CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 76 - 100 of 2638
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17402 Site name

The name of the site for the study

Core Core PEM Assessment Questionnaire Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant, assigned at birth

Core General Core Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57094 DePaul Symptom Questionnaire (DSQ) - Soreness next day severity scale

Scale related to the severity of the individual having next day soreness or fatigue after non-strenuous, everyday activities, as part of the DePaul Symptom Questionnaire (DSQ)

Core Core PEM Assessment Questionnaire Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58282 Blood clot disorder text

Specifies blood clot disorder that subject/participant has ever been diagnosed with

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57079 DePaul Symptom Questionnaire (DSQ) - Feeling unrefresh after wake-up frequency scale

Frequency of how often the individual are feeling unrefreshed after waking-up in the morning, as part of the DePaul Symptom Questionnaire (DSQ)

Core Sleep Questions For All Studies Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58316 Past current eye condition type

Any type of past and current eye conditions that the subject/participant has ever been diagnosed with

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57087 DePaul Symptom Questionnaire (DSQ) - Wake-up early frequency scale

Frequency related to the individual waking-up early in the morning (e.g. 3 am), as part of the DePaul Symptom Questionnaire (DSQ)

Core Sleep Questions For All Studies Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58329 Neuromuscular disorder type text

Text of type of neuromuscular disorders that the subject/participant has ever been diagnosed with

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58348 Past current male only condition type

Any type of past and current male only conditions that the subject/participant has ever been diagnosed with

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58365 Organ type text

Specifies type of organ transplanted in subject/participant

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58171 Condition illness indicator

The indicator of whether the condition or illness is present as part of the past and current illness assessment

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C19247 Subject ID

Subject identification ID

Core Core PEM Assessment Questionnaire Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58677 Gender identity type

Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

Core General Core Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57095 DePaul Symptom Questionnaire (DSQ) - Mentally tired after slight effort frequency scale

Frequency of how often an individual feels mentally tired after slightest effort, as part of the DePaul Symptom Questionnaire (DSQ)

Core Core PEM Assessment Questionnaire Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C17402 Site name

The name of the site for the study

Core Sleep Questions For All Studies Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58284 Other blood disorder text

Specifies other blood disorder not listed in the table

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57080 DePaul Symptom Questionnaire (DSQ) - Feel unrefresh after wake-up severity scale

Scale related to the severity of the individual feeling unrefreshed after waking-up in the morning, as part of the DePaul Symptom Questionnaire (DSQ)

Core Sleep Questions For All Studies Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58317 Past current endocrine metabolic illness type

Any type of endocrine and metabolic illnesses that the subject/participant has ever been diagnosed with

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57088 DePaul Symptom Questionnaire (DSQ) - Wake-up early severity scale

Scale related to the severity of the individual waking-up early in the morning (e.g. 3 am), as part of the DePaul Symptom Questionnaire (DSQ)

Core Sleep Questions For All Studies Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58330 Muscle disease text

Text specifying muscle disease that the subject/participant has ever been diagnosed with

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58350 Past current miscellaneous illness type

Any type of past and current miscellaneous illnesses that the subject/participant has ever been diagnosed with

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58368 Past surgery type

Type of past surgery(ies) performed on subject/participant

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58172 Condition illness indicator age onset value

The value of the age of onset of indicated condition or illness as part of the past and current illness assessment

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57261 Immune symptom onset type

The type of general immune/infectious symptom(s) that the subject experienced at onset (within first month of illness)

Core Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00007 Birth date

Date (and time, if applicable and known) the participant was born

Core General Core Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 76 - 100 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.