CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2760-C58088	C58088	Blood disorders anemia type text	Text of anemia type blood disorder that the subject's/participant's family relative has ever been diagnosed with	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2760-C58105	C58105	Blood disorders bleeding disorder type text	Text of bleedintg disorder type blood disorder that the subject's/participant's family relative has ever been diagnosed with	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C54941	C54941	Blood glucose unit of measure	Unit of measure for reporting blood glucose values	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57780	C57780	Blood immune condition active indicator	The indicator relating to whether the subject currently has an active blood or immune condition	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57769	C57769	Blood immune condition diagnosis other text	Text specifying a blood and/or immune system condition other than the ones previously mentioned that the subject has ever been diagnosed with	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57279	C57279	Blood immune condition diagnosis year value	Year of diagnosis of a blood or immune condition	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57805	C57805	Blood immune condition inactive resolved other text	Text specifying a blood and/or immune system condition other than the ones previously mentioned that is no longer active in the subject or is considered resolved or cured	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57804	C57804	Blood immune condition inactive resolved type	Any type of blood and/or immune system conditions that are no longer active in the subject or are considered resolved or cured	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57772	C57772	Blood immune condition medication currently indicator	The indicator relating to whether the subject takes medication for blood or immune conditions daily	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57773	C57773	Blood immune condition medication name	The name of any medication(s) the subject is taking for blood or immune conditions	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57770	C57770	Blood immune condition medication past year indicator	The indicator relating to whether the subject has taken medication for blood or immune conditions in the past year	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57774	C57774	Blood immune condition medication work well indicator	The indicator relating to whether the medication(s) the subject is taking for blood or immune conditions is (are) working well	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57768	C57768	Blood immune system condition diagnosis type	Any type of blood and/or immune system condition(s) that the subject has ever been diagnosed with	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C01507	C01507	Blood pressure diastolic measurement	Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2791-C19565	C19565	Blood Pressure measurement	Blood pressure measurement with systolic measurement over diastolic measurement	Supplemental-Highly Recommended	Passive Standing Test Protocol	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C01565	C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58415	C58415	Blood sample peripheral blood mononuclear cell isolation method other text	Free-text field to describe other isolation method used for blood peripheral blood mononuclear cells	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58414	C58414	Blood sample peripheral blood mononuclear cell isolation method type	Isolation method used for blood peripheral blood mononuclear cells	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2719-C58376	C58376	Blurry vision activity interference scale	Scale of blurry vision interference with daily living activities	Exploratory	Modified Orthostatic Symptom Grading Scale	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2719-C58369	C58369	Blurry vision frequency scale	Frequency of blurry vision scale	Exploratory	Modified Orthostatic Symptom Grading Scale	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2719-C58375	C58375	Blurry vision occurrence condition scale	Scale of the frequency of conditions in which blurry vision occurs	Exploratory	Modified Orthostatic Symptom Grading Scale	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2719-C58371	C58371	Blurry vision severity scale	Severity of blurry vision scale	Exploratory	Modified Orthostatic Symptom Grading Scale	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2719-C58379	C58379	Blurry vision stand duration scale	Scale for the duration of standing time before blurry vision occurs	Exploratory	Modified Orthostatic Symptom Grading Scale	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2763-C58156	C58156	Brain part text	Text describing the part of the brain examined if less than the full brain volume	Supplemental-Highly Recommended	Low Resolution Electromagnetic Tomography (LORETA)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2763-C18895	C18895	Brain region of interest other text	The free-text field related to 'Brain region of interest type' specifying other text. Region of interest in the brain	Supplemental-Highly Recommended	Low Resolution Electromagnetic Tomography (LORETA)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.