CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2764-C58314	C58314	Past current ear nose throat condition type	Any type of past and current ear, nose, and throat conditions that the subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58328	C58328	Alzheimer dementia type text	Text of type of Alzheimer's or other dementia(s) that the subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58347	C58347	Past current female only condition type	Any type of past and current female only conditions that the subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C19096	C19096	Surgery performed date	Date of last surgical intervention	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2698-C57092	C57092	DePaul Symptom Questionnaire (DSQ) - dead heavy feeling after exercise severity scale	Scale related to the severity of the individual having a dead, heavy feeling after starting to exercise, as part of the DePaul Symptom Questionnaire (DSQ)	Core	Core PEM Assessment Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58278	C58278	Other bleeding disorder text	Specifies other bleeding disorder not listed in the table	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2698-C57100	C57100	DePaul Symptom Questionnaire (DSQ) - physical drain after mild activity severity scale	Scale related to the severity of the individual feeling physically drained or sick after mild activity, as part of the DePaul Symptom Questionnaire (DSQ)	Core	Core PEM Assessment Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2706-C57086	C57086	DePaul Symptom Questionnaire (DSQ) - problem stay asleep severity scale	Scale related to the severity of the individual having problems staying asleep, as part of the DePaul Symptom Questionnaire (DSQ)	Core	Sleep Questions For All Studies	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58355	C58355	Other sexually transmitted diseases type text	Any other type of past and current sexually transmitted diseases that the subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58370	C58370	Past surgery type indicator	Indicator of whether a past surgery(ies)was performed on subject/participant	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2713-C57158	C57158	Thyroid-Stimulating hormone test date and time	The date and time the subject's Thyroid-Stimulating Hormone (TSH) test was performed	Core	Neuroendocrine Labs	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58316	C58316	Past current eye condition type	Any type of past and current eye conditions that the subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58329	C58329	Neuromuscular disorder type text	Text of type of neuromuscular disorders that the subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58348	C58348	Past current male only condition type	Any type of past and current male only conditions that the subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58171	C58171	Condition illness indicator	The indicator of whether the condition or illness is present as part of the past and current illness assessment	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2698-C57093	C57093	DePaul Symptom Questionnaire (DSQ) - Soreness next day frequency scale	Frequency of how often an individual has next day soreness or fatigue after non-strenuous, everyday activities, as part of the DePaul Symptom Questionnaire (DSQ)	Core	Core PEM Assessment Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58282	C58282	Blood clot disorder text	Specifies blood clot disorder that subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2706-C57087	C57087	DePaul Symptom Questionnaire (DSQ) - Wake-up early frequency scale	Frequency related to the individual waking-up early in the morning (e.g. 3 am), as part of the DePaul Symptom Questionnaire (DSQ)	Core	Sleep Questions For All Studies	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58356	C58356	Other kidney problem type text	Text of type of other kidney problems that the subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58372	C58372	Past surgery performed institution name	Name of institution in which the subject/participant had surgery performed	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2706-C57079	C57079	DePaul Symptom Questionnaire (DSQ) - Feeling unrefresh after wake-up frequency scale	Frequency of how often the individual are feeling unrefreshed after waking-up in the morning, as part of the DePaul Symptom Questionnaire (DSQ)	Core	Sleep Questions For All Studies	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2764-C58317	C58317	Past current endocrine metabolic illness type	Any type of endocrine and metabolic illnesses that the subject/participant has ever been diagnosed with	Core	Past and Current Illnesses	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2767-C58636	C58636	Race USA category code	Code for the subject/participant's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.