CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 26 - 50 of 2638
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58329 Neuromuscular disorder type text

Text of type of neuromuscular disorders that the subject/participant has ever been diagnosed with

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58348 Past current male only condition type

Any type of past and current male only conditions that the subject/participant has ever been diagnosed with

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58356 Other kidney problem type text

Text of type of other kidney problems that the subject/participant has ever been diagnosed with

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57094 DePaul Symptom Questionnaire (DSQ) - Soreness next day severity scale

Scale related to the severity of the individual having next day soreness or fatigue after non-strenuous, everyday activities, as part of the DePaul Symptom Questionnaire (DSQ)

Core Core PEM Assessment Questionnaire Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58372 Past surgery performed institution name

Name of institution in which the subject/participant had surgery performed

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C17402 Site name

The name of the site for the study

Core Core PEM Assessment Questionnaire Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58350 Past current miscellaneous illness type

Any type of past and current miscellaneous illnesses that the subject/participant has ever been diagnosed with

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58172 Condition illness indicator age onset value

The value of the age of onset of indicated condition or illness as part of the past and current illness assessment

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58284 Other blood disorder text

Specifies other blood disorder not listed in the table

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57079 DePaul Symptom Questionnaire (DSQ) - Feeling unrefresh after wake-up frequency scale

Frequency of how often the individual are feeling unrefreshed after waking-up in the morning, as part of the DePaul Symptom Questionnaire (DSQ)

Core Sleep Questions For All Studies Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58317 Past current endocrine metabolic illness type

Any type of endocrine and metabolic illnesses that the subject/participant has ever been diagnosed with

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57087 DePaul Symptom Questionnaire (DSQ) - Wake-up early frequency scale

Frequency related to the individual waking-up early in the morning (e.g. 3 am), as part of the DePaul Symptom Questionnaire (DSQ)

Core Sleep Questions For All Studies Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58636 Race USA category code

Code for the subject/participant's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58330 Muscle disease text

Text specifying muscle disease that the subject/participant has ever been diagnosed with

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C19247 Subject ID

Subject identification ID

Core Core PEM Assessment Questionnaire Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58357 Other genital infections type text

Text of type of other genital infections that the subject/participant has ever been diagnosed with

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57095 DePaul Symptom Questionnaire (DSQ) - Mentally tired after slight effort frequency scale

Frequency of how often an individual feels mentally tired after slightest effort, as part of the DePaul Symptom Questionnaire (DSQ)

Core Core PEM Assessment Questionnaire Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58373 Past surgery performed city name

Name of city where the subject/participant had surgery performed

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57261 Immune symptom onset type

The type of general immune/infectious symptom(s) that the subject experienced at onset (within first month of illness)

Core Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58351 Other sleep disorder type text

Text of type of other sleep disorders that the subject/participant has ever been diagnosed with

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57957 Immune symptom onset current type

Whether the types of general immune/infectious symptom(s) that the subject experienced at onset (within first month of illness) are being currently experienced

Core Medical History - Immune Module Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58173 Condition illness indicator still present text

The text indicating of whether the condition or illness is still present as part of the past and current illness assessment

Core Past and Current Illnesses Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C17402 Site name

The name of the site for the study

Core Sleep Questions For All Studies Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 26 - 50 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.