CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2798-C58521	C58521	Tender point pair knee type	The type of knee paired tender point in pain assessment	Supplemental	Pain Assessment	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2798-C58520	C58520	Tender point pair lateral epicondyle type	The type of lateral epicondyle paired tender point in pain assessment	Supplemental	Pain Assessment	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2798-C58522	C58522	Tender point pair occiput type	The type of occiput paired tender point in pain assessment	Supplemental	Pain Assessment	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2798-C58519	C58519	Tender point pair second rib type	The type of second rib paired tender point in pain assessment	Supplemental	Pain Assessment	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2798-C58523	C58523	Tender point pair supraspinatus type	The type of supraspinatus paired tender point in pain assessment	Supplemental	Pain Assessment	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2798-C58518	C58518	Tender point pair trapezius type	The type of trapezius paired tender point in pain assessment	Supplemental	Pain Assessment	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2798-C58525	C58525	Tender point pair trochanter major type	The type of trochanter major paired tender point in pain assessment	Supplemental	Pain Assessment	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2765-C12780	C12780	Test assay abnormality type	Whether the result of the confirmatory diagnostic test was normal or abnormal	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2765-C12779	C12779	Test assay perform date	Date the confirmatory diagnostic test or assay was performed	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2522-C55796	C55796	Test of Premorbid Functioning - Raw score	The raw score that the subject earned, as part of the Test of Premorbid Functioning	Supplemental	Test of Premorbid Functioning	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2522-C55798	C55798	Test of Premorbid Functioning - Reading based IQ equivalent estimate value	The estimate of the subject's IQ, based on an equivalent value the subject's reading score, as part of the Test of Premorbid Functioning	Supplemental	Test of Premorbid Functioning	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2522-C55797	C55797	Test of Premorbid Functioning - Simple demographic based IQ equivalent estimate value	The simple estimate of the subject's IQ, based on a demographic equivalent score, as part of the Test of Premorbid Functioning	Supplemental	Test of Premorbid Functioning	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2713-C57174	C57174	Testosterone test date and time	The date and time the subject's Testosterone, free test was performed	Supplemental	Neuroendocrine Labs	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2713-C57173	C57173	Testosterone test result unit of measure	The unit used to measure the results from the Testosterone, free test	Supplemental	Neuroendocrine Labs	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2713-C57172	C57172	Testosterone test result value	Value describing the results from the Testosterone, free test	Supplemental	Neuroendocrine Labs	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C58006	C58006	Thyroid nodules assessment indicator	The indicator of thyroid nodules assessment in physical examination	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C58005	C58005	Thyroid palpable assessment indicator	The indicator of thyroid palpable assessment in physical examination	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C58007	C58007	Thyroid size assessment indicator	The indicator of thyroid size assessment in physical examination	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C58008	C58008	Thyroid summary assessment status	The status of summary thyroid assessment in physical examination	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2713-C57149	C57149	Thyroid test type	The type of test performed in the Thyroid lab panel	Supplemental	Neuroendocrine Labs	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C58004	C58004	Thyroid visible assessment indicator	The indicator of thyroid visible assessment in physical examination	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2713-C57158	C57158	Thyroid-Stimulating hormone test date and time	The date and time the subject's Thyroid-Stimulating Hormone (TSH) test was performed	Core	Neuroendocrine Labs	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2713-C57157	C57157	Thyroid-Stimulating hormone test result unit of measure	The unit used to measure the results for the Thyroid-Stimulating Hormone (TSH) test	Core	Neuroendocrine Labs	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2713-C57156	C57156	Thyroid-Stimulating hormone test result value	Value describing the results from the Thyroid-Stimulating Hormone (TSH) test	Core	Neuroendocrine Labs	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57371	C57371	Tired month duration	Duration of how long and individual has been tired (in months)	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.