CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2743-C58412	C58412	Serum plasma sample collection processing elapse time interval	Elapsed time between sample collection and processing for serum and plasma samples	Supplemental-Highly Recommended	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58411	C58411	Blood collection tube endotoxin free indicator	Indicator related to whether blood collection tube is endotoxin-free	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58410	C58410	Blood collection tube sterile indicator	Indicator related to whether blood collection tube is sterile	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58409	C58409	Blood collection tube catalog number	Catalog number of blood collection tube	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58408	C58408	Blood collection tube brand name	Name of the brand of blood collection tube	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58407	C58407	Blood collection tube volume value	Volume of blood collection tube	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58406	C58406	Change medication time status text	Free-text field to specify changes to medication	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58405	C58405	Changed medication frequency other text	Free-text field to describe change(s) to medication	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58403	C58403	Medication baseline modification before study start indicator	Indicator related whether there were modifications to baseline medications prior to study start	Supplemental-Highly Recommended	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58402	C58402	Sample collection processing elapse time interval	Elapsed time between sample collection and processing	Supplemental-Highly Recommended	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2765-C58401	C58401	Laboratory test infectious disease positive result indicator	The indicator relating to whether the infectious disease laboratory test result was positive	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2758-C58400	C58400	Laboratory procedure urine white blood cells value	This variable documents renal excretion of white blood cells	Supplemental	Laboratory Test Results	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2758-C58399	C58399	Laboratory procedure urine red blood cells value	This variable documents renal excretion of red blood cells	Supplemental	Laboratory Test Results	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2758-C58398	C58398	Laboratory procedure hemoglobin value	Value of hemoglobin	Supplemental	Laboratory Test Results	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2758-C58397	C58397	Laboratory procedure percent eosinophils value	Value of percent eosinophils	Supplemental	Laboratory Test Results	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2758-C58396	C58396	Laboratory procedure percent atypical lymphocytes value	Value of percent atypical lymphocytes	Supplemental	Laboratory Test Results	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2751-C58395	C58395	Other treatments reason type text	Text specifying other subject/participant treatments	Supplemental-Highly Recommended	Medication and Other Treatments	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2791-C58394	C58394	Position held minute text	The time in minutes a position is held	Supplemental-Highly Recommended	Passive Standing Test Protocol	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58393	C58393	Highest grade degree completed type	Indicates the highest grade or degree the subject/participant has completed	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58392	C58392	Other times turned down count	Specifies number of other times turned down for disability benefits	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58391	C58391	Other condition disability type text	Specifies other condition	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2751-C58390	C58390	Medication symptom status	Status of symptoms with medication use	Supplemental-Highly Recommended	Medication and Other Treatments	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2751-C58389	C58389	Medication actual use schedule frequency	Actual frequency of use of medication	Supplemental-Highly Recommended	Medication and Other Treatments	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58388	C58388	Other current or last job type text	Specifies other current or last job	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58387	C58387	Other description of highest level job type text	Specifies other highest level job	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.