CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 2796
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C57079 DePaul Symptom Questionnaire (DSQ) - Feeling unrefresh after wake-up frequency scale

Frequency of how often the individual are feeling unrefreshed after waking-up in the morning, as part of the DePaul Symptom Questionnaire (DSQ)

 Core Sleep Questions For All Studies False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57087 DePaul Symptom Questionnaire (DSQ) - Wake-up early frequency scale

Frequency related to the individual waking-up early in the morning (e.g. 3 am), as part of the DePaul Symptom Questionnaire (DSQ)

 Core Sleep Questions For All Studies False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58374 Other surgeries performed text

Specifies other surgery(ies) performed on subject/participant

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58352 Other psychosis type text

Text of type of other psychosis that the subject/participant has ever been diagnosed with

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C10559 Spontaneous miscarriage count

Value representing the number of times the participant/subject has had miscarriages or spontaneous abortions, including all trimesters

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58238 Past current blood disorders illness type

Any type of past and current blood disorder(s) illnesses that the subject/participant has ever been diagnosed with

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58288 Other cardiovascular condition text

Specifies other cardiovascular conditions not listed in the table

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Core Demographics False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58319 Past current gastrointestinal illness type

Any type of past and current gastrointestinal illnesses that the subject/participant has ever been diagnosed with

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C19247 Subject ID

Subject identification ID

 Core Core PEM Assessment Questionnaire False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58341 Past current psychological illness type

Any type of past and current psychological illnesses that the subject/participant has ever been diagnosed with

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57095 DePaul Symptom Questionnaire (DSQ) - Mentally tired after slight effort frequency scale

Frequency of how often an individual feels mentally tired after slightest effort, as part of the DePaul Symptom Questionnaire (DSQ)

 Core Core PEM Assessment Questionnaire False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57080 DePaul Symptom Questionnaire (DSQ) - Feel unrefresh after wake-up severity scale

Scale related to the severity of the individual feeling unrefreshed after waking-up in the morning, as part of the DePaul Symptom Questionnaire (DSQ)

 Core Sleep Questions For All Studies False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58361 Other male problems type text

Any other type of past and current male problems that the subject/participant has ever been diagnosed with

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57088 DePaul Symptom Questionnaire (DSQ) - Wake-up early severity scale

Scale related to the severity of the individual waking-up early in the morning (e.g. 3 am), as part of the DePaul Symptom Questionnaire (DSQ)

 Core Sleep Questions For All Studies False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core General Core False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C17402 Site name

The name of the site for the study

 Core Sleep Questions For All Studies False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58353 Other skin problems type text

Text of type of other skin problems that the subject/participant has ever been diagnosed with

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C11063 Parity maternal value

Number of live born children the participant's/subject's mother has delivered

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58239 Past current cardiovascular illness type

Any type of past and current cardiovascular illnesses that the subject/participant has ever been diagnosed with

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58297 Past current chest illness type

Any type of past and current chest illnesses that the subject/participant has ever been diagnosed with

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core Demographics False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58320 Other liver disease text

Specifies other liver disease not listed in the table

 Core Past and Current Illnesses False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57069 Post-exertional malaise DePaul Symptom Questionnaire threshold met indicator

Indicator of whether DSQ PEM threshold was met

 Core Core PEM Assessment Questionnaire False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58639 Marital status code

Code for the subject/participant's marital status

 Core Demographics False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 1 - 25 of 2796

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.