject has a medical history of.	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52781	Woodcock Johnson III (WJ-III) ? Handwriting size comments text	Comments pertaining to handwriting size on the handwriting elements checklist as part of the Woodcock Johnson III (WJ-III) tests of achievement.	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C52714	Woodcock Johnson III (WJ-III) ? Reading fluency total points value	Total points value calculated from subtracting WJ3ReadingFluencyIncorrectCt from WJ3ReadingFluencyCorrect Count as part of the Woodcock Johnson III (WJ-III) tests of achievement.	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58268	Windmill ever live within 300 meter year range	Range of years during which the subject/participant lived within 300 meters of a windmill	Exploratory	Exposure History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.